Dear group, My mom was just diagnosed with Stage I follicular lymphoma. I just got off the phone with her and I'm pretty upset, although I don't know much ...
First, this group is nearly dormant. There are others that are much more active. I would suggest you go to: http://www.nhlcyberfamily.org/ for information, and...
Thanks so much for the information. My name is Anthony, age 35 and I live in Michigan. My mom lives in NY. I'm going to check out the other listserves and...
Anthony, I suggest the NHL Cyberfamily list. (Also here on Yahoo.) Very knowledgeable moderators. A little overwhelming with the volume of e-mails. Can be...
Hello, I hope you don't mind me posting this here? Please vote for POST PALS and help brighten the lives of seriously ill children. We (www.postpals.co.uk) are...
Hello Elizabeth, I'm Dave. I was diagnosed 3 1/2 years ago. Doing fine. This group is not very active. But, I might be able to answer some of your questions....
Hey Elizabeth, I have NHL as well. I was dx'd in 03 and went through Chemo last year. So far everything is all clear. I hope that besides that cancer that you...
Hi Dave, Thank you for your welcome e-mail,and pleased you are doing fine. I was finally dianogsed on 2nd April after months of tests and bioscpys. & have...
Lizzie, Yes, I did the R-CHOP too. Then did two years of Rituxan (Mabthera), once every six months. It was a clinical trial. (Sometimes called maintenance.)...
Hi Elizabeth, I'm Jackie. I am pretty new at group correspondence via yahoo and tried to comment twice earlier and somehow my comments never showed up. I was...
Jackie, Good to hear that you are doing well. Keep on with the good news. This can be battle can be won., "Beamer" Dave age 59+ Pleasanton, California dx 11/03...
Forgive me as I slowly try to figure the correspondence thing out. I am probably doing things differently from others due to the fact that I am kinda lost...
Hi Dave: I am Chuck. I became ill with lymphoma 3 years & 4 months ago. I am doing well after treatment. Complete contineous remission. I had a rare...
Elizabeth, Welcome! I'm sorry you have to join our "little" group here, but please feel welcome to share anything you wish or to ask any question you may...
Thanks for the info chuck. I've never heard of AILT. I'm familiar with the L & L Society, and their board, and the Cyberfamily. But, stopped following the...
wow, i can't imagine how much this has put you through emotionally. i had a small lump behind my ear sort of and it went away. i don't know why but i am tired...
Aaron, You have definitely been through a lot. And I know from personal experience that there is always strengths within us that we never knew existed until ...
interesting. i've lived in the san fernando valley too. those santa ana winds rocked when the humidity came a callin. i also lived/was born in new york. spent...
Michelle, I had zevalin in Aug., 2006. I am part of a clinical study. I was diagnosed 6/06 with tx beginning 8/06. I had rituxan 2x and the zevalin once in...
My CT scan showed enlarged lymph nodes in my neck and chest. the first biopsy (needle) was inadequate because the lymph node was too hard to get a sample....
... But, following my surgical biopsy I had the results in about a week. You may receive results sooner than that as I had to wait for the day the surgeon was...
thank you mary. ... -- Michelle Desilets, Director Borneo Orangutan Survival Foundation UK http://www.savetheorangutan.co.uk "Primates helping Primates" NEW...
... Results depend on the lab handling the tests AND your Doctor's 'pull' with hospital, clinic, etc. My DH got his results surprisingly fast from the VA...
the itching may have come from the ct scan dye. the ct scan dye that was used on me had a lot of iodine in it. it had a minor allergic reaction to it, but then...
Newsweek Article excerpt: What if they found a cure for a cancer that afflicts half a million people, but a combination of stupid bureaucrats and greedy...
I have a friend who recently had successful treatment for Hodgkins Lymphoma. (Stage 2, treated with Chemo and Radiation). Her treatment ended at the end of...
I just want to add a note of encouragement for those of you who are battling with this. You can beat this thing, It is not the end all of life. At the age of...