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livingwithptc · Living with PTC (IIH, BIH)

Group Information

  • Members: 21
  • Category: Other
  • Founded: Aug 25, 2006
  • Language: English
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Description

This group has been created as a place where people with PTC (pseudotumor cerebri) can come and discuss the illness as well as provide others with support and information.

I will try to keep up with all of the latest reserach and post various links to any new information in the "Links" section.

Please be considerate of each other -- I want this to be a wonderful place for each of us to come and feel comfortable with posting our thoughts, aches, pains, joys, etc.

I am a PTC Survivor! I was diagnosed in November of 2003, but had been having severe symptoms since 1999. Each of us has a story. Please feel free to share yours!

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2011 1
2009 1 1
2008 13 6 18 4
2007 1 11 14 31 2 6
2006 17 44 116 22 13
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