Hi Mink, I don't know where all the people went on this list. I signed up last November, nothing since. So, as far as finding a friend here with the same type...
Hi Dave. I'm still on this list too. It's a quiet group. As for the MALT Lymphoma, I have no idea what that is but on August 12, 2004, I was diagnosed with...
Hi Connie. I've been wondering how you are doing. We first talked when you joined this group, as we were diagnosed a few weeks apart and we have the same...
Hi Donna, It's great to hear from you again. I'm in several lymphoma groups that I forgot which one you belonged to. Let me know how your CTScan goes on the...
Hi Connie, Congrats on the remission, hope it continues for a very long time. I've had two (of four) Rituxan maintenance treatments, six months apart, with ...
Thanks Dave for the info about Rituxan. I was wondering if there would be any side effects from taking just Rituxan. Do you have to take the prednisone and...
Connie, No Prednisone. So don't plan on redecorating the house - while enforcing world peace. (Or maybe you don't get into the ZONE.) Yes on the Benadryl,...
Oh Dave, you've made my day! I hate what that old prednisone does to me. It's such a relief to know that I don't have to deal with climbing the walls again....
Hello everyone. I don't have lymphoma but my mother does. She just got diagnosed with it for the 3rd time. She has been battling this disease since 2001. I...
I have been having recurrent fevers. I had a "hot spot show up around my diaghapram around my left lung. They are scheduling me for a ct scan to see if it is...
Hello, just stumbled across your message from over a year ago, Post PAls is still going and im sure the kids would love to hear from you, your son or anyone...
My brother was diagnosed with large B cell lymphoma and I'm trying to find someone who had the same diagnosis and has used glyconutrients to complement their...
Hello, I came across your egroup and thought I would join to offer our support out to you. We are a small team who setup a new non-profit making organisation ...
I'm trying to get opinions from people who have or have had lymphoma that are familiar with the symptoms. I have been fatigued now for 3 weeks. I've been to...
From the way it sounds, you might just be having a reaction to the EBV infection. Your symptoms seem to match what my Microbiology text says about the...
Andre, Thanks for chiming in. I've found it hard to find any info related directly to the EBV virus and not Mono. I'ts difficult to determine the difference...
That might be the thing to do (looking into EBV/mono). I think that one of the true universals about lymphoma is a noticiable something somewhere that turns...
Hi Eden, I had fatigue but I also had a tumor growing on my heart causing it. I went to 4 different doctors that said that I was ok. I finally went to a...
Carol Olivie
colivie@...
Aug 11, 2005 2:23 am
499
Carol, Was the tumor Lymphoma? or no? How long ago were you diagnosed? How is your treatment going? Also, what were your other symptoms besides fatigue? Eden ...
Hi Eden, Yes I had Large Diffuse B cell Non Hodgkin’s Lymphoma. I was diagnosed in July of 2000 I had to have a biopsy to find out which Lymphoma I had. ...
Carol Olivie
colivie@...
Aug 12, 2005 11:11 pm
501
Carol, That is some story. I admire you for your strength to get through it all. I'm also glad to hear you are in remission. My doc (internist) is aware of my...
Hi Eden, It’s good that you are getting the Cat Scan. That is what saved my life. I get very nervous when doctor’s can find anything so they just dismiss...
Carol Olivie
colivie@...
Aug 13, 2005 1:42 am
503
Carol: Saw your answer to Eden on my lymphoma group, and wanted to thank you so very much for all your help, when I was diagnosed with Non-Hodgkins. I don't...
PPbern3@...
Aug 14, 2005 12:54 am
504
Hi Pauline, I do remember you & I'm very glad that I could help. I usually don't describe my symptoms because they are so different from the norm (except for ...
Carol Olivie
colivie@...
Aug 14, 2005 5:01 pm
505
Hi Carol: Just want you to keep up what you are doing, you are one of the few I keep seeing on this group on a regular basis. You are articulate and you ...
PPbern3@...
Aug 15, 2005 3:46 pm
506
Hello, I am new to the group and wanted to introduce myself. My name is Claire and I have three children (7 year old boy/girl twins and an almost 8 month old...
Hello everyone, My name is Kim just turned 40 8/18 the same day I went for a mammogram and ultrasound for a lump I found in my left armpit. I was told that the...
