---
Hi I am aware of th efeingol diet but can't get my son on any diet &
my daughter barely likes much foods as it is. I can't keep an eye on
what they eat at school unfortunately. What probiotic foods do you
mean? I though SBO's would be a good start. I was on 10mg
amytriptaline for th ebladder but it doesn't work any more so came off
it. I am trying to reduce my pain meds but my ESR is up at 28 again so
  my inflammation all over my body is at it's worst again. I do suffer
from IBS as well but the codeine obviously causes the opposite effect
but that means I am not getting rid of anything from my gut. I think
my parents started this panic thing in me as well as me having hormone
problems since my teens. My ADHD or thyroid symptoms (not sure which)
didn't help either. My parents still cause me to panic whenever I am
on the phone. I have had to cut down the calls. they don't even
believe we are ill (not in the true sense of the word).  Where do you
get your natural meds from? Do you think I should get soem other
things in or just start off on SBO's for now? I can't start too many
things at once. What would you recommend I stop? do you avoid eating
sugar & foods with yeast in them if you have a yeast infection? I
haven't heard of the yeast meds you mention, can they be bought in the
UK? sorry 10,000 questions. I still feel grotty from the antibiotic I
have just stopped. My panicky feelings have got worse this past 2
years as first my cat had to get put  down with cancer of the nose in
2002, then my Grandma died in the October (she was 93 though), then my
brother (aged 30) died in a car crash in the November. My long term
boyfriend finished with me 4 months later when I really started
grieving for my brother & now he is going out with my best friend (who
always wanted him anyway). I also moved to a new build bungalow last
year in July & have had so much problems with the builders who won't
come back & fix anything. I also have a lot of important paperwork
building up & next year my benefits will be cut in half when my son
turns 19. As you can see there has been a lot of 'outside' things
going on & I am getting similar predjudice being a single parent in a
brand new house as I was on the old council house estate i was living
in previously. Selling my old house, the house move to a new build
with rip-off builders & losing my brother have been the worst. I would
do anything to bring my sweet brother back, but I have just turned 40
& decided that getting both my self & my kids well is my priority. I
do live the back of beyond so alternative
therapists/foodshops/medications are non-existant here. The nearest
large town is 120 miles away. I have done well to even know some
things that are wrong with me with all I have had to cope with on my
own (my ex never lived with us & has deserted us completely but he
never was supportive  so it has been for the best). I have a friend in
England with some similar health problems but not the ADHD symptoms
who has been helping me & supporting me. She is about to start the
salt/C protocol but doesn't take painkillers at all. I have been
taking her advice for the other meds & the ME specialist. Do you not
take high dose fish oils & multivitamins? Did the ADHD in your family
turn out to be Borrelia after all? There is underactive thyroid rife
on both sides of my family & everyone closely related to me seem to
hav eloads of health problems. I probably inherited borrelia from my
parents. My dad has just been diagnosed with a blocked artery to the
heart & will have to have an op soon, this is worrying me too. There
seems to be heart problems with almost every male on his side of the
family. I am so worried about him. On my mum's side both her, my aunt,
uncle & cousin seem to have a drink problem. They must be self
medicating & not realising it. Sorry for going on.... best get to bed
now. Keep in touch. I need all the support I can get & thanks for
replying so quickly.
Fiona
In lymestrategies@yahoogroups.com, "Kurt Rowley" <krowley@i...> wrote:
> Hi Fiona,
> Yes, for some reason the Borellia seems to aggravate every other problem
> we have in life.  It seems sometimes that you must fix everything a bit
> to solve anything.  My solution has been to work as hard as I can on the
> holistic picture.  In other words, solve everything I can, because then
> the ability to tolerate the die-off reaction increases as you solve
> other problems.  So start with the most obvious or logical problems
> first.  My pick would be the anxiety response.  There is an outstanding
> solution in the UK for this - see www.panic-anxiety.com
> <http://www.panic-anxiety.com/> .  I believe he also does consultations
> in the UK.  I purchased his materials and was able to get off of the
> anxiety medications.  It took a few months, and I added a few small
> items to his protocol, but it worked.  This made my life much easier,
> and I was better able to deal with the Borellia and the die-off, and
> other life isues. 
> 
> I think that you will find that Salt/C is a 'wonder drug' from Mother
> Nature.  More like a major deficit we all have, and when we fix it we
> start getting better. Salt/C will address a large number of the issues
> you mention, but not all of them.  You must do more than just Salt/C to
> get off all those meds.  If you haven't yet, you might look into super
> nutrients such as chlorella and spirulina.  Also, natural antibiotics
> such as colloid silver, olive leaf extract, oregano oil, and probiotics.
> SBOs are good, but you need more than that.  I actually use natural
> probiotics - fermented foods, and they work far better than any
> probiotic capsules I have every tried.  Also, if you have yeast/fungus
> issues there are some great natural products for that - Candex (which
> some people say is equivalent to Nystatin), Candidase (which I find even
> better than Candex) and Threelac (which works for my teens) are some my
> family has used successfully.
> 
> Incidentally, I have dealt with ADD all my life, and the Salt/C helps
> that tremendously.  I have no idea why, but for several hours after each
> dose I am able to focus as well or even better than I could before Lyme
> Disease.  I believe it has to do with how the Salt/C provides
> electrolytes, and maybe people with ADD or ADHD are not able to maintain
> proper electrolytes in the brain, but that is just a personal theory.
> Also, I find that Blue Green Algae is very helpful, and I am on the
> Feingold diet (www.feingold.org <http://www.feingold.org/> ) , which was
> a major improvement and helps ADD/ADHD in my children.  This is what I
> mean by trying to solve everything I can, and naturally, because I want
> to some day be healthy without the use of drugs, just using nature to
> slay this Lyme beast.
> 
> Anyway, welcome to the group! 
> --Kurt
> 
> -----Original Message-----
> From: Fiona [mailto:fwhite@o...]
> Sent: Monday, February 28, 2005 4:51 PM
> To: lymestrategies@yahoogroups.com
> Subject: [lymestrategies] Fiona - new to group
> 
>
> Hi
> Both myself aged 40 & my children aged 14 & nearly 18 were finally
> diagnosed with Borrelia last October. We have not actually started any
> protocol yet as I have IC & have been plagued with systemic yeast &
> bladder infections since trying out Samento & another antibiotic for
> my bladder infection (at the same time) in December. It will be March
> tomorrow & am no better with the yeats problem & now have a strep G
> infection in my bladder & took a terrible reaction to erythromicin
> which I was on to try & cure it. I will be seeing my GP tomorrow &
> will probably try penicillin instead for the strep. I had planned for
> all of us to go on the jardin protocol but as you can see I haven't
> even been able to get that off the ground.  I am not sure where the
> Borrelia came from but the live blood tests we had done with a top
> ME/Lyme specialist in the UK confirmed borreliosis. My white blood
> cells aren't working properly, my red blood cells looked 'furry' round
> the outside & in the middle & I have fibrin strands in th eblood. I
> have been so ill for so long wiht so many bizzare symptoms if it
> wasn't for my new GP I had been completely written off by the rest of
> them. I did get a diagnosis of FM at one point & ADHD. My son has had
> ADHD since about 8 months old he will be 18 next month & is still a
> handful - no help or medication there either. At least the GP believes
> the diagnosis & is willing to help. My daughter's symptoms are
> tiredness & worsening memory & concentration & hormonal (I was her age
> when my problems really kicked in). My son can't get to sleep either &
> then falls asleep in class. The difference between them is that my
> daughter does work hard at school whereas my son doesn't/won't/can't
> revise. He is always angry at home unless he has had a good time out
> with his friends, that is the only time he comes home cheerful.We
> should have all started the jardin protocol by now but it is me that
> is holding things up due to other complications, any advice?
> I am on Armour thyroid (as I don't absorb T3 & T4 properly)only
> discovered last year as well, DHEA,fish oils, vit C x 1000mg,
> prednisalone (for adrenals but it doesn't work), multivitamin &
> sleeping tablet. I am going to change to a more natural sleeping
> methods & have sent for some SBO's to try & put some good bacteria
> into the gut, they are expensive in the UK but postage from USA has
> gone up 4 times the price it was just over a year ago. That it why i
> am glad the GP prescribes armour & DHEA. My friend has mentioned the
> salt/vit C protocol but am not sure my bladder could stand such high
> doses of vit C. I tried a coffee enema to help detox but that just
> inflamed my bladder for the rest of the day, I may try something
> milder. I am on painkillers solpadol & tramadol & occasionally take
> diazepam but only one if I feel I am getting too panicky. I feel
> panicky all the time. I have had a lot of 'loss' in my life the past 2
> years & a house move which has all added to my stress & my parents are
> nto suppotive & are too wrapped up in themselves - they don't seem to
> even believe this illness. I had a hysterectomy in 2000 that went
> wrong & developed a bladder fistula which had to be repaired 6 weeks
> later - that was when my severe body pain & worsening brain fog kicked
> in & it worsened the IC. My cancer reading for my ovaries had been th
> eupper limit of normal then & everything is prolapsed - knowing what I
> know now I would never have gone through a hysterectomy. I really
> wanted everything pinned up. I do show toxic for metals as well. I
> don't know how I look after 2 children, 2 dogs, cat, 2 gerbils & a
> dwarf hamster!!!! I seem to attract a terrible run of bad luck as well
> & I mean really bad stuff not just the little things, but I muddle on
> as best I can after panicking about it. Mind you this panicky feeling
> is always there even when not worried. I also get cold sores so
> obviously have the mouth herpes virus. I used to sufer severe heavy
> painful periods that wen ton for a full week at a time & have always
> had 'hormonal' weight gain problems.
> What protocols are other people on & what health problems have you
> got? Any advice would be appreciated. I am especially interested in
> the salt/vitC & the jardin, anyone had success on these protocols? My
> daughter's jardin protocol has to be altered slightly due to her low
> weight & allergy to metrinidozole. I seem to be allergic to
> trimethroprim & erythromicin unless I have been herxing? If this
> weekend was herxing it was like dying!!! I am also on a small amount
> of MSM.
> Thanks Fiona
>
>
>
>
>
> The information anywhere on Lyme Strategies should not be considered
> complete, nor should it be relied on or interpreted to suggest a course
> of treatment for any individual.  It is research information only and it
> should not be used in place of a visit, call, consultation or the advice
> of your physician or other qualified health care provider.  Information
> obtained with regards to Lyme Strategies is research only on an ongoing
> basis for review and evaluation.  Any application or implementation of
> research information is considered at the members own risk.  The
> providers of the Lyme Strategies site are not medical physicians.
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The information anywhere on Lyme Strategies should not be considered complete, nor should it be relied on or interpreted to suggest a course of treatment for any individual.  It is research information only and it should not be used in place of a visit, call, consultation or the advice of your physician or other qualified health care provider.  Information obtained with regards to Lyme Strategies is research only on an ongoing basis for review and evaluation.  Any application or implementation of research information is considered at the members own risk.  The providers of the Lyme Strategies site are not medical physicians.  Should you have any health care-related questions, please call or see your physician or other qualified health care provider promptly.