I am so sorry you are having such a rough time of it now! I completely understand where you are coming from, though...

I was very sick as a child (starting around age 10), with headaches, stomachaches, "asthma"...the list goes on lol. My parents were also told that I was either "crying out for attention", "anxious", or going through "growing pains". I was formally diagnosed in April of 2010 at age 29, so I know how frustrating it is to live with an illness and have no real answers.

The GOOD news for you now, is that you HAVE the diagnosis, so now you can find a good nephrologist (since your kidneys are involved), a good rheumatologist (since it is lupus), and TRY to be a bit easier on yourself. Some days are going to be harder then others...and its ok to be ticked off about that. You have earned it ;-) Hopefully, after seeing some good docs, there will be more good days then "not so good days" :) Just know that we are here for you! :)

~Ivy~
ivylfa@...
Moderator of LupusTalkFlorida

--- In lupustalkflorida@yahoogroups.com, "thebadillofamily97" <thebadillofamily97@...> wrote:
>
> I have had pains my whole life. At 2 I told my mom that I was hurting and the doctors told her that I just wanted attn that I was lying. I mean who lies about something like that at 2? I had my 2nd child when they told me that I have chronic kidney disease and sent me to a kidney specialist who checked my ANA and told me that I have lupus. The lupus and kidneys may not even be from one other that I could just have both or that my hypertension could have caused the kidney disease. I'm lost and stressed about all of it. I hurt all over my body from head to toe. I used to just stay busy so I won't have time to feel the pain but now if i stay busy I hurt a lot more then before. I pushed myself to far on my sons birthday party and I slept until 2:35 the next day and still hurt wake up off and on that whole night. I have a very hard time taking care of my kids but I have to be strong for them but somedays I just stay in bed and cry and hurt.i have tried to find a support group close to my house but there's not one. Thanks.
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