Nancy,

I think that Lithium orotate is a wonderful shield from Lyme's emotional
vagaries. Unfortunately, I ran out a few weeks ago, and here in the boonies, was
only able to find Lithium aspartate. I was blaming my short bursts of depression
and funk on the March weather, but yesterday had a friend muscle-test me and it
came up as useless to me. A left-over Lithium orotate came up as emphatically
positive.
Should have sent off for more, I guess.

Be well,
Léna


--- In lymestrategies@yahoogroups.com, "Nancy Wilson - biz" <wilson33@...>
wrote:
>
> Shelly,
>
> I take 2 lithium's first thing each morning - for me, it really, really
> helps my mood. It is suppose to do something positive with the blood brain
> barrier for lymies and for mood disorders.
>
> Nancy
>
>   _____
>
> From: lymestrategies@yahoogroups.com [mailto:lymestrategies@yahoogroups.com]
> On Behalf Of Shelly Axe
> Sent: Monday, March 30, 2009 8:40 PM
> To: lymestrategies@yahoogroups.com
> Subject: [lymestrategies] Re: LYME in the Brain - rage attacks, crying jags,
> depression, paran
>
>
>
>
> I am taking lithium orotate for lymes attacking the brain.  I like it and I
> think it helps.
>
> Shelly
>

From what I have read it seems a good possibility. Practice safe sex would
be best. Why risk it?

> -----Original Message-----
> From: lymestrategies@yahoogroups.com
> [mailto:lymestrategies@yahoogroups.com] On Behalf Of George Shingleton
> Sent: Tuesday, March 31, 2009 7:42 AM
> To: lymestrategies@yahoogroups.com
> Subject: [lymestrategies] OT: if i get a vasectomy instead of
> using condoms
>
> will my wife be more likely to catch Lyme disease from me?
>

Hi!

This is an open letter that may be shared and reposted, in its entirety.

Chronic Lyme is frequently misdiagnosed as ALS, CFS, FMS, Parkinson's and
many others. Please see the open letter appended to the end of this
document. Perhaps you or a loved actually has Chronic Lyme instead of one
the above? If so there is HOPE and way towards health!

It seems in the world of misdiagnosed Chronic Lyme it's hard to get
antibiotic treatment and if you can its even harder to get any insurance
company to pay for it.

The good news is there are treatments that folks are doing that seem to help
and they are way less expensive than antibiotics. And many seem to think
they might be safer too!

In no paticular order here are some of them: herbal supplements, rife type
electronic machines, Colloidal Silver, Salt/C regimen. They are even more!

Note I am not a doctor and do not prescribe or recommend treatments. But I
do collect information on what others are doing and how its working for
them.

There is no copyright information on the CD but simply information I have
gleaned from reading literally 100s of emails a day form different support
groups and other web based data. I pick and choose what seems to me the most
relevant. It is not a comprehensive set of data by any means but it does
contain allot of gems.

I have a free Computer text CD of information that I have collected over the
last year helping my wife fight Chronic Lyme. And yes she is doing MUCH
better now than she was then! Praise God! She has not had any regular
antibiotics other than an initial short term dosage two years ago.

I send the cd out postpaid to anyone in US or Canada who sends me a mailing
address.

The information is broken down in easy to find categories, such as Related
Symptoms, Body, Other Illnesses, Treatments, Research etc. Note this is full
of text documents and is NOT a music CD or video DVD.

I am constantly updating it and make a batch a week to send out. It's a
Christian ministry for me and I don't charge for it.

I will respond to every request with an email (usually within 24 hours). If
you don't get the email then assume I never got your request and resend it!

Note you can also download the information in a single zip file (About 150
megabytes) from my website at
http://www.msadams.com/Lyme/Lyme_Resources.zip

I update this file on the website at least weekly and it will always contain
the most recent information.

If you decided to download the file I suggest simply storing it on your
desktop. You can then open it as a folder and read it.

If you do get the information form Cd or download and find it useful I would
appreciate an email. That way I will know to continue the ministry. As long
as folks find it helpful, I will continue.


Scott Adams
msadams@...
www.msadams.com

----------------
This is an open letter that may be shared and reposted, in its entirety.
It went to the IDSA guidelines review panel, along with 10 copies of my new
book The Baker's Dozen & the Lunatic Fringe: Has Junk Science Shifted the
Lyme Disease Paradigm? as well as a 5 page letter including excerpts and
references for the panelists to review. Here is the basic text of the
letter. -- PJ Langhoff

- -

March 25, 2009

Dear Esteemed Guidelines Review Panelists,

I am a Lyme patient, mother of 2 Lyme infected adults, award-winning author,
advocate and medical researcher who probably acquired Lyme congenitally.
However after our most recent tick bites, my family was forced to wait 13
years for an accurate diagnosis of Lyme disease despite nearly 100 physician
and ER visits. This unnecessary delay occurred despite the fact that I
removed ticks from myself and my then toddlers and we had bull's-eye rashes
and other acute Lyme symptoms.
Over time I progressively lost physical ability to the point of being unable
to walk, work, drive, think, use the left side of my body, etc. I suffered
intractable pain for years. My family and I were sick all of our lives
because no doctors would touch the words "Lyme disease". One physician told
me behind closed doors he was "not allowed to diagnose"
Lyme patients, or put the words "Lyme disease" in patient charts for fear of
reprisals. I spent 10 days at the Mayo clinic in Rochester, MN whereby I was
refused Lyme testing despite my symptoms and lengthy medical history.
Repeatedly I heard "there is no Lyme in Wisconsin"
which was patently ridiculous. Indeed your panelist Yale's Dr. Paul Duray
performed tick surveys on WI military bases around the time my family was
most recently bitten (in the 1990s). Reports indicated that areas of WI were
Lyme endemic at that time. Note I lived just 2 hours from one of those
endemic bases. It is felt that my parents, siblings, and probably children
also have Lyme, acquired congenitally. Many of us have been re-bitten and
have active Lyme infections and progressing symptoms despite repeated
antibiotic treatments.

Later on, as if chronic illness was not enough of an insult to my family, I
was forced to fight over 12 years in family court to retain custody of my
children post-divorce, yet eventually lost all parental rights in short,
simply because I had Lyme disease. That occurred despite expert physician
witnesses and laboratory tests clearly showing my family Lyme positive, even
by CDC standards. One judge said I didn't "look sick". One of my children
ended up in a psychiatric ward for observation due to Lyme induced
depression. We have lost homes, jobs, reputations, finances; filed
bankruptcy, fought disability providers, and insurers just to get
medications and treatments that were life-saving, covered; and most were
paid out-of-pocket. I have had to endure years of oral antibiotics that do
not work, fulminant symptoms, intramuscular and IV therapies, surgical
operations, the loss of several organs, and CNS, joint, and brain invasion
by organisms that could have been successfully treated at onset if those
whom have been holding the purse strings of information censorship had been
speaking the truth about spirochetal infections; instead of silencing a
growing epidemic in exchange for what has appeared to be profiteering and
notoriety.

I have fought hard to defend Lyme treating physicians because of what the
medical boards are doing to them (pulling their licenses or other
sanctions) because they dare to treat patients outside IDSA "standards"
of care that are no one's standards - "standards" that are merely
recommendations, and which clearly do not work. This is a tragic situation
when our own physicians cannot treat patients in favor of insurance
companies or a handful of powerful academicians who dictate medical dogma,
the former without a license, the latter without practical clinical
experience. Corporatized medicine serves no one except the profiteers; and
certainly not the ill patient populations.

Sadly, our family's tragic situation is not unique. I contend that if
restrictive Lyme disease medical guidelines such as those promulgated
unilaterally by the IDSA in 2000 and again in 2006, which deny aspects of
this illness and minimize others, are allowed to proliferate, then more
families will be facing the kinds of tragic destruction, discrimination and
denial that our family has unnecessarily and unjustly, but for the sake of
research dollars and promoting for-profit pipelines.

I urge you to carefully consider the long-term consequences of clinical
practice guidelines that are intended to serve as recommendations and not
mandate for treating physicians. The current restrictive IDSA guidelines and
processes that allow academicians to patent and profit upon technologies
also allow insurance companies to deny patients a right to become healthy
and whole. This is additionally disturbing when we see that some of the
academicians who are also guidelines panelists have conflicts of interest
including patent holdings, and are paid consultants to pharmaceutical and
insurance companies and witnesses in litigation. That some of these
individuals have ongoing vaccine and diagnostic test involvement; as well as
a role in the establishment of "standards" and information dissemination is
intensely troubling when that information denies aspects of illness, as the
IDSA guidelines do for Lyme disease. It is clear that some of these parties
well know the severity of this illness but patently refuse to budge on more
recent opinion. Perhaps this is because they and their associates stand to
lose much if they admit to the truth about this illness. How unfortunate for
those ill with this disease that power, profit, and reputations appear
greater than the welfare of people globally. You have a chance to change
things for Lyme patients for all of history right now, but only if you
choose truthfulness over ongoing censorship for profit and private agendas.

In all fairness to patients who are to benefit from current and future
guidelines, we request full consensus in writing medical guidelines, even
when guidelines are merely recommendations. This process must include all
current research (not just that put forth by a few panelists); everyday
experiences of our treating clinicians, and valuable patient input and
experience - and I thank you for the opportunity to provide such input at
this juncture. It is my hope that this open public input period is truly
meaningful and not just a token conciliatory gesture for patients whereby
the end result will be to nevertheless uphold the 2006 IDSA guidelines that
patients, physicians, and others clearly do not want nor accept as
legitimate. We do not want or need biased, rubber-stamped, disease
dismissing, for-industry guidelines that place profits above human
suffering. And patients will be far more vocal about this the longer it
continues to occur until these practices cease to exist and those held
accountable for these practices when they occur. Illness does not equal
powerlessness, and those who are ill, expect and deserve better than what we
have been spoon-fed from previous clinical practice guidelines for Lyme
disease and some of its panelists.

After all, we are learning the truth about this disease; from study of all
available documents, and from personal experience living with these
infections. From our perspective, the guidelines and some of those who have
been involved with the Dearborn criteria, the guidelines formation,
diagnostic and vaccine technologies, and who also are grant recipients, and
patent holders, currently appear far from truthful about this growing
epidemic. The current guidelines are inaccurate and reflect a desire to
restrict patient and physician access to life-saving medications and
treatment processes. The unfettered censorship of our physicians by academic
mandate disguised as "recommendations" is most unwelcome in the
patient/doctor relationship, and the toying of our health by insurance
companies who whimsically misinterpret the IDSA guidelines is as dangerous
to human life as Borrelia burgdorferi is, when left untreated or
undertreated.

Clinical trials and controlled studies are necessary aspects of medicine.
However, the practical patient experience has been shifted to the back
burner in favor of academic "expert" opinion and research funding, including
by those who do not see patients, or who occasionally do but who have only a
limited patient sampling with one or two symptom presentations. Adhering to
unilateral thought regarding a limited number of patients in favor of
controlled, funded studies over time is an unrealistic approach that is
woefully out of touch with the clinical experience. An absence of
"scientific" proof is not proof of absence.
Physicians who treat thousands of Lyme patients were, and are summarily
excluded from the IDSA guidelines process, along with a former panelist who
was excused for not agreeing to the "expert" opinion of other IDSA
panelists. (Experts who again, do not have practical real time experience
treating patients in a clinical setting.) The patients are crying out loudly
for these processes to change, for our welfare, and for the future welfare
of all persons yet to be infected with this devastating illness.

To that end, one of my recent books from my Lyme "It's All In Your Head"
series, was recently released, (titled The Baker's Dozen & the Lunatic
Fringe: Has Junk Science Shifted the Lyme Disease Paradigm). I have included
10 copies, one for each panelist to receive and review during this patient
input period. I have collected significant research sources, including
objective peer-reviewed articles, as well as FDA, DoD, NIH, CDC, published
books, CME videotapes, and other sources, and compiled them for patients,
educators, physicians, panelists, and others to review. The book illustrates
also the research behind this disease as previously published by many of the
IDSA panelists. It clearly shows the IDSA guidelines to be at stark odds
with some of the guidelines authors'
own earlier published findings. The fact that earlier claims about the
severity and persistence of Lyme disease by some of these parties do not
reconcile with their current guidelines recommendations leads us to question
the motivations of those who have written them.

That there are tremendous potential conflicts of interest at play does not
escape the public. My book helps to illustrate what some of those important
connections and conflicts may be and how they may be influencing the current
Lyme paradigm. It also closely examines the CDC recommendations set forth at
the 1994 Dearborn MI conference that was designed to standardize testing;
yet apparently simply provided unilateral opinion that appears unsupported
by scientific evidence - opinion that led to a.) the release of what is
considered to have been an unsafe vaccine by virtue of OspA sensitivity,
chronic treatment resistant arthritis of which certain panelists were aware
before the vaccine was released [evidenced by research papers]; and b.) has
also led to the wrongly promoted insensitive diagnostic tests incapable of
detecting most patients who have Lyme disease for many reasons examined;
which has thus led to c.) thousands of people like my family being
misdiagnosed, undiagnosed, and improperly treated for an organism that could
have easily been treated at onset that the IDSA panelists published was
persisting and severe; and d.) the refusal by doctors to continue to treat
patients until symptoms are gone due to restrictive guidelines and fear of
reprisals through medical board actions; and e.) the refusal by disability
and insurance companies to pay for disability and/or treatments while they
conveniently cite IDSA guidelines as mandate and not recommendation in order
to control profit margins.

And since the current IDSA guidelines appear written in a manner supportive
of this kind of discrimination, thousands have been disabled, killed, or
have ended their own lives thanks to intractable pain, severe depression,
discrimination and other factors caused by Lyme disease. If there is no
"illness-for-profit" paradigm in play, then there is no excuse to continue
to defend guidelines that dismiss meaningful research and clinical evidence,
and contraindicate access to life-saving treatments. Lyme disease is a
serious epidemic that requires open-ended treatments with combination
antibiotics to the benefit of patient wellness as long as, and as frequently
as is necessary until symptom resolution. Treatment benefits are nonexistent
under a therapeutic schedule with limited duration that abruptly ends by a
predetermined calendar date. And one which then magically changes all
remaining spirochetes into some "post-Lyme syndrome", a term that is not
only hyperbole and conjecture, but also complete and utter nonsense. I
outline how this is so within my new book which is provided for your review.

That there are those who continue to deny the existence of an organism that
has long been studied by the military in collaboration with academic
institutions as a bio-weapon; and that some of these parties, after
patenting the organisms and processes, now publish contrary to some of their
earlier research on these same organisms, is unconscionable in the public
opinion of mass majority. That some of these parties would also be allowed
to patent, profit and promote these processes by developing vaccines and
insensitive/ineffective diagnostic tools in order to promote a vaccine which
failed; while simultaneously holding patents on tests with a greater ability
to diagnose Lyme patients but refusing to develop these more accurate
processes, is also unthinkable.

Patients are imploring the current panel members to reconsider carefully the
input of patients, their treating physicians and the scientific facts that
have been formerly ignored during previous IDSA guidelines processes. The
true research evidence is in fact present and easily accessible to all who
choose to read same. Lyme disease is serious, persistent, chronic and
debilitating; and even previous IDSA guidelines panelists published these
facts - even if they choose to minimize or flatly ignore their own findings
within past and current guidelines and recent publications. For that reason,
I urge you to read fully, or at the very least, glance carefully at the
sections in my new book that discuss testing, patenting, grant funding, the
guidelines processes, persistence, testing standardization and failures, the
IDSA guidelines inadequacies/errors and the earlier research published by
the IDSA guidelines authors and their associates. Likewise, consider
carefully all submissions by those outside the IDSA academic "club" during
this public input period.

Only when you see the truth about Lyme disease, in the form of the published
research, the patient and the physician clinical experience, the revelations
of conflicts of interests in former panelists, and the extent by which the
paradigm is exploited for profit over patient welfare can you objectively,
mindfully, and responsibly create guidelines that are clearly in the best
interests of the patients they are supposed to serve - something for and
about which, many believe that the former and current IDSA guidelines for
Lyme disease have failed miserably.

It is a tragedy that patients have had to endure the kind of prejudice and
censorship that we have had over the past several decades - at times by the
very parties who are sworn to "first do no harm". We have trusted unfairly
those in the academic world who have had the power to keep us ill in favor
of research funding. We are far more educated about our illness now, with
full awareness of the political and scientific issues.
Sources like the film Under Our Skin, the CT Attorney General's
investigation, and books like mine are helping others to find those truths
and bring them into the spotlight. You merely have to look at them and
consider the impact of forcing populations to remain ill by perpetrating
ongoing myths that nobody believes or is buying except for the minority,
"Baker's Dozen".

I urge you to consider your choices carefully. Patients will no longer stand
idly by and accept what we know is not truthful. With great respect for what
you are about to( undertake, but with the personal experience that this
disease has long afforded me through decades of dealing with same, my
research work and privileges in physician and patient advocacy, I formally
request that you read the content of my new book, and put the patients first
in your guidelines review process.
Remember to "first do no harm". I include on the following pages some
excerpts from my book to facilitate your study - a book with more than 1,060
references. I collected this over a 4.5 year period, while ill, from
publicly accessible sources. My research was included in the CT Attorney
General's anti-trust investigation into the IDSA guidelines, and part of it
was shared with producers of the film Under Our Skin. Of note is that my
books are available and selling internationally through popular book
sellers. This information is not being taken lightly by your peers or by
patients and physicians the world over. And in turn we expect and request
that in a similar manner, that this information not be taken lightly by the
esteemed review panel.

(references, excerpts etc. listed on 2 additional pages not included here)

PJ Langhoff's books, including The Baker's Dozen & the Lunatic Fringe:
Has Junk Science Shifted the Lyme Disease Paradigm, are available at
http://www.amazon.com/ and http://www.allegorypress.com/


=============================================================

will my wife be more likely to catch Lyme disease from me?

sota instruments makes a really good ozonator and the silver pulser is
great for killing bacterial and making good CS. i am actually about to
buy both of these devices as well as the magnetic pulser. i visited
their shop and you can trust them. they are awesome ppl.

monique

Hi Gang-
I wanted to see if any of you have had any success with ozone and if you
would be willing to share your story. I have re-read Marc's e-book and
in it, he
states that CS and ozone are both wonderful adjuncts.

I may invest in a unit. I saw some on ebay single power generator. What
does
that mean?

The unit was about 400 dollars. Seems reasonable. Is that too cheap and
does
that mean a poor quality machine?

Thanks so much!

----- Original Message -----

From: nancy berndt

To: lymestrategies@yahoogroups.com

Sent: Monday, March 30, 2009 2:13 PM

Subject: Re: [lymestrategies] LYME in the Brain - rage attacks, crying jags, depression, paranoia

Hi Cindy

Could you please post that info to the group? I would love to read it as well

Thanks so much and I am really enjoying your posts

Nancy(Makayla's mom)

On Mon, Mar 30, 2009 at 8:14 AM, Cindi Callanan <cindicallanan@comcast.net> wrote:

Gayle, I want to add to this and/or talk to you off-line.  I just wanted to put my more than two cents in regarding the cholestyramine approach and then talk about the rage.  This Dr. B information was probably originally gotten from RS on the eastern shore of Maryland, who did some of the groundbreaking work with identifying and getting info out about neurotoxins (especially from toxic mold) and their ability to hide in the fat cells.  He uses cholestyramine and welchol (a less potent version) to bind and remove.  I went there with my son 5 years ago and we were tested and then treated.  Lyme was disregarded as the underlying issue and RS only focused on our having been poisoned by toxic mold.  Regardless, the treatment about killed us.  My colon just stopped working on it's own and my son, who was pretty normal to start with,  has had continual problems since.  

 

The toxins (neurotoxins, biotoxins and much of the lyme/coinfectant presences) are stored in the fat cells for the most part and there's another way I've found to get at them.  We had to stop with the prescribed treatment and I spent 2 years looking for something that would bind with toxins in the fat cells and this does so much more.  It actually builds internal body/immune strength, which is vital for those of us who are/have been so sick.  You can't just start killing pathogens without having enough strength or means to deal with the die off - it can actually make you weaker to do it that way.  This particular protocol, to which I suggest adding a couple of other things to really help repair the gut and start actively repopulating it with good microforms.  Anyway, it also kills pathogens and the detoxes them out of the body.  Clears liver/kidneys/blood, lymph and pulls heavy metals from the body and brain gently and amazingly effectively.   

 

Also, re: the anger, rage attacks, crying, etc. - we had it all and more!!!  There's an article I'll send you if you'd like that describes the drop in MSH, a hormone in the hypothalamus, when the neurotoxin/biotoxin load is too much for your body.   MSH is little talked about and has huge impact.  It controls most other functions in the brain/body, including hormones, neurotransmitters, pain, sleep, digestive, etc.   If you are having monthly cyclical episodes, it's probably not from having unresolved emotional issues.  While they're always good to look at, the fact that it's cyclical means that it's probably more hormonally based.  Also, I don't know how you eat... a lot of sugar or improperly combined foods will feed the systemic candida yeast (which most don't know they have) and other pathogens that get out of control from all the antibiotics.  That alone is enough to produce what you're talking about and so much more.  By systemic, I mean they get in the blood and then everywhere, including the brain. 

 

Anyway, hope this is helpful.  If you want to call/write, I'd be happy to share. 

 

Cindi Callanan, MsT, CST, BEC
Power Wellness Solutions
Integrative Wellness Consultant/Health Coach
National Cleansing Coach
410-771-4994 O

----- Original Message -----

From: jprutty

To: lymestrategies@yahoogroups.com

Sent: Monday, March 30, 2009 9:33 AM

Subject: Re: [lymestrategies] LYME in the Brain - rage attacks, crying jags, depression, paranoia

First thing I thought of for a few posts I read this morning was neurotoxins.  Just in my opinion at least.  But here is an excerpt from Burrascano's '08 guide on them and how to get rid of them...

---

It has been said that the longer one is ill with Lyme, the more neurotoxin is present in the body. It probably is stored in fatty tissues, and once present, persists for a very long time. This may be because of enterohepatic circulation, where the toxin is excreted via the bile into the intestinal tract, but then is reabsorbed from the intestinal tract back into the blood stream. This forms the basis for treatment.

Two prescription medications that can bind these toxins include cholestyramine resin and Welchol pills. When take orally in generous amounts, the neurotoxin present in the intestinal tract binds to the resin, is trapped, and then excreted. Thus, over several weeks, the level of neurotoxin is depleted and clinical improvement can be seen. Current experience is that improvement is first seen in three weeks, and treatment can continue for a month or more. Retreatment is always possible.

These medications may bind not only toxins but also many drugs and vitamin supplements. Therefore no other oral medications or supplements should be taken from a half hour before, to two hours after a dose of one of these fiber agents.

Cholestyramine should be taken two to four times daily, and Welchol is prescribed at three pills twice daily. While the latter is obviously much simpler to use, it is less effective than cholestyramine. The main side effects are bloating and constipation, best handled with increased fluid intake and gentle laxatives.

---

From: comeebonita

Sent: Monday, March 30, 2009 9:05 AM

To: lymestrategies@yahoogroups.com

Subject: [lymestrategies] LYME in the Brain - rage attacks, crying jags, depression, paranoia

Anyone out there know anything about how to clear lyme from the brain???

I did a couple of years on antibiotics, then a couple of years with EMEM and GB 4000 and a year of Salt & C, plus tons of supplements. I took myself from debilitated and unable to work or hardly leave my house and bed to almost fully functional.

However, while I think that I have cleared the lyme from my body, I believe that I still have a colony in my brain in the left frontal or temporal lobe area. I have bouts of uncontrollable rage, crying, depression, paranoia, and suicidal thoughts. It tends to be cyclical, and definitely always around the full moon. It passes after a few days to a week and then I am a normal, same human being. I ruin all relationships and even friendships because of this.

Any ideas???

Thanks, Gayle

I just want to add that this synergy machine is not Saul Pressman's machine. As
far as I know it's not related to him.


--- In lymestrategies@yahoogroups.com, "grball628" <Angie@...> wrote:
>
> Hi all,
>
> I feel I should share some specifics about my experiences with particular
ozone units. A couple years back I purchased one on ebay. It was a synergy unit.
I had a $2500 ozone unit before this one (it wore out after more than 10 years
of use), and I have since purchased a longevity unit which cost me about $1800.
>
> The synergy I got from the ebay guy (who was recommended by someone on these
boards by the way) put out such strong ozone that it burned me internally. There
was no way to reduce the output. It burned my throat when I drank ozone water,
even when I diluted it. I suspect it was not a pure ozone. The smell of it was
odd.
>
> I finally gave up on that unit and decided to buy a new one. When I looked
into a new unit I spoke to a company that a lab that had tested the synergy.
They sayd that the synergy was putting out something that was toxic. According
to them they notified synergy and the company was not willing to do anything
about it. That's all only hearsay, but it certainly was not usable ozone for me
so I tend to believe it.
>
> The money I spent on the synergy unit was a complete waste of time and I lost
ground.
>
> If anyone wishes to try ozone, I recommend getting one that you know is made
of components that won't degrade from the ozone and add to your toxic load. I
also recommend getting one that gives you the ability to adjust the ozone output
- not just by how much oxygen you pump through, but by the ozone unit itself.
>
> Many units are made in garage workshops. While I think that's fine with may
electronic devices (I own some of these types of things myself and i know there
are some great rife devices made like that), it's not necessariy good with
ozone. If misused or not controlled well or mixed with materials that will
degrade and enter your body, it can make things worse. These units should be
made of the right materials, carefully tested and calibrated.
>
> As I've said before, I'm totally happy with this longevity unit. It smells
pure, it doesn't irritate my body, it is really helping me, it's easy to control
and I love the unit. I'm not in any way connected to this company except as a
customer.
>
> I love a bargain and always try to find the best price I can. I tried to save
money and I really hurt myself. I don't recommend trying to save money on an
ozone machine. If the synergy had been my first experience I would have given up
and never realized how much ozone could help me.
>
> Angie
>
>
> --- In lymestrategies@yahoogroups.com, Suemassie45@ wrote:
> >
> > Hi Gang-
> > I wanted to see if any of you have had any success with ozone  and if you
> > would be willing to share your story. I have re-read Marc's e-book  and in
it, he
> > states that CS and ozone are both wonderful adjuncts.
> >
> > I  may invest in a unit. I saw some on ebay single power generator. What
does
> > that  mean?
> >
> > The unit was about 400 dollars. Seems reasonable. Is that too  cheap and
does
> > that mean a poor quality machine?
> >
> > Thanks so much!
> > **************************
> > Jody-
> > I will call you because I have someone I would like you to speak with about
> > ozone.
> > I haven't been on these boards for a while. I hope you are doing  well.
> >
> > blessings-
> >
> > sue massie, ND
> > 732 933 4011
> > **************A Good Credit Score is 700 or Above. See yours in just 2 easy
> > steps!
> >
(http://pr.atwola.com/promoclk/100126575x1220439616x1201372437/aol?redir=http:%2\
F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID
> > %3D62%26bcd%3DfebemailfooterNO62)
> >
>

Susan.. I had muscle twitching until I started myers cocktails. MgCl could be
used up with die of somehow. It started for me after flagyl. It helped to sip
mag citrate or mag chloride thorugh out the day. Mag Cl liquid at vitacost
(nutracology) and or peter gilliams.. did t see your original post and not sure
you are doing this or not. Robin

--- In lymestrategies@yahoogroups.com, Nancy Umberger <ncumberger@...> wrote:
>
> Susan,
> I am having slight problems with being dizzy when i get up or lie down.  I
haven't had this for about 4 years.  I am hoping that it is pealing of the
onion.  I hope that is what is happening to you too.
> Best to you,
> Nancy U.
>
> --- On Sat, 3/28/09, Susan Wetzel <fhgwetzel@...> wrote:
>
> From: Susan Wetzel <fhgwetzel@...>
> Subject: [lymestrategies] muscle twitching
> To: lymestrategies@yahoogroups.com
> Date: Saturday, March 28, 2009, 10:20 AM
>
>
>
>
>
>
>
>
>
>
>
> Thanks for the info...yeah, I use lithium orotate (great stuff by the way ! )
I know I should be taking fish oil (one more thing I simply can not afford right
now) and I know it can be related to seizure activity.... .maybe the electrolite
connection. I take concentrace but maybe I should add more, although I get
pretty loose if I take too much.....just seems odd that it would come back after
being gone for so long.
>    I really appreciate the input : )
>
                                                                                \
       Susan in WV
>

Hi Nancy,

From everything I've ready most glutathione products taken orally don't make it
past the stomach. Is this one different?



--- In lymestrategies@yahoogroups.com, "Nancy Wilson - biz" <wilson33@...>
wrote:
>
> I have been using glutathione drops  you put in water. I can look the brand
> up when I get home and let you know if you're interested.
>
> Nancy
>
>   _____
>
> From: lymestrategies@yahoogroups.com [mailto:lymestrategies@yahoogroups.com]
> On Behalf Of grball628
> Sent: Monday, March 30, 2009 2:05 PM
> To: lymestrategies@yahoogroups.com
> Subject: [lymestrategies] Re: LYME in the Brain - rage attacks, crying jags,
> depression, paranoia
>
>
>
> Hi Heidi - Can you tell me about the glutathione suppositories? Is it actual
> glutathione and does it get in the blood in significant amounts? Where do
> you get them?
>
> Thanks!
>
> --- In lymestrategies@ <mailto:lymestrategies%40yahoogroups.com>
> yahoogroups.com, T S <tiredheidi@> wrote:
> >
> > I was also having a neurotoxin episode, which resulted in lyme gut palsey,
> frozen gut, and was put on welchol, which also did me in, because it caused
> constipation, and held all the toxins inside that it was supposed to be
> excreting!  my stomach was barely able to move suddenly which was diagnosed
> as lyme nerve damage to the gut area, and welchol only made it worse, with
> constipation,  so it was discontinued... what is working is charcoal, coffee
> enemas, glutathione suppositories, ionic foot bath, and taking chlorine free
> filtered baths, with some peroxide in the bath.  it was funny my tummy
> growled like crazy after the first bath last week!
> >
> >
> >
> > Regardless, the treatment about killed us.  My colon just stopped working
> on it's own and my son, who was pretty normal to start with,  has had
> continual problems since.
> >
> >
> > --- On Mon, 3/30/09, Cindi Callanan <cindicallanan@> wrote:
> >
> > From: Cindi Callanan <cindicallanan@>
> > Subject: Re: [lymestrategies] LYME in the Brain - rage attacks, crying
> jags, depression, paranoia
> > To: lymestrategies@ <mailto:lymestrategies%40yahoogroups.com>
> yahoogroups.com
> > Date: Monday, March 30, 2009, 3:23 PM
> >
> >
> >
> >
> >
> >
> >
> > Oops, in the second paragraph, it was supposed to be microflora, or it
> won't make any sense!!  Cindi
> >
> >
> >
> >
> > Gayle, I want to add to this and/or talk to you off-line.  I just wanted
> to put my more than two cents in regarding the cholestyramine approach and
> then talk about the rage.  This Dr. B information was probably originally
> gotten from RS on the eastern shore of Maryland, who did some of the
> groundbreaking work with identifying and getting info out about neurotoxins
> (especially from toxic mold) and their ability to hide in the fat cells.  He
> uses cholestyramine and welchol (a less potent version) to bind and remove.
> I went there with my son 5 years ago and we were tested and then treated.
> Lyme was disregarded as the underlying issue and RS only focused on our
> having been poisoned by toxic mold.  Regardless, the treatment about killed
> us.  My colon just stopped working on it's own and my son, who was pretty
> normal to start with,  has had continual problems since.
> >
> > The toxins (neurotoxins, biotoxins and much of the lyme/coinfectant
> presences) are stored in the fat cells for the most part and there's another
> way I've found to get at them.  We had to stop with the prescribed treatment
> and I spent 2 years looking for something that would bind with toxins in the
> fat cells and this does so much more.  It actually builds internal
> body/immune strength, which is vital for those of us who are/have been so
> sick.  You can't just start killing pathogens without having enough strength
> or means to deal with the die off - it can actually make you weaker to do it
> that way.  This particular protocol, to which I suggest adding a couple of
> other things to really help repair the gut and start actively repopulating
> it with good microflora (the good guys that keep the bad guy population down
> in the gut/body).  Anyway, it also kills pathogens and the detoxes them out
> of the body.  Clears liver/kidneys/ blood, lymph and pulls
> > heavy metals from the body and brain gently and amazingly effectively.
> >
> > Also, re: the anger, rage attacks, crying, etc. - we had it all and
> more!!!  There's an article I'll send you if you'd like that describes the
> drop in MSH, a hormone in the hypothalamus, when the neurotoxin/biotoxin
> load is too much for your body.   MSH is little talked about and has huge
> impact.  It controls most other functions in the brain/body, including
> hormones, neurotransmitters, pain, sleep, digestive, etc.   If you are
> having monthly cyclical episodes, it's probably not from having unresolved
> emotional issues.  While they're always good to look at, the fact that it's
> cyclical means that it's probably more hormonally based.  Also, I don't know
> how you eat... a lot of sugar or improperly combined foods will feed the
> systemic candida yeast (which most don't know they have) and other pathogens
> that get out of control from all the antibiotics.  That alone is enough to
> produce what you're talking about and so much more.  By systemic, I mean
> > they get in the blood and then everywhere, including the brain.
> >
> > Anyway, hope this is helpful.  If you want to call/write, I'd be happy to
> share.
> >
> > Cindi Callanan, MsT, CST, BEC
> > Power Wellness Solutions
> > Integrative Wellness Consultant/Health Coach
> > National Cleansing Coach
> > 410-771-4994 O
> >
> >
> > ----- Original Message -----
> > From: jprutty
> > To: lymestrategies@ yahoogroups. com
> > Sent: Monday, March 30, 2009 9:33 AM
> > Subject: Re: [lymestrategies] LYME in the Brain - rage attacks, crying
> jags, depression, paranoia
> >
> >
> >
> >
> > First thing I thought of for a few posts I read this morning was
> neurotoxins.  Just in my opinion at least.  But here is an excerpt from
> Burrascano's '08 guide on them and how to get rid of them...
> >
> >
> >
> >
> > It has been said that the longer one is ill with Lyme, the more neurotoxin
> is present in the body. It probably is stored in fatty tissues, and once
> present, persists for a very long time. This may be because of enterohepatic
> circulation, where the toxin is excreted via the bile into the intestinal
> tract, but then is reabsorbed from the intestinal tract back into the blood
> stream. This forms the basis for treatment.
> > Two prescription medications that can bind these toxins include
> cholestyramine resin and Welchol pills. When take orally in generous
> amounts, the neurotoxin present in the intestinal tract binds to the resin,
> is trapped, and then excreted. Thus, over several weeks, the level of
> neurotoxin is depleted and clinical improvement can be seen. Current
> experience is that improvement is first seen in three weeks, and treatment
> can continue for a month or more. Retreatment is always possible.
> > These medications may bind not only toxins but also many drugs and vitamin
> supplements. Therefore no other oral medications or supplements should be
> taken from a half hour before, to two hours after a dose of one of these
> fiber agents.
> > Cholestyramine should be taken two to four times daily, and Welchol is
> prescribed at three pills twice daily. While the latter is obviously much
> simpler to use, it is less effective than cholestyramine. The main side
> effects are bloating and constipation, best handled with increased fluid
> intake and gentle laxatives.
> >
> >
> >
> >
> >
> >
> > From: comeebonita
> > Sent: Monday, March 30, 2009 9:05 AM
> > To: lymestrategies@ yahoogroups. com
> > Subject: [lymestrategies] LYME in the Brain - rage attacks, crying jags,
> depression, paranoia
> >
> >
> >
> > Anyone out there know anything about how to clear lyme from the brain???
> >
> > I did a couple of years on antibiotics, then a couple of years with EMEM
> and GB 4000 and a year of Salt & C, plus tons of supplements. I took myself
> from debilitated and unable to work or hardly leave my house and bed to
> almost fully functional.
> >
> > However, while I think that I have cleared the lyme from my body, I
> believe that I still have a colony in my brain in the left frontal or
> temporal lobe area. I have bouts of uncontrollable rage, crying, depression,
> paranoia, and suicidal thoughts. It tends to be cyclical, and definitely
> always around the full moon. It passes after a few days to a week and then I
> am a normal, same human being. I ruin all relationships and even friendships
> because of this.
> >
> > Any ideas???
> >
> > Thanks, Gayle
> >
>

Hi all,

I feel I should share some specifics about my experiences with particular ozone
units. A couple years back I purchased one on ebay. It was a synergy unit. I had
a $2500 ozone unit before this one (it wore out after more than 10 years of
use), and I have since purchased a longevity unit which cost me about $1800.

The synergy I got from the ebay guy (who was recommended by someone on these
boards by the way) put out such strong ozone that it burned me internally. There
was no way to reduce the output. It burned my throat when I drank ozone water,
even when I diluted it. I suspect it was not a pure ozone. The smell of it was
odd.

I finally gave up on that unit and decided to buy a new one. When I looked into
a new unit I spoke to a company that a lab that had tested the synergy. They
sayd that the synergy was putting out something that was toxic. According to
them they notified synergy and the company was not willing to do anything about
it. That's all only hearsay, but it certainly was not usable ozone for me so I
tend to believe it.

The money I spent on the synergy unit was a complete waste of time and I lost
ground.

If anyone wishes to try ozone, I recommend getting one that you know is made of
components that won't degrade from the ozone and add to your toxic load. I also
recommend getting one that gives you the ability to adjust the ozone output -
not just by how much oxygen you pump through, but by the ozone unit itself.

Many units are made in garage workshops. While I think that's fine with may
electronic devices (I own some of these types of things myself and i know there
are some great rife devices made like that), it's not necessariy good with
ozone. If misused or not controlled well or mixed with materials that will
degrade and enter your body, it can make things worse. These units should be
made of the right materials, carefully tested and calibrated.

As I've said before, I'm totally happy with this longevity unit. It smells pure,
it doesn't irritate my body, it is really helping me, it's easy to control and I
love the unit. I'm not in any way connected to this company except as a
customer.

I love a bargain and always try to find the best price I can. I tried to save
money and I really hurt myself. I don't recommend trying to save money on an
ozone machine. If the synergy had been my first experience I would have given up
and never realized how much ozone could help me.

Angie


--- In lymestrategies@yahoogroups.com, Suemassie45@... wrote:
>
> Hi Gang-
> I wanted to see if any of you have had any success with ozone  and if you
> would be willing to share your story. I have re-read Marc's e-book  and in it,
he
> states that CS and ozone are both wonderful adjuncts.
>
> I  may invest in a unit. I saw some on ebay single power generator. What does
> that  mean?
>
> The unit was about 400 dollars. Seems reasonable. Is that too  cheap and does
> that mean a poor quality machine?
>
> Thanks so much!
> **************************
> Jody-
> I will call you because I have someone I would like you to speak with about
> ozone.
> I haven't been on these boards for a while. I hope you are doing  well.
>
> blessings-
>
> sue massie, ND
> 732 933 4011
> **************A Good Credit Score is 700 or Above. See yours in just 2 easy
> steps!
>
(http://pr.atwola.com/promoclk/100126575x1220439616x1201372437/aol?redir=http:%2\
F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID
> %3D62%26bcd%3DfebemailfooterNO62)
>

Do you feel a definite impact from them? Did you ever take the IV's? Thanks!


--- In lymestrategies@yahoogroups.com, T S <tiredheidi@...> wrote:
>
>
http://store.kelatoxpro.com/p-105-reduced-glutathione-suppositories-30-count.asp\
x
>  
> my veins are also worn out, so I am using the glutathion suppositories, which
get into the blood quickly and are cheap, and no trip to the infusion center to
lose hours, and be poked with needles.
>
> --- On Mon, 3/30/09, grball628 <Angie@...> wrote:
>
> From: grball628 <Angie@...>
> Subject: [lymestrategies] Re: LYME in the Brain - rage attacks, crying jags,
depression, paranoia
> To: lymestrategies@yahoogroups.com
> Date: Monday, March 30, 2009, 7:24 PM
>
>
>
>
>
>
> Hi Cindy - yes I would be grateful if you could post your detox suggestions on
the board. It's something we've all struggled with. I've been taking glutathione
IV's for years now, which really help. But they are soooooooo expensive and I
only get on every 10 days. If you have another way other than cholestyramine,
welchol or glutathione IV's I'd be grateful to know.
>
> Thanks! Angie
>
> --- In lymestrategies@ yahoogroups. com, nancy berndt <nlberndt@ .> wrote:
> >
> > Hi Cindy
> > Could you please post that info to the group? I would love to read it as
> > well
> > Thanks so much and I am really enjoying your posts
> > Nancy(Makayla' s mom)
> >
> > On Mon, Mar 30, 2009 at 8:14 AM, Cindi Callanan
> > <cindicallanan@ ...>wrote:
> >
> > > Gayle, I want to add to this and/or talk to you off-line. I just
> > > wanted to put my more than two cents in regarding the cholestyramine
> > > approach and then talk about the rage. This Dr. B information was probably
> > > originally gotten from RS on the eastern shore of Maryland, who did some
of
> > > the groundbreaking work with identifying and getting info out about
> > > neurotoxins (especially from toxic mold) and their ability to hide in the
> > > fat cells. He uses cholestyramine and welchol (a less potent version) to
> > > bind and remove. I went there with my son 5 years ago and we were tested
> > > and then treated. Lyme was disregarded as the underlying issue and RS only
> > > focused on our having been poisoned by toxic mold. Regardless, the
> > > treatment about killed us. My colon just stopped working on it's own and
my
> > > son, who was pretty normal to start with, has had continual problems
> > > since.
> > >
> > > The toxins (neurotoxins, biotoxins and much of the lyme/coinfectant
> > > presences) are stored in the fat cells for the most part and there's
another
> > > way I've found to get at them. We had to stop with the prescribed
treatment
> > > and I spent 2 years looking for something that would bind with toxins in
the
> > > fat cells and this does so much more. It actually builds internal
> > > body/immune strength, which is vital for those of us who are/have been so
> > > sick. You can't just start killing pathogens without having enough
strength
> > > or means to deal with the die off - it can actually make you weaker to do
it
> > > that way. This particular protocol, to which I suggest adding a couple of
> > > other things to really help repair the gut and start actively repopulating
> > > it with good microforms. Anyway, it also kills pathogens and the detoxes
> > > them out of the body. Clears liver/kidneys/ blood, lymph and pulls heavy
> > > metals from the body and brain gently and amazingly effectively.
> > >
> > > Also, re: the anger, rage attacks, crying, etc. - we had it all and
> > > more!!! There's an article I'll send you if you'd like that describes the
> > > drop in MSH, a hormone in the hypothalamus, when the neurotoxin/biotoxin
> > > load is too much for your body. MSH is little talked about and has huge
> > > impact. It controls most other functions in the brain/body, including
> > > hormones, neurotransmitters, pain, sleep, digestive, etc. If you are
> > > having monthly cyclical episodes, it's probably not from having unresolved
> > > emotional issues. While they're always good to look at, the fact that it's
> > > cyclical means that it's probably more hormonally based. Also, I don't
know
> > > how you eat... a lot of sugar or improperly combined foods will feed the
> > > systemic candida yeast (which most don't know they have) and other
pathogens
> > > that get out of control from all the antibiotics. That alone is enough to
> > > produce what you're talking about and so much more. By systemic, I mean
> > > they get in the blood and then everywhere, including the brain.
> > >
> > > Anyway, hope this is helpful. If you want to call/write, I'd be happy to
> > > share.
> > >
> > > Cindi Callanan, MsT, CST, BEC
> > > Power Wellness Solutions
> > > Integrative Wellness Consultant/Health Coach
> > > National Cleansing Coach
> > > 410-771-4994 O
> > >
> > > ----- Original Message -----
> > > *From:* jprutty <jprutty@ >
> > > *To:* lymestrategies@ yahoogroups. com
> > > *Sent:* Monday, March 30, 2009 9:33 AM
> > > *Subject:* Re: [lymestrategies] LYME in the Brain - rage attacks, crying
> > > jags, depression, paranoia
> > >
> > > First thing I thought of for a few posts I read this morning was
> > > neurotoxins. Just in my opinion at least. But here is an excerpt from
> > > Burrascano's '08 guide on them and how to get rid of them...
> > > ------------ --------- ---------
> > >
> > > It has been said that the longer one is ill with Lyme, the more neurotoxin
> > > is present in the body. It probably is stored in fatty tissues, and once
> > > present, persists for a very long time. This may be because of
enterohepatic
> > > circulation, where the toxin is excreted via the bile into the intestinal
> > > tract, but then is reabsorbed from the intestinal tract back into the
blood
> > > stream. This forms the basis for treatment.
> > >
> > > Two prescription medications that can bind these toxins include
> > > cholestyramine resin and Welchol pills. When take orally in generous
> > > amounts, the neurotoxin present in the intestinal tract binds to the
resin,
> > > is trapped, and then excreted. Thus, over several weeks, the level of
> > > neurotoxin is depleted and clinical improvement can be seen. Current
> > > experience is that improvement is first seen in three weeks, and treatment
> > > can continue for a month or more. Retreatment is always possible.
> > >
> > > These medications may bind not only toxins but also many drugs and vitamin
> > > supplements. Therefore no other oral medications or supplements should be
> > > taken from a half hour before, to two hours after a dose of one of these
> > > fiber agents.
> > >
> > > Cholestyramine should be taken two to four times daily, and Welchol is
> > > prescribed at three pills twice daily. While the latter is obviously much
> > > simpler to use, it is less effective than cholestyramine. The main side
> > > effects are bloating and constipation, best handled with increased fluid
> > > intake and gentle laxatives.
> > > ------------ --------- ---------
> > >
> > > *From:* comeebonita <gwnathan@ .>
> > > *Sent:* Monday, March 30, 2009 9:05 AM
> > > *To:* lymestrategies@ yahoogroups. com
> > > *Subject:* [lymestrategies] LYME in the Brain - rage attacks, crying jags,
> > > depression, paranoia
> > >
> > > Anyone out there know anything about how to clear lyme from the brain???
> > >
> > > I did a couple of years on antibiotics, then a couple of years with EMEM
> > > and GB 4000 and a year of Salt & C, plus tons of supplements. I took
myself
> > > from debilitated and unable to work or hardly leave my house and bed to
> > > almost fully functional.
> > >
> > > However, while I think that I have cleared the lyme from my body, I
believe
> > > that I still have a colony in my brain in the left frontal or temporal
lobe
> > > area. I have bouts of uncontrollable rage, crying, depression, paranoia,
and
> > > suicidal thoughts. It tends to be cyclical, and definitely always around
the
> > > full moon. It passes after a few days to a week and then I am a normal,
same
> > > human being. I ruin all relationships and even friendships because of
this.
> > >
> > > Any ideas???
> > >
> > > Thanks, Gayle
> > >
> > >
> > >
> >
>