The last week has been very hard. I have had an
average of two fevers a day at an average of 103
degrees.<br><br>The last full cat showed some more lymp nodes above
the kidneys. Though they are extermly small compared
to the other lympnodes the doctors diagnosed me at
stage 3b.<br><br>Its currently 2:00 am (another fever
and sweats) and I going into the hospital this
morning to have a cap put into my shoulder. The doctor
will administer the chemo through the cap. I have very
large lympnode masses under my right arm and they do
not want to put an IV into the right arm. The surgen
will put me under for this prcedure and when I awake I
will get my first treatment.<br><br>They are
subscribing 4 cycles of ABVD, at the end of which I will get
radiation.<br><br>I have a question for you. How often does your
doctor recheck for Hodgkins and what type of test does
he preform? Also how long is he wanting to keep
checking?<br><br>Thanks for the response.

was diagnosed stage 2B, and did radiation
before chemo. The hope was that radiation alone would do
the trick. By the time I finished radiation, my doc
was 95% sure I was set. It was the 5% left over that
sent me to 6-months of chemo (ABVD)<br><br>Two years
later, I am health, happy and everything looks good. Do
yourself a favor, read up on Hodgkins as well as the type
of chemo your are going to receive. The worst thing
is the unexpected. Just remember, 1b is early, and
the stuff they are going to give you will
work.<br><br>Good luck.

i,<br><br>I've been diagnosed with Hodgkin's. I
wanted to know which of the 4 types were you first
diagnosed with and what stage were you at. I am very
concerned of recurrance after treatment.<br><br>Thank you

i,<br>I was diagnosed with HD on May 26, 1999. I
meet with an Oncologist today, and he believes that I
am at stage 1b Nodular sclerosis Hodgkin's. I have
the some final test next week to verify the actual
stage. My doctor believes that chemo will be the best
treatment at this time. I really not sure what to think
about any of it right now. If you get any information
that you would like to share please do.<br>Thanks

i. I was diagnosed in July of 1996, and went
through the full course of treatment with radiation and
chemo. I finished my last treatment 2 years ago this
month.<br><br>If you want to get some general information on what
to expect, or if you have some questions, feel free
to e-mail me.

i. I'm so glad I found this group.  I was just diagnosed with HD and I would
like to talk with other people who have or have had it so that I can get an idea
of what to expect.

i I'm new to this club ,my name is Yana even
though I don't have HD A lot of my family does my great
aunt died from leukemia on my 11 birthday when I found
out from what I was terriffied . Right now I am
hoping to be a cancer specilist if you you have any
stories you'de like to share with me please do that I 'm
going to setup a fund for cancer patients .

have recently started a Hodgkin's support group
here on yahoo. We have over 150 members on our
listserv mailings are expanding into the yahoo site. We
welcome new members. Also I personally am from a family
with extremely high incidence of Thyroid Cancer, and
will be will to help on that subject as well.

ai ..anyone knows what is Papillary carcinoma of <br>   thyriod.? can this
dissease  be cure ?

lease suggest a bi-weekly chat time -- Wed. at 8pm CT????

i. I've just find you club, and wish I could
have found it sooner. I had HD in 1991 found out one
month after I graduated from high school. Took eight
weeks of radation and they (we all know who THEY are)
said you fine. Six years ,and two children later,
started having night-sweats. Had six months of chemo and
seven weeks of radation. Have my first follow-up on
Wednesday the 24. Please e-mail me. Would love to share
expercience with other patients.

lease check out my mini-BMT. it could
help<br>anyone scared of this simple but
challenging<br>proceudure. click on my name and the web page <br>listed in
my profile --- some nice shots!!!!a
mini-bone-marrow-transplant (unrelated donor)<br>2 weeks ago at MD Anderson,
U of Texas Cancer Center. for Hodgkin's, clinicical
trial--more commone for Leukemia.

am a 33 year old guy who was diagnosed stage 2b
in July of 1996. I did radiation first, then chemo.
The hope was that radiation alone would be enough.
After five weeks of radiation, five days a week, my doc
was 95% sure I was ok, and didn't need any chemo.
<br><br>I didn't want to settle for 95%, and did 6 months
of ABVD. Now, so far, every thing is ok for
me.<br><br>As for you, in my opinion, radiation will be a piece
of cake compared to chemo. The radiation, at first,
started out like no big deal. I had a funny taste in my
mouth, and eventually developed a sore throat and some
burns on my skin. All of this healed. During the last
two weeks, and for a couple of weeks after, I had a
tough time eating some things and my throat was very
sore, but compared to how lousy I felt with the chemo,
it doesn't seem nearly as bad.<br><br>Good luck and
keep me posted.

can't remember what drugs I had with my first
round of chemo. Didn't pay attention. Didnt really want
to know to tell you the truth. I had 12 treatments
over 6 months. I responded very well, or so we
thought. I was also stage 4.<br><br>4 months after my
treatments ended we found another swollen node. it showed to
be HD. but just i the one spot in my neck, a little
area that was hiding from us.<br><br>I then had a stem
cell transplant, then radiation.<br><br>so far so
good....cross my fingers and knock on wood... this time it
worked.

ello,<br><br>I'm a 20 year old hodgkin 4B
patient and i would like to know if any of you have any
information or expierience on the subject. I have had 6
Mopp/ABV<br>treatments, but I didn't respond too wel. please tell me
anything you know

lease contact me with regular club meetings<br><br>my yahoo! will track the club
for you--<br>say when people are chatting, and if a message<br>was posted.

ctually i'm not on any antibiotics at all. I was
wondering if I had a little bug or something. The aching is
going away a little and feeling better. Who knows. I
guess my body has gone through so much that you never
know what may happen!

had a stem cell transplant. I didn't notice any
aching, except the normal stuff when I get a cold or the
flu. Are you on any longterm
antibiotics?<br><br>Dave<br>www.davesite.com/hodgkins/<br>Dave's Happy Little
Hodgkins Site

ey guy if you see this I respond to you at your yahoo address hope everything is
going ok give me an update if you can ajoysheene

e a little suspicios of the itchy skin... as for
the aching joints I have experienced that What kind
of chemo did you get??? some of these symptoms are
direct to a specific drug and will be chronic....why
arent you getting super follow ups are you in an HMO or
something??? write me direct if you want to know
more<br>ajoysheene@yahoo (PS I had relapse after stem cell) Ive been
dealing with HD for 9 years plus

hat makes me feel a little better about the
itching:) I kind of feel like i've been left in the dark by
my dr's and nurses. NO one every really took the
time to explain what to expect next. When I asked the
oncologist if the itching is normal after treatment, he said
"not really". sooo.. NOw i'm experiencing some joint
aching and pain. Also some things I heard are sometimes
long term side affects.<br><br>Have you had that
problem????<br><br>Rachell

did not have nearly the experience you did, but
I learned and read an awful lot about treatment,
side-effects and what to expect down the road.<br><br>I had a
problem with itchy skin and sensitive areas for a while
after I was treated. Now, 1 1/2 years after chemo and
radiation, all of the skin problems are pretty much cleared
up and I am back to normal.<br><br>Let me know if
you want to talk.

elllloooooo. Anyone around???

i, I was diagnosed with HD in August of '97
after 9 months of symptoms that were dismissed and
passed off as caused by being pregnant. My daughter was
2 months old when I was diagnosed. I'm not sure
what stage i was at, no one really told me, I'm
assuming 4. I had a mass in my chest, tumor in my liver
and spleen, swollen lymphs in my back that caused the
deterioration of my vertebra.<br><br>I had 6 months of
chemotherapy, was declaired in remission in February of '98. By
May I knew something wasn't quite right. We found a
swollen lymph in my neck. luckily it was the only place
it resurfaced. I started the process for a stem cell
transplant which I had in August of '98. I then had 3 weeks
of radiation in December as just a extra "zap". As
of last week my CT scan shows all is
well.<br><br>I've been having some itching and we were concerned,
but no other symptoms seem to be showing. A little
tired, but I have a 2 yr old to chase
around!<br><br>Would like to ask questions of anyone who has had a
stem cell or bone marrow transplant. I recently
started having some achiness in my joints... Wondering if
this is something common or not.<br><br>I feel like
after my treatment I was just kind of turned loose
without being told what to expect next. <br><br>I would
appreciate any help!

completed treatment 1 1/2 years ago.  What should I expect?

i just to let you know i have emailed you directly so you can check out my
message there - thankyou for replying to my message - i greatly appreciate
it.<br>Shane

i as you can see I joined today.. Ive been
through a lot.. First thing need to know is what did they
stage you at and what is recommended treatment. You may
e mail me direct, add me to your yahoo pager if you
want and we can try to chat (ajoysheene) I am usually
on 2-3 nights a week anywhere between 9-11pm EST
Goodluck

have had hodgkins for over 9 years now... with
recurrances. I have had operations, ABVD,radiation, Mopp, An
auto stem cell bone marrow transplant,... Eshap.. you
name it Ive done<br>I am willing to share my
experiences with any or all treatments... Would like some
support myself<br>I've just begun to experience B
symptoms looks like I am coming out of my previous one
year remission status....

ey there - i am a recently diagnosed Hodgkins patient - home from a biopsy
today!!. Im not sure what happens next and am a little scared .. any advice -
how much is all this gonna hurt ??