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#30 From: "snowhite6503" <gentsandgems@...>
Date: Tue Jun 26, 2007 8:38 pm
Subject: ABC/Nightline Tuesday night
snowhite6503
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I do not know if this will be a positive peice or not but thought I
would share with you!






ABC called me this afternoon to say that the Autism piece would air
tonight...Tuesday night.
They were going to send  me a mail-out but I don't want to wait any
longer to send this out.
Nancy

#29 From: "strongest_lady" <strongest_lady@...>
Date: Tue Jun 26, 2007 5:48 pm
Subject: Thought this ebook would be helpful to some! :0)
strongest_lady
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Hey There All you mom's I am sorry I havent posted much, Been pretty
busy with my sites along with packing and moving!
I wanted to share this with you all!
I will have this link posted on my site if anyone needs it or if this
gets lost!

Here is the link to this free ebook about Autism, You can save it and
forward it on to all you know. It may be just what someone needs!

ftp://ftp.nlconcepts.com/download/autismdx.pdf

Hope this helps you guys out. It is pretty basic but helpful.

Smiles! :0)
Amber
Mom to 3
Founder
www.theautismsociety.com
www.letsexposeautismnow.com
Advocate Mom for Autism

#28 From: "talk4ariel" <talk4ariel@...>
Date: Tue Jun 26, 2007 4:30 am
Subject: Who is your DAN doctor??
talk4ariel
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I would love to hear all about who everyone is seeing.  Ariel has been
seeing Dr. Michael Brown at Physicians Choice natural medicine and
clinic in Lenexa Kanasas for almost 4 years now.  He also does phone
consults and workshops in St Louis.

I love this guy.  He always listens, and treats me (parent) like they
are the most important part of his patients(kids) treatment.

Before I started seeing Dr. Brown, I saw another Dan doc in the st.
louis area, but I would not recommend him to anyone.  I learned that
not all DAN docs are created equal.

Best of Luck to all of you out there seeking treatment for your child!
Will post more info on Ariels chelation next time I get a few minutes
freetime! :)

Jennifer K
Mom to Ariel & Ben
Lincoln, Illinois

#27 From: "marymgoodm" <mudbug1963@...>
Date: Tue Jun 26, 2007 3:30 am
Subject: Re: My chicken nugget receipe
marymgoodm
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Jennifer

Thanks so much for the recipe can't wait to try it.

Mary


--- In letsbeatautismnow@yahoogroups.com, "talk4ariel" <talk4ariel@...> wrote:
>
> What you will need:
>
> 1 large boneless chicken breast
> Ener-G egg replacer equal to 1 egg(if egg is no problem, use one)
> 1/4 cup Nu-world amaranth bread crumbs*
> 1/4 cup water chesnut flour*
> Garlic powder
> Sea salt
> Parsley flakes (optional)
> Expeller pressed safflower oil
>
> Heat deep fryer to frying temp.  Thaw and cut chicken into desired
> nugget shapes.  In a small bowl, Wisp egg replacer until frothy.  In
> another bowl, mix flour and bread crumbs, season to taste with Garlic
> powder, parsley flakes and sea salt.
> Dip nuggets into egg, then flour mixture, then drop into deep fryer.
> They are ready when golden brown, and float.
>
> *Nu world foods can be ordered at www.nuworldfoods.com, or at
> 1-877-NWA-8899.
>
> *Chesnut flour can be found at your local oriental market.
>

#26 From: "talk4ariel" <talk4ariel@...>
Date: Tue Jun 26, 2007 2:14 am
Subject: My chicken nugget receipe
talk4ariel
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What you will need:

1 large boneless chicken breast
Ener-G egg replacer equal to 1 egg(if egg is no problem, use one)
1/4 cup Nu-world amaranth bread crumbs*
1/4 cup water chesnut flour*
Garlic powder
Sea salt
Parsley flakes (optional)
Expeller pressed safflower oil

Heat deep fryer to frying temp.  Thaw and cut chicken into desired
nugget shapes.  In a small bowl, Wisp egg replacer until frothy.  In
another bowl, mix flour and bread crumbs, season to taste with Garlic
powder, parsley flakes and sea salt.
Dip nuggets into egg, then flour mixture, then drop into deep fryer.
They are ready when golden brown, and float.

*Nu world foods can be ordered at www.nuworldfoods.com, or at
1-877-NWA-8899.

*Chesnut flour can be found at your local oriental market.

#25 From: "marymgoodm" <mudbug1963@...>
Date: Tue Jun 26, 2007 1:48 am
Subject: Re: Getting to Know you
marymgoodm
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Tammy Lynne

  Good Luck with your appt tomorrow!!!
I have some families that are in a group here with me that take their kids to a
DAN Dr .
They have to go to Oregon. Dr Green.

I am looking into Dr Amy Yasko. She is all internet and phone consultations.
They send
you all the test stuff you need and then send it back.  It expensieve but what
is not with
autism. Our Kids are so worth every cent!!!!

I have ordered some of the powdered supplements from Kirkland. I think I will
have better
luck with the unflavored powder. The stuff I have is flavored.
He does not like it at all.  He takes one sip and shakes his head.

Take Care,
Mary



--- In letsbeatautismnow@yahoogroups.com, "snowhite6503" <gentsandgems@...>
wrote:
>
> Hey Mary! Welcome to the group hon! Can I say that I HATE your doctor
> as well???  LOL!  ARRRGH! Those kinds of doctors just get under my
> skin!!!
>
> We just got a DAN doctor here in WV and I about went into shock when
> I found out that she takes medicaid!!! We have our first appoinment
> with her tomorrow!  WOOHOO!!!
>
> We have been following the DAN protocol though for about a year now!
> Matthew Cody is on about 12 supplements and started the diet about 2
> months ago. We gave up ALL food dyes last fall! That is a really
> tricky one thoug beause there is food dye in items you would have
> never thought to check!!!!
>
> Are the supplements that you are taking flavored??? If so than maybe
> it is the flavor that your son is tasting and not the texture. What
> kind of drink are you putting it in?
>
> We use potato milk and EVERYTHING we use is hypoallergenic so there
> is NO flavor! I use one scoop of Nestle's in his sippy cup and I
> shake like heck!!!  LOL!!! At lunch time we have 4 different
> supplements in there and every once in a while he will not want to
> drink it but for the most part he does not fight it too much. His
> morning "cocktail" (as I call it, is all he gets in the morning! No
> breakfast or anything else until that first sippy cup is emptied!  :)
>
>
> Glad to have you here and Let's B.A.N.!!!
>
>
>
> HUGS!
> Tammy Lynne
>
>
>
>
>
>
>
> --- In letsbeatautismnow@yahoogroups.com, "marymgoodm"
> <mudbug1963@> wrote:
> >
> > Hi
> > My name is Mary I am the proud Mom of three Kids. Two boys 6 1/2
> and 4 and a almost 2
> > year old girl.
> > My 4 year old son has autism. He was diagnosised with PDD in Aug of
> last year. They
> > changed his diagnosis at his six month  check in March to autism.
> > We started noticing early something was up. We had to wait six
> months to get into the Dr.
> > She is a devlopmental Peds Dr and can I say I HATE her. She does
> not think shots causes
> > austim and she does not think diet does anything!!! I just sit and
> listen while she makes
> > me feel like an idoit. The ONLY reason I take him there is to get
> the Diagnosis I wanted.
> > We don't have any DAN Drs in our area.
> > I am in the process of starting the diet bought some books and
> buying products.
> > I have been trying to get him to take supplements. Awaken
> Nutritions liquid vitiamin and
> > mineral.
> > If he sees me put it in he will not drink it. Then when he does not
> see me he can taste it.
> > HELP!!! any suggestions???
> > I have been so overwhelmed with the whole process there is so much
> to read and no time
> > to read it.
> > He is in a special needs pre school program which he made get gains
> this year. Is going
> > two days a week starting tomorrow. through the end of July.
> >
> > Has any one  heard of Dr Amy Yasko?? A mother in a group I go to
> does her stuff and her
> > son has done really well with her program.
> >
> > ANY suggestions would be MUCH appreciated.
> >
> > Have A Great Day!
> > Mary
> >
>

#24 From: "snowhite6503" <gentsandgems@...>
Date: Tue Jun 26, 2007 1:47 am
Subject: Re: Suggestions Please
snowhite6503
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Hya hon!Cars as a reward is an awesome idea too!!!

We use the potato milk too and I think it tastes awesome! We are not
all drinking it yet though as it is so expensive! But with the prize
of milk rising, it won't be long until it is cheaper!  :)

There are conflicting reports on soy. My best advise would be to see
if you notice any changes in him within 5 days of having the soy
product.  :)

BUT....the cheese on the pizza is a big no-no!  :(  Sorry, I was
doing the same thing! I thought taking some away was better than
nothing! But I talked with a DAN doctor in VA and she explained it
this way.....if you do not try the diet 110% than the supplements are
not going to be able to work as effectively because most of these
kids have leaky gut issues. However, I do think that weaning off is a
very good way to do it! I went cold turkey so I could make myself
stay with it all the way!  LOL!

I have recipes I will share in the next day or two! I am filling out
the 28 page book that I have to take to the DAN doctor tomorrow!
First visit...you know she wants to know it all!  LOL!


HUGS!


--- In letsbeatautismnow@yahoogroups.com, "marymgoodm"
<mudbug1963@...> wrote:
>
> Thanks Michelle and Tammy Lynne
>
> I am using cars as a reward cause that is what he loves. I didn't
show him any cause if he
> sees it I know he will freak cause I won't let him have it.
> I will try first thing in the morning the every 15 minute trick and
go from there. Hopefully
> it will start working.
> I know I should be patient. that has been something I have had to
work on. I don't like to
> sit. I just think about all the other things I need to do. I think
I will try to do my two year
> old at the same time. She has been sitting in with us.
>
> I made my first GF cookie today. It was from a mix. He would not
eat it. I bought all GF
> snacks today. I know this is something I must try but I am not
looking forward to it.
> My whole family has to do it cause  Cooper will not understand when
I tell him he can't
> have something the other kids are eating.
> I cut most of his diary a whole back. Is on potato milk. I get it
from Vances foods. It is
> awesome. The whole family drinks it now. They also have chocolate.
It tastes the same as
> regular.
>   Is it ok for them to have soy cheese. I heard somewhere where
they shouldn't have soy
> either. He loves cheese pizza. That has been the only dairy he had.
> I need recipes if anyone would like to share.
>
> Mary
>
>
>
>
>
>
>
>
> --- In letsbeatautismnow@yahoogroups.com, "michelle" <ashaver@>
wrote:
> >
> > Hey Mary!!
> >
> > I was just like you hun!! When I started potty training John
Micheal,
> > he was 3ish.. but he had a brother who was still in diapers
also! ..
> > what they taught us at his ABA school was -- every 15 minutes
take
> > him into the potty and have him sit there---- yes, he did not
like it
> > at all but -- I set timers and tried to make it happen.... during
the
> > day I used underwear-- yes--lots of accidents-- and at night we
used
> > the pullups.
> >
> > I used the m&m method..lol.... after the sitting in there for 10
> > mins. -- i would make a big deal -- clapping and acting silly
cause
> > he did it-- then he got 5 M & M's!  Now it took a long while but
by 5
> > and a half-- fully trained!!! He is now 8-- and signs for the
potty
> > like no tomm.!!
> >
> > Good luck!!--lots of patience- had to keep telling myself that!
> > Michelle Shaver
> >
> >
> >
> >
> > --- In letsbeatautismnow@yahoogroups.com, "marymgoodm"
> > <mudbug1963@> wrote:
> > >
> > > OK I am trying to Potty Train.
> > > I bought the PECS book, and rewards.
> > > I just sat with him I know an hour playing, singing, reading
him
> > the book. Had to feed my
> > > daughter put a diaper on him and instant Pee.
> > > I have had him pee in the potty first thing in the morning a
few
> > times now.
> > > I just need suggestions of what you have used or done.
> > >
> > > Thanks,
> > > Mary
> > >
> >
>

#23 From: "marymgoodm" <mudbug1963@...>
Date: Tue Jun 26, 2007 1:35 am
Subject: Re: Getting to Know you
marymgoodm
Offline Offline
Send Email Send Email
 
--- In letsbeatautismnow@yahoogroups.com, "snowhite6503" <gentsandgems@...>
wrote:
>
> Hey Mary! Welcome to the group hon! Can I say that I HATE your doctor
> as well???  LOL!  ARRRGH! Those kinds of doctors just get under my
> skin!!!
>
> We just got a DAN doctor here in WV and I about went into shock when
> I found out that she takes medicaid!!! We have our first appoinment
> with her tomorrow!  WOOHOO!!!
>
> We have been following the DAN protocol though for about a year now!
> Matthew Cody is on about 12 supplements and started the diet about 2
> months ago. We gave up ALL food dyes last fall! That is a really
> tricky one thoug beause there is food dye in items you would have
> never thought to check!!!!
>
> Are the supplements that you are taking flavored??? If so than maybe
> it is the flavor that your son is tasting and not the texture. What
> kind of drink are you putting it in?
>
> We use potato milk and EVERYTHING we use is hypoallergenic so there
> is NO flavor! I use one scoop of Nestle's in his sippy cup and I
> shake like heck!!!  LOL!!! At lunch time we have 4 different
> supplements in there and every once in a while he will not want to
> drink it but for the most part he does not fight it too much. His
> morning "cocktail" (as I call it, is all he gets in the morning! No
> breakfast or anything else until that first sippy cup is emptied!  :)
>
>
> Glad to have you here and Let's B.A.N.!!!
>
>
>
> HUGS!
> Tammy Lynne
>
>
>
>
>
>
>
> --- In letsbeatautismnow@yahoogroups.com, "marymgoodm"
> <mudbug1963@> wrote:
> >
> > Hi
> > My name is Mary I am the proud Mom of three Kids. Two boys 6 1/2
> and 4 and a almost 2
> > year old girl.
> > My 4 year old son has autism. He was diagnosised with PDD in Aug of
> last year. They
> > changed his diagnosis at his six month  check in March to autism.
> > We started noticing early something was up. We had to wait six
> months to get into the Dr.
> > She is a devlopmental Peds Dr and can I say I HATE her. She does
> not think shots causes
> > austim and she does not think diet does anything!!! I just sit and
> listen while she makes
> > me feel like an idoit. The ONLY reason I take him there is to get
> the Diagnosis I wanted.
> > We don't have any DAN Drs in our area.
> > I am in the process of starting the diet bought some books and
> buying products.
> > I have been trying to get him to take supplements. Awaken
> Nutritions liquid vitiamin and
> > mineral.
> > If he sees me put it in he will not drink it. Then when he does not
> see me he can taste it.
> > HELP!!! any suggestions???
> > I have been so overwhelmed with the whole process there is so much
> to read and no time
> > to read it.
> > He is in a special needs pre school program which he made get gains
> this year. Is going
> > two days a week starting tomorrow. through the end of July.
> >
> > Has any one  heard of Dr Amy Yasko?? A mother in a group I go to
> does her stuff and her
> > son has done really well with her program.
> >
> > ANY suggestions would be MUCH appreciated.
> >
> > Have A Great Day!
> > Mary
> >
>

#22 From: "marymgoodm" <mudbug1963@...>
Date: Tue Jun 26, 2007 1:34 am
Subject: Re: Suggestions Please
marymgoodm
Offline Offline
Send Email Send Email
 
Thanks Michelle and Tammy Lynne

I am using cars as a reward cause that is what he loves. I didn't show him any
cause if he
sees it I know he will freak cause I won't let him have it.
I will try first thing in the morning the every 15 minute trick and go from
there. Hopefully
it will start working.
I know I should be patient. that has been something I have had to work on. I
don't like to
sit. I just think about all the other things I need to do. I think I will try to
do my two year
old at the same time. She has been sitting in with us.

I made my first GF cookie today. It was from a mix. He would not eat it. I
bought all GF
snacks today. I know this is something I must try but I am not looking forward
to it.
My whole family has to do it cause  Cooper will not understand when I tell him
he can't
have something the other kids are eating.
I cut most of his diary a whole back. Is on potato milk. I get it from Vances
foods. It is
awesome. The whole family drinks it now. They also have chocolate. It tastes the
same as
regular.
   Is it ok for them to have soy cheese. I heard somewhere where they shouldn't
have soy
either. He loves cheese pizza. That has been the only dairy he had.
I need recipes if anyone would like to share.

Mary








--- In letsbeatautismnow@yahoogroups.com, "michelle" <ashaver@...> wrote:
>
> Hey Mary!!
>
> I was just like you hun!! When I started potty training John Micheal,
> he was 3ish.. but he had a brother who was still in diapers also! ..
> what they taught us at his ABA school was -- every 15 minutes take
> him into the potty and have him sit there---- yes, he did not like it
> at all but -- I set timers and tried to make it happen.... during the
> day I used underwear-- yes--lots of accidents-- and at night we used
> the pullups.
>
> I used the m&m method..lol.... after the sitting in there for 10
> mins. -- i would make a big deal -- clapping and acting silly cause
> he did it-- then he got 5 M & M's!  Now it took a long while but by 5
> and a half-- fully trained!!! He is now 8-- and signs for the potty
> like no tomm.!!
>
> Good luck!!--lots of patience- had to keep telling myself that!
> Michelle Shaver
>
>
>
>
> --- In letsbeatautismnow@yahoogroups.com, "marymgoodm"
> <mudbug1963@> wrote:
> >
> > OK I am trying to Potty Train.
> > I bought the PECS book, and rewards.
> > I just sat with him I know an hour playing, singing, reading him
> the book. Had to feed my
> > daughter put a diaper on him and instant Pee.
> > I have had him pee in the potty first thing in the morning a few
> times now.
> > I just need suggestions of what you have used or done.
> >
> > Thanks,
> > Mary
> >
>

#21 From: "snowhite6503" <gentsandgems@...>
Date: Tue Jun 26, 2007 1:11 am
Subject: Re: Suggestions Please
snowhite6503
Offline Offline
Send Email Send Email
 
That is SOOO not fair Michelle!!! You get to use M&M's!!!! LOL!!!

We cut all the food dyes out last fall and I have been strict on that
one. So M&M's are out for us!

However, you have given me an idea!!! I bought GF/CF chocolate chips
from Kirkman and they are awesome!!! I could use those as treats in
place of the M&M's!!!




Thanks for sharing! At least Mary is going down the same river with
me! I am NOT alone!!!  ;)




HUGS!
Tammy Lynne








--- In letsbeatautismnow@yahoogroups.com, "michelle" <ashaver@...>
wrote:
>
> Hey Mary!!
>
> I was just like you hun!! When I started potty training John
Micheal,
> he was 3ish.. but he had a brother who was still in diapers
also! ..
> what they taught us at his ABA school was -- every 15 minutes take
> him into the potty and have him sit there---- yes, he did not like
it
> at all but -- I set timers and tried to make it happen.... during
the
> day I used underwear-- yes--lots of accidents-- and at night we
used
> the pullups.
>
> I used the m&m method..lol.... after the sitting in there for 10
> mins. -- i would make a big deal -- clapping and acting silly cause
> he did it-- then he got 5 M & M's!  Now it took a long while but by
5
> and a half-- fully trained!!! He is now 8-- and signs for the potty
> like no tomm.!!
>
> Good luck!!--lots of patience- had to keep telling myself that!
> Michelle Shaver
>
>
>
>
> --- In letsbeatautismnow@yahoogroups.com, "marymgoodm"
> <mudbug1963@> wrote:
> >
> > OK I am trying to Potty Train.
> > I bought the PECS book, and rewards.
> > I just sat with him I know an hour playing, singing, reading him
> the book. Had to feed my
> > daughter put a diaper on him and instant Pee.
> > I have had him pee in the potty first thing in the morning a few
> times now.
> > I just need suggestions of what you have used or done.
> >
> > Thanks,
> > Mary
> >
>

#20 From: "snowhite6503" <gentsandgems@...>
Date: Tue Jun 26, 2007 1:09 am
Subject: Re: Suggestions Please
snowhite6503
Offline Offline
Send Email Send Email
 
I am no help on this one!  :(  I am fighting that battle as well!  :(


Good luck hon and if I run across any late breaking ideas, I will
post them for us!  :)



HUGS!

Tammy Lynne


--- In letsbeatautismnow@yahoogroups.com, "marymgoodm"
<mudbug1963@...> wrote:
>
> OK I am trying to Potty Train.
> I bought the PECS book, and rewards.
> I just sat with him I know an hour playing, singing, reading him
the book. Had to feed my
> daughter put a diaper on him and instant Pee.
> I have had him pee in the potty first thing in the morning a few
times now.
> I just need suggestions of what you have used or done.
>
> Thanks,
> Mary
>

#19 From: "snowhite6503" <gentsandgems@...>
Date: Tue Jun 26, 2007 1:07 am
Subject: Re: Getting to know you!!!!
snowhite6503
Offline Offline
Send Email Send Email
 
--- In letsbeatautismnow@yahoogroups.com, "michelle" <ashaver@...>
wrote:
>
Hey girl! I want to start the ABA myself! Just waiting to see what
insurance covers of it! Also, I have been doing a bit of ABA and a
bit more of the Floortime Techique.

Our diet worked great for us! The past week we have been having bouts
of diarrhea though. I have tried to replay what in my brain that
could be causing it and I think I figured it out and plan to fix
it!  :)  The diet took away all the gassiness at night and that was
such a relief! Though I am hoping that in the future that we can eat
regular food....even if it means we have to take enzymes!  :)  Thanks
for sharing that John Michael is now on regular food! That leaves
hope for us!  :)

Now girl....you have never heard of DAN??? It stands for Defeat
Autism Now doctors!!! They are the bomb!  LOL!  And that is how I
came up with my site name by using initials like they did!  :)  I
actually started the site last year but took until this year to get
it going!  LOL!

Anywho, you have 12 doctors in your state!!!  WOOHOO! That is
awesome! Here is the link to check for doctors in each state...

http://www.autismwebsite.com/ari-lists/danus.html

Just do a search on DAN for more info. Here is a link for a brief
description of what they do!  :)

http://www.autismwebsite.com/ari/dan/whatisdan.htm


HUGS!
Tammy Lynne


> Hey my fellow B.A.D. mamma!!!
>
> John Micheal has had ABA which worked wonders-- we came soo far
with
> that!! We tried the GFCF diet but he was a zombie! But after having
> ABA then starting regular school along with the ABA-- he is now
> eating regular foods.... no more of just all diary or all yellow,
> etc..lol!!
>
> I really hate to sound dumb but what is DAN??? If it is something
> that might help further- you know I am all for it!!
>
> Much love to you all!!
> Michelle- B.A.D. Mamma of North Carolina
>
>
>
>
> --- In letsbeatautismnow@yahoogroups.com, "snowhite6503"
> <gentsandgems@> wrote:
> >
> > Hya Michelle! Wow girl! Your story sounds like so many thousands
of
> > others!!! After the "shots" everything was lost!!! It is like
> looking
> > at a different child, huh? Matthew Cody's "before and after" pics
> are
> > astonishing!!! You can just look at the pics and tell that
> something
> > bad happened after his shots!!! ARRRGH!!!
> >
> >
> > What forms of therapy and treament have you tied so far?
> >
> > I am soo glad you joined the group! We are B.A.D. mommas and we
are
> > going to B.A.N.!!!!
> >
> >
> >
> > HUGS!!!!!
> >
> >
> >
> > --- In letsbeatautismnow@yahoogroups.com, "michelle" <ashaver@>
> > wrote:
> > >
> > > Hi everybody!!!  I am Michelle, a proud mom to two boys, John
> > > Micheal, 8 and Caleb who is 6!  John Micheal has what they call
> > > Pierre robin Syndrome- PRS .. which is a rare disorder that
> effect
> > a
> > > lot of different things. He has had a small jaw, three cleft
> palate
> > > surgeries, two jaw breaking surgeries, and has had a trach
since
> 21
> > > days old. Mind you with all of this, he still made leaps and
> bounds
> > > as a baby- he all these surgeries from age 2i weeks to 3years
> old.
> > > But--- i got his 2 year shots and he was "gone" so to speak
> within
> > 4
> > > weeks. he stopped smiling, laughing, playing, didnt want any
love
> > > from us, etc.
> > >
> > > He was diagnosed with mild to moderate Autism at 4. We put him
in
> a
> > > ABA school with one teacher in the am then one teacher in the
> pm...
> > > they do not change teachers- your child has the same teachers
> till
> > > they leave school!!  That school was a blessing! When we took
him
> > > there- he was head bangging, rocking all the time, walking on
his
> > tip
> > > toes, etc. Now, he is in a regular school, in a 4th grade
class,
> > with
> > > an aide, has over 3,000 signs, and is starting to speak!!
> > >
> > > I was blessed to have met Tammy through B.A.D. on myspace and
we
> > have
> > > been friends every since!!!!
> > >
> > > I am also a proud Army wife to a Special Forces medic-- who is
> > never
> > > home..lol... which takes a toll on John Micheal!
> > >
> > > Ok, I have yapped enough!! looking forward to meeting you all!!
> > > Thanks Tammy!!
> > >
> > > Michelle Shaver
> > > www.myspace.com/draimanwoman
> > >
> >
>

#18 From: "michelle" <ashaver@...>
Date: Tue Jun 26, 2007 12:10 am
Subject: Re: Suggestions Please
liltartus
Offline Offline
Send Email Send Email
 
Hey Mary!!

I was just like you hun!! When I started potty training John Micheal,
he was 3ish.. but he had a brother who was still in diapers also! ..
what they taught us at his ABA school was -- every 15 minutes take
him into the potty and have him sit there---- yes, he did not like it
at all but -- I set timers and tried to make it happen.... during the
day I used underwear-- yes--lots of accidents-- and at night we used
the pullups.

I used the m&m method..lol.... after the sitting in there for 10
mins. -- i would make a big deal -- clapping and acting silly cause
he did it-- then he got 5 M & M's!  Now it took a long while but by 5
and a half-- fully trained!!! He is now 8-- and signs for the potty
like no tomm.!!

Good luck!!--lots of patience- had to keep telling myself that!
Michelle Shaver




--- In letsbeatautismnow@yahoogroups.com, "marymgoodm"
<mudbug1963@...> wrote:
>
> OK I am trying to Potty Train.
> I bought the PECS book, and rewards.
> I just sat with him I know an hour playing, singing, reading him
the book. Had to feed my
> daughter put a diaper on him and instant Pee.
> I have had him pee in the potty first thing in the morning a few
times now.
> I just need suggestions of what you have used or done.
>
> Thanks,
> Mary
>

#17 From: "michelle" <ashaver@...>
Date: Tue Jun 26, 2007 12:05 am
Subject: Re: Getting to know you!!!!
liltartus
Offline Offline
Send Email Send Email
 
Hey my fellow B.A.D. mamma!!!

John Micheal has had ABA which worked wonders-- we came soo far with
that!! We tried the GFCF diet but he was a zombie! But after having
ABA then starting regular school along with the ABA-- he is now
eating regular foods.... no more of just all diary or all yellow,
etc..lol!!

I really hate to sound dumb but what is DAN??? If it is something
that might help further- you know I am all for it!!

Much love to you all!!
Michelle- B.A.D. Mamma of North Carolina




--- In letsbeatautismnow@yahoogroups.com, "snowhite6503"
<gentsandgems@...> wrote:
>
> Hya Michelle! Wow girl! Your story sounds like so many thousands of
> others!!! After the "shots" everything was lost!!! It is like
looking
> at a different child, huh? Matthew Cody's "before and after" pics
are
> astonishing!!! You can just look at the pics and tell that
something
> bad happened after his shots!!! ARRRGH!!!
>
>
> What forms of therapy and treament have you tied so far?
>
> I am soo glad you joined the group! We are B.A.D. mommas and we are
> going to B.A.N.!!!!
>
>
>
> HUGS!!!!!
>
>
>
> --- In letsbeatautismnow@yahoogroups.com, "michelle" <ashaver@>
> wrote:
> >
> > Hi everybody!!!  I am Michelle, a proud mom to two boys, John
> > Micheal, 8 and Caleb who is 6!  John Micheal has what they call
> > Pierre robin Syndrome- PRS .. which is a rare disorder that
effect
> a
> > lot of different things. He has had a small jaw, three cleft
palate
> > surgeries, two jaw breaking surgeries, and has had a trach since
21
> > days old. Mind you with all of this, he still made leaps and
bounds
> > as a baby- he all these surgeries from age 2i weeks to 3years
old.
> > But--- i got his 2 year shots and he was "gone" so to speak
within
> 4
> > weeks. he stopped smiling, laughing, playing, didnt want any love
> > from us, etc.
> >
> > He was diagnosed with mild to moderate Autism at 4. We put him in
a
> > ABA school with one teacher in the am then one teacher in the
pm...
> > they do not change teachers- your child has the same teachers
till
> > they leave school!!  That school was a blessing! When we took him
> > there- he was head bangging, rocking all the time, walking on his
> tip
> > toes, etc. Now, he is in a regular school, in a 4th grade class,
> with
> > an aide, has over 3,000 signs, and is starting to speak!!
> >
> > I was blessed to have met Tammy through B.A.D. on myspace and we
> have
> > been friends every since!!!!
> >
> > I am also a proud Army wife to a Special Forces medic-- who is
> never
> > home..lol... which takes a toll on John Micheal!
> >
> > Ok, I have yapped enough!! looking forward to meeting you all!!
> > Thanks Tammy!!
> >
> > Michelle Shaver
> > www.myspace.com/draimanwoman
> >
>

#16 From: "marymgoodm" <mudbug1963@...>
Date: Mon Jun 25, 2007 9:34 pm
Subject: Suggestions Please
marymgoodm
Offline Offline
Send Email Send Email
 
OK I am trying to Potty Train.
I bought the PECS book, and rewards.
I just sat with him I know an hour playing, singing, reading him the book. Had
to feed my
daughter put a diaper on him and instant Pee.
I have had him pee in the potty first thing in the morning a few times now.
I just need suggestions of what you have used or done.

Thanks,
Mary

#15 From: "snowhite6503" <gentsandgems@...>
Date: Mon Jun 25, 2007 7:40 pm
Subject: Re: Hi everyone! New to list
snowhite6503
Offline Offline
Send Email Send Email
 
Hya Jennifer! Welcome aboard! And I can not wait to try your
recipe!!! I am always on the look for new recipes! Varitey is of the
utmost importance!!!  :)

It is good to hear from someone that has had such positive results
with DAN! I know that the "recovery" process with DAN is slower than
conventional meds.....BUT.....the conventional meds pose so many more
dangers and are just temporary fixes for most kids. I will stick with
the DAN and just take the slow ride!!!  :)

What form of chelation did you use? I know very little about
chelation. Actually I was against chelation until I went to the
Autism One conference and learned a bit more. All I had learned was
about the negative aspects. I learned there about all the positive as
well!


Hope to talk with you more soon!!!


HUGS!
Tammy Lynne


--- In letsbeatautismnow@yahoogroups.com, "talk4ariel"
<talk4ariel@...> wrote:
>
> My name is Jennifer, and I have a daughter, age 6, with autism.  We
> started DAN protocol in 2004, and, after great trial, error, and
label
> reading, we are seeing amazing results.  We started chelation over a
> year ago, and this also showed a dramatic improvement in my little
> girl. She speaks in full sentences now and is doing wonderfully in
all
> areas other than behavorial.  I strongly believe that without the
help
> of DAN protocol, my daughter would have had to be
institutionalized.
> She was extremely impaired at age 2, with no receptive language,
felt
> no pain, and was very self injurious.
>
> I also have a son named Ben age 2, who has the stage set for
autism.
> He has yeast issues, has mulitiple food allergies, but has had no
> vaccines, so is doing very well.  He points, expresses, gestures,
and
> has no sleep or behavior issues.  He receives EI services for speech
> delay.
>
> In my cf/gf diet plan for Ariel, her diet is most comprised of meat
> and alternative grains.  She does very well with Sourgum, Amaranth,
> Quinoa, and Malanga(root).
>
> I have a chicken nugget receipe that is truly "to die for"-I would
> love to post soon.  I am hoping to write a cookbook of receipes
> someday.  I have to be creative, and it's paid off in some delicious
> selections for my child.
>
> Gods wisdom and blessings to all battling autism-
>
> Jennifer Kasfeldt
>

#14 From: "snowhite6503" <gentsandgems@...>
Date: Mon Jun 25, 2007 7:36 pm
Subject: Re: Getting to Know you
snowhite6503
Offline Offline
Send Email Send Email
 
Hey Mary! Welcome to the group hon! Can I say that I HATE your doctor
as well???  LOL!  ARRRGH! Those kinds of doctors just get under my
skin!!!

We just got a DAN doctor here in WV and I about went into shock when
I found out that she takes medicaid!!! We have our first appoinment
with her tomorrow!  WOOHOO!!!

We have been following the DAN protocol though for about a year now!
Matthew Cody is on about 12 supplements and started the diet about 2
months ago. We gave up ALL food dyes last fall! That is a really
tricky one thoug beause there is food dye in items you would have
never thought to check!!!!

Are the supplements that you are taking flavored??? If so than maybe
it is the flavor that your son is tasting and not the texture. What
kind of drink are you putting it in?

We use potato milk and EVERYTHING we use is hypoallergenic so there
is NO flavor! I use one scoop of Nestle's in his sippy cup and I
shake like heck!!!  LOL!!! At lunch time we have 4 different
supplements in there and every once in a while he will not want to
drink it but for the most part he does not fight it too much. His
morning "cocktail" (as I call it, is all he gets in the morning! No
breakfast or anything else until that first sippy cup is emptied!  :)


Glad to have you here and Let's B.A.N.!!!



HUGS!
Tammy Lynne







--- In letsbeatautismnow@yahoogroups.com, "marymgoodm"
<mudbug1963@...> wrote:
>
> Hi
> My name is Mary I am the proud Mom of three Kids. Two boys 6 1/2
and 4 and a almost 2
> year old girl.
> My 4 year old son has autism. He was diagnosised with PDD in Aug of
last year. They
> changed his diagnosis at his six month  check in March to autism.
> We started noticing early something was up. We had to wait six
months to get into the Dr.
> She is a devlopmental Peds Dr and can I say I HATE her. She does
not think shots causes
> austim and she does not think diet does anything!!! I just sit and
listen while she makes
> me feel like an idoit. The ONLY reason I take him there is to get
the Diagnosis I wanted.
> We don't have any DAN Drs in our area.
> I am in the process of starting the diet bought some books and
buying products.
> I have been trying to get him to take supplements. Awaken
Nutritions liquid vitiamin and
> mineral.
> If he sees me put it in he will not drink it. Then when he does not
see me he can taste it.
> HELP!!! any suggestions???
> I have been so overwhelmed with the whole process there is so much
to read and no time
> to read it.
> He is in a special needs pre school program which he made get gains
this year. Is going
> two days a week starting tomorrow. through the end of July.
>
> Has any one  heard of Dr Amy Yasko?? A mother in a group I go to
does her stuff and her
> son has done really well with her program.
>
> ANY suggestions would be MUCH appreciated.
>
> Have A Great Day!
> Mary
>

#13 From: "snowhite6503" <gentsandgems@...>
Date: Mon Jun 25, 2007 7:28 pm
Subject: Re: Getting to know you!!!!
snowhite6503
Offline Offline
Send Email Send Email
 
Hya Michelle! Wow girl! Your story sounds like so many thousands of
others!!! After the "shots" everything was lost!!! It is like looking
at a different child, huh? Matthew Cody's "before and after" pics are
astonishing!!! You can just look at the pics and tell that something
bad happened after his shots!!! ARRRGH!!!


What forms of therapy and treament have you tied so far?

I am soo glad you joined the group! We are B.A.D. mommas and we are
going to B.A.N.!!!!



HUGS!!!!!



--- In letsbeatautismnow@yahoogroups.com, "michelle" <ashaver@...>
wrote:
>
> Hi everybody!!!  I am Michelle, a proud mom to two boys, John
> Micheal, 8 and Caleb who is 6!  John Micheal has what they call
> Pierre robin Syndrome- PRS .. which is a rare disorder that effect
a
> lot of different things. He has had a small jaw, three cleft palate
> surgeries, two jaw breaking surgeries, and has had a trach since 21
> days old. Mind you with all of this, he still made leaps and bounds
> as a baby- he all these surgeries from age 2i weeks to 3years old.
> But--- i got his 2 year shots and he was "gone" so to speak within
4
> weeks. he stopped smiling, laughing, playing, didnt want any love
> from us, etc.
>
> He was diagnosed with mild to moderate Autism at 4. We put him in a
> ABA school with one teacher in the am then one teacher in the pm...
> they do not change teachers- your child has the same teachers till
> they leave school!!  That school was a blessing! When we took him
> there- he was head bangging, rocking all the time, walking on his
tip
> toes, etc. Now, he is in a regular school, in a 4th grade class,
with
> an aide, has over 3,000 signs, and is starting to speak!!
>
> I was blessed to have met Tammy through B.A.D. on myspace and we
have
> been friends every since!!!!
>
> I am also a proud Army wife to a Special Forces medic-- who is
never
> home..lol... which takes a toll on John Micheal!
>
> Ok, I have yapped enough!! looking forward to meeting you all!!
> Thanks Tammy!!
>
> Michelle Shaver
> www.myspace.com/draimanwoman
>

#12 From: "snowhite6503" <gentsandgems@...>
Date: Mon Jun 25, 2007 7:24 pm
Subject: Re: Getting to know you!!
snowhite6503
Offline Offline
Send Email Send Email
 
Hya Michelle! Welcome to the group hon! And I so miss seeing your
little cuties enter my contest!  :(  But I understand that time
constraints are a bigg issue!  :)

What kind of therapies have you tried? Has your state offered
assistant with various therapies? Has your doctor done any blood work
as far as metal testing or IGg screening?

Don't mean to be a nosey body! LOL! Just wanting to see what road you
have been down! I personally was not told about ANYTHING other than
OT,PT, speech and developmental. No one told me about anything else!
And no one told me about the supplement side of Autism either!

Matthew Cody is actually listed as sever though he has stumped his
therapists and physchologist! They claim that even though his numbers
make him severe, he acts as though he is high functioning! Now that
is confusing, huh???  :)

I am glad to see you join hon! And Make sure to post some pics
sometime so I can see how your little guys are growing!!!


HUGS!
Tammy Lynne


--- In letsbeatautismnow@yahoogroups.com, "Michelle"
<littleredcorvette2004@...> wrote:
>
> Hello Momimes! My name is Michelle Arndt, from Tulsa, OK. I am 21
> years old and I have 2 wonderful little boys. Ethan will be three
in
> October, and Tyler will be two in December. Ethan has been recently
> diagnosed with Autism. I feel very fortunate that he is highly
> functional and pretty much he is only affected verbally. We have
been
> doing PECS for a couple of months and we feel like he is coming
along
> very well. He has said several new words and even a few sentences,
> which excites me to no end.
>
>  I feel like Ethan's Autism is genetic, as my brother is Autistic
and
> we also have a cousin who suffers from Autism, but I also believe
that
> vaccines played a role. We feel like he had a lot of words, like he
> was building a nice vocabulary, and around 18 months he just lost
most
> of those words. I am keeping a close eye on my youngest, as well.
He
> is 18 months old and doesnt really say anything yet. I count my
> blessings with Ethan. He has no diet issues and will eat pretty
much
> anything, and we had his ears checked and he has perfect hearing. I
> know I am lucky, but I do still feel the effects of Autism.
>
> I used to be a contest Mommy for a while, I ran Ethan's Adorable
> Angels, but I shut it down because I just feel like I hav NO TIME
> anymore LOL. I rarely even get on the computer long enough to enter
my
> babies in contests, though I enjoy doing so!
>
> Thanks for listening and I am so glad Tammy formed this group!!!
>
> Michelle
> www.myspace.com/shortiepie04
>

#11 From: "talk4ariel" <talk4ariel@...>
Date: Mon Jun 25, 2007 2:30 pm
Subject: Hi everyone! New to list
talk4ariel
Offline Offline
Send Email Send Email
 
My name is Jennifer, and I have a daughter, age 6, with autism.  We
started DAN protocol in 2004, and, after great trial, error, and label
reading, we are seeing amazing results.  We started chelation over a
year ago, and this also showed a dramatic improvement in my little
girl. She speaks in full sentences now and is doing wonderfully in all
areas other than behavorial.  I strongly believe that without the help
of DAN protocol, my daughter would have had to be institutionalized.
She was extremely impaired at age 2, with no receptive language, felt
no pain, and was very self injurious.

I also have a son named Ben age 2, who has the stage set for autism.
He has yeast issues, has mulitiple food allergies, but has had no
vaccines, so is doing very well.  He points, expresses, gestures, and
has no sleep or behavior issues.  He receives EI services for speech
delay.

In my cf/gf diet plan for Ariel, her diet is most comprised of meat
and alternative grains.  She does very well with Sourgum, Amaranth,
Quinoa, and Malanga(root).

I have a chicken nugget receipe that is truly "to die for"-I would
love to post soon.  I am hoping to write a cookbook of receipes
someday.  I have to be creative, and it's paid off in some delicious
selections for my child.

Gods wisdom and blessings to all battling autism-

Jennifer Kasfeldt

#10 From: "snowhite6503" <gentsandgems@...>
Date: Mon Jun 25, 2007 2:06 am
Subject: I am on a roll tonight!!
snowhite6503
Offline Offline
Send Email Send Email
 
After very little posting I am trying to share everything I can with
you all!  LOL!! I have more than 6000 links saved! I am a research
fool I suppose!  LOL!

Anywho, did you know that once your child is approved for SSI that
you can get a handicap sticker for your vehicle? You have to take a
form to your doctor to fill out and then to your local DMV. I was
surprised because Matthew Cody does not have a physical disability
per say. But there take is that it is a safety issue. If you are
going to the grocery store and parked in the back of the lot and
trying to get your child (as they are having a meltdown) to the store
doors....it could be very hazardous! Especially if your child breaks
free from you!

Just thought I would share! And PLEASE feel free to post anything you
would like to share!  HINT HINT!!!

To the new members, I PROMISE I will reply to each of you soon!


HUGS!
Tammy Lynne & Matthew Cody

#9 From: "snowhite6503" <gentsandgems@...>
Date: Mon Jun 25, 2007 1:37 am
Subject: National Autism Registry
snowhite6503
Offline Offline
Send Email Send Email
 
Hya all! Not sure if you have seen this site! You can register and then
pick one of two cards to be sent to you. One of the cards can be shown
to a cashier at the store and is supposed to get you through the line
quicker if your child is on the verge of a meltdown.   :)



http://www.dimensionsspeech.com/autism-registry.shtml



HUGS!
Tammy Lynne

#8 From: "marymgoodm" <mudbug1963@...>
Date: Sun Jun 24, 2007 6:10 pm
Subject: Getting to Know you
marymgoodm
Offline Offline
Send Email Send Email
 
Hi
My name is Mary I am the proud Mom of three Kids. Two boys 6 1/2 and 4 and a
almost 2
year old girl.
My 4 year old son has autism. He was diagnosised with PDD in Aug of last year.
They
changed his diagnosis at his six month  check in March to autism.
We started noticing early something was up. We had to wait six months to get
into the Dr.
She is a devlopmental Peds Dr and can I say I HATE her. She does not think shots
causes
austim and she does not think diet does anything!!! I just sit and listen while
she makes
me feel like an idoit. The ONLY reason I take him there is to get the Diagnosis
I wanted.
We don't have any DAN Drs in our area.
I am in the process of starting the diet bought some books and buying products.
I have been trying to get him to take supplements. Awaken Nutritions liquid
vitiamin and
mineral.
If he sees me put it in he will not drink it. Then when he does not see me he
can taste it.
HELP!!! any suggestions???
I have been so overwhelmed with the whole process there is so much to read and
no time
to read it.
He is in a special needs pre school program which he made get gains this year.
Is going
two days a week starting tomorrow. through the end of July.

Has any one  heard of Dr Amy Yasko?? A mother in a group I go to does her stuff
and her
son has done really well with her program.

ANY suggestions would be MUCH appreciated.

Have A Great Day!
Mary

#7 From: "snowhite6503" <gentsandgems@...>
Date: Wed Jun 20, 2007 1:12 am
Subject: A bit about our treatment....
snowhite6503
Offline Offline
Send Email Send Email
 
Hya all! Just thought I would share a bit about the treatments that
we have tried so far!  :)

We started DMG last spring and it was SOOOOOOO awesome! Within 10
days Matthew Cody's speech went from 1 word to 22 words!  WOOHOO! The
only negative we saw was that he was a bit more hyper and he quite
taking a nap. It was well worth it though!  :)
In the fall we stopped using milk and went to soy. We went through 4
nights of withdrawals!!! We also started using a mulitvitamin and
taking melatonin at nighttime.
Since then we changed our multivitamin and started using Spectrum
Complete from Kirkman Labs. We also use calcium powder, magnesium,
zinc, and probiotics.
We are now on potato milk and we started the GFCF diet about 8 weeks
ago. At first I was hoping we would see no difference so we could
stop the diet. I will be the first to admit that the diet is a pain
in the beginning and also very expensive! BUT...I must admit that
Matthew Cody's progress in the last month has been nothing short of
amazing!!! He is talking spontaneously a lot!!! He still repeats
everything like a parrot and we still have a lot of the
echolila....but we are getting a lot of words/sentences on his
own!!!  :)
Just thought I would share! We go to our 1st DAN visit next week and
I am sooo excited! We have not had any blood work done yet so we
shall see where our metals are then. The only sad part about starting
before we got in with a DAN doctor is I will not be able to see how
far we have come through blood work. For example, I know that all we
have been doing has lowered his metal levels in his blood. But I will
not be able to have an exact amount or anything.
Another thing that we TOTALLY stopped is food dye! We do not give him
ANY food dyes! That is also not an easy task but it I feel it is
vital. We have cut back a lot of sugar as well because the sugar can
produce lots of yeast in the gut.
I have a lot of great recipes that I would love to share with you if
you are interested!
I would also love to know what everyone else has tried and what seems
to have worked and not worked.
Okay, I have graphics to do for my photo contest! I look forward to
some feedback!  :)


HUGS!
Tammy Lynne

#6 From: "michelle" <ashaver@...>
Date: Tue Jun 19, 2007 2:53 pm
Subject: Getting to know you!!!!
liltartus
Offline Offline
Send Email Send Email
 
Hi everybody!!!  I am Michelle, a proud mom to two boys, John
Micheal, 8 and Caleb who is 6!  John Micheal has what they call
Pierre robin Syndrome- PRS .. which is a rare disorder that effect a
lot of different things. He has had a small jaw, three cleft palate
surgeries, two jaw breaking surgeries, and has had a trach since 21
days old. Mind you with all of this, he still made leaps and bounds
as a baby- he all these surgeries from age 2i weeks to 3years old.
But--- i got his 2 year shots and he was "gone" so to speak within 4
weeks. he stopped smiling, laughing, playing, didnt want any love
from us, etc.

He was diagnosed with mild to moderate Autism at 4. We put him in a
ABA school with one teacher in the am then one teacher in the pm...
they do not change teachers- your child has the same teachers till
they leave school!!  That school was a blessing! When we took him
there- he was head bangging, rocking all the time, walking on his tip
toes, etc. Now, he is in a regular school, in a 4th grade class, with
an aide, has over 3,000 signs, and is starting to speak!!

I was blessed to have met Tammy through B.A.D. on myspace and we have
been friends every since!!!!

I am also a proud Army wife to a Special Forces medic-- who is never
home..lol... which takes a toll on John Micheal!

Ok, I have yapped enough!! looking forward to meeting you all!!
Thanks Tammy!!

Michelle Shaver
www.myspace.com/draimanwoman

#5 From: "snowhite6503" <gentsandgems@...>
Date: Tue Jun 19, 2007 12:18 pm
Subject: Just a quick hello! And update on Let's B.A.N.! :)
snowhite6503
Offline Offline
Send Email Send Email
 
Hya! I am sorry I have not been very talkative! I have been actively
following the progress of a couple of children and it has consumed my
time. One of them became an angel last night and it was very sad.  :(

I have worked just a bit on the site though and the diagnosis page is
done! Let me know what you think!

I am also open to any info that anyone would like to add to the
site!  :) Just send it along!

The one thing I am not posting right now is companies selling
things....except of course for Kirkmans. I think there are enough
sites that overwhelm new parents of Autism with everything that they
have for sale and I want Let's B.A.N. to be more of a safehaven!  :)

I guess that is all for now! Have a great day! We are off to look at
Toys R Us! We have to go get more Coromega and the health store is
across from Toys R Us! Needless to say, we will not be able to go
there without going in! ;)


HUGS!
Tammy Lynne
Let's B.A.N.
http://www.littlegentsandgems.com/LetsBeatAutismNow.html

#4 From: "Michelle" <littleredcorvette2004@...>
Date: Wed Jun 13, 2007 5:21 pm
Subject: Getting to know you!!
littleredcor...
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Hello Momimes! My name is Michelle Arndt, from Tulsa, OK. I am 21
years old and I have 2 wonderful little boys. Ethan will be three in
October, and Tyler will be two in December. Ethan has been recently
diagnosed with Autism. I feel very fortunate that he is highly
functional and pretty much he is only affected verbally. We have been
doing PECS for a couple of months and we feel like he is coming along
very well. He has said several new words and even a few sentences,
which excites me to no end.

  I feel like Ethan's Autism is genetic, as my brother is Autistic and
we also have a cousin who suffers from Autism, but I also believe that
vaccines played a role. We feel like he had a lot of words, like he
was building a nice vocabulary, and around 18 months he just lost most
of those words. I am keeping a close eye on my youngest, as well. He
is 18 months old and doesnt really say anything yet. I count my
blessings with Ethan. He has no diet issues and will eat pretty much
anything, and we had his ears checked and he has perfect hearing. I
know I am lucky, but I do still feel the effects of Autism.

I used to be a contest Mommy for a while, I ran Ethan's Adorable
Angels, but I shut it down because I just feel like I hav NO TIME
anymore LOL. I rarely even get on the computer long enough to enter my
babies in contests, though I enjoy doing so!

Thanks for listening and I am so glad Tammy formed this group!!!

Michelle
www.myspace.com/shortiepie04

#3 From: "snowhite6503" <gentsandgems@...>
Date: Tue Jun 12, 2007 3:15 pm
Subject: Welcome everyone!
snowhite6503
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I just wanted to give a quick welcome to all that have joined! Don't
forget when you get a chance to send a quick message about yourself!  :)

Also, here is the link to my website! It is linked off of my photo
contest site right now but I plan to get it moved soon. :)

www.littlegentsandgems.com/LetsBeatAutismNow.html

If you have any links you would like to see on there just let me know!
I am still working on it. Just scroll over the different links and you
will be able to tell which ones are working!  :)

Have a great day!

Hugs!!!
Tammy & Matthew Cody

#2 From: "strongest_lady" <strongest_lady@...>
Date: Sun Jun 10, 2007 2:41 am
Subject: Getting to know you! Amber Mom To Autistic Son ASPERGER'S
strongest_lady
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Hi My name is Amber, I am a mother of 3 boys, Ages 10yrs, 8yrs and
3yrs, I also have an Autistic son, his name is Caden Carl Thomas.
He was diagnosed last year in October when he was 32 months.

I feel that Caden Has had Autism from birth, I also agree that
vaccines play a role, as well as genetics in my case, Simply because
my husband has the same symptoms. He has seen doctors for a
diagnosis, and to be honest, they do not want to diagnos him simply
because that would mean admitting fault. So we basically treat my
husband with out the diagnosis and use helpful methods as treatment.
It is working so far.

Caden was vaccinated at birth as are every other child in the world.
But I feel that he had the perfect genetic make up to support autism
once the vaccines were given containing mercury, and not to mention
all the environmental factors as well.

Caden has had a rough way to go, constant health issues since birth,
colic, gastro issues, acid reflux, he had only 4 ear infections by 8
months and we found out at around 8 months that he was deaf. We
immediately sought an ENT and he placed tubes in and Caden got
therapy with the First Steps team here in Indiana, He began to show
improvement as far as motor skills, and did well with physical
therapy, however he still had lots of sensory issues, and he also
stumped them when they were unable to continue with therapy since
they could not pin point the exact things that were going wrong.

This would be the Autistic symptoms, head banging, outbursts,
obsesive compulsive this all at around 1yr old. He began speaking
instantly upong tube placement. Very very smart, but seemed his
common sense was lacking. He would watch your mouth rather than make
eye contact, this all went on and began to get worse as time went on.
He began to obsess over the vacuum and potato head, and constant
touching. He also began to show signs of major sensory issues. We
took him to the doctor so many times and finally I began to tell my
self he seems autistic, however he talks. So i didnt question it
again. A few months later, another family member said the same thing,
Doesnt he seem to have symptoms of autism? I said, you know i said
the same thing. So i asked his pediatrician, she immediately sent us
to a Neurologist, and as suspected he said that he felt he had
Asperger's, and to wait 6 months and see if other symptoms show. Well
we waited and in the mean time, we found out during a regular eye
doctor appointment that Caden was legally blind and has strabismus,
cross eyed (inward) well getting a 2 yr old to wear glasses is
insane, it is one year later and we are on frame number 9 and 2nd
pair of lenses.

Anyways, during this 6 month time frame, we also found out that Caden
was losing his hearing again and needed his tubes replaced. We
agreed. During the procedure, while removing the tube in the right
ear, the right eardrum came out attached to the tube, so they placed
a patch over the area and said to wait about 8 months for it to heal
and then they would replace it, well I swear Caden has no hearing in
his right ear. He constantly has the tv up very loud and asks us all
the time to repeat things. We head back to the ENT next month.

Anyways, after the 6 month mark past, we return to the neurologist
and he askes us about more things he is doing, running into danger,
high pain tolerance, toe walking, running away, escaping our home,
constant energy, sleepless nights and so on, well he said, He has
Asperger's. I was kinda ok to know what was wrong but devistated to
know that there is no cure! I was floored, I thought that we could do
what we were told and he would be healed. NOPE, there is no cure for
Autism. I accepted it and decided to start my journey of care for my
son and family.

Soon after, I met a super woman named Tammy, this groups moderator,
She also has an autistic child, I entered her free online contest
about a year or so earlier, well during one months contest, i visited
her site to see that she was full and not accepting any more entries,
and IMMEDIATELY noticed a banner stating I LOVE SOMEONE WITH AUTISM!
I told myself, wow, there is another person out there with a child
like mine, I began to email her and we discussed Autism, and me
opening a contest, Soon after she called and we have been talking
daily ever since, I have to say I am not sure where I would be with
out her. I have walked down paths I would have never seen with out
her help. I would have just sat here and accepted the autism and that
was it.

She gave me the will and passion for Autism, and to read and dig
deep. Start looking where others wont. I appreciate that in her. We
have an age gap, of some i think 13 years but we share the same goal.
Our families and Autism.

I have since opened a website for autism www.letsexposeautismnow.com
and I also run a free photo contest www.pricelessmomentsfpc.com I am
currently raising money for Autism Awareness and Research donations
to be presented at my local walk in september. I cant wait.

My older boys have struggled to see the torment that autism brings,
but they are heroes in my book, Awesome big bro's to Caden, They are
older and they are aware of what is going on but sometimes i feel the
suffer as well as Caden, Caden puts a hold on stuff sometimes, due to
the Autism it is hard to take him out and do community or family
things without people staring and saying how horrible we are to have
a child act that way. But You know, they will be rewarded for this
one day. I will see to it. For now, I have to do things seperate with
them, and not as a full family. It is hard to balance everything. But
we will get through it all toghether!

I have a video on Youtube.com that is called Autism Awareness:
Autistic children are not hopeless, please go view it if you like, it
is a tear jerker, trust me, it has music so be sure to listen while
you watch.

I decided to join this group simply because Tammy is might right arm
sometimes I swear! I want to show my support and also share my story
so that you know where we are coming from.

I am sorry this is so long but I had to share a get to know me story
and it is a lot to know, but thanks for reading and please contact me
if you have a question or want to share something you have learned.

Thanks so much again guys and have a super blessed weekend!
Amber
Mom to 3
Moderator of Let's Expose Autism Now Yahoo Group
Director and Founder of www.letsexposeautismnow.com
Director of www.pricelessmomentsfpc.com
I love someone with Autism!
be sure to visit youtube.com as well.

#1 From: "snowhite6503" <gentsandgems@...>
Date: Sat Jun 9, 2007 11:48 pm
Subject: Getting to know you! :)
snowhite6503
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My name is Tammy and I am the mommy to 11 awesome children! My youngest
child, Matthew Cody, has Autism. He is 3 years old and was disgnosed
when he was 27 months old.

Matthew Cody was a normal developing child until he got his last round
of vaccines at 18 months. (they would have been his 15 month shots but
we had delayed the shots initially). He also got the flu shot the week
after his regular vaccine.

Within 3 weeks he had lost speech, eye contact, and also had quit
eating table food. On top of that he had developed major sensory issues.

Matthew Cody has severe Autism as far as the numbers go but if you saw
him today he sure does not seem to be severe. We have been using
supplements since last spring and we go to our DAN docotor on June 26th
for the first time. (I had went to another DAN doctor one time and
discussed everything...it was a free visit that I attended with a
friend whose child was a patient).

I am excited about our upcoming visit as I feel I have done all that I
can at this point in time and need professional help now!  :)

I wil post more as time prevails! Please send out a getting to know you
email when you join!  :)


HUGS!
Tammy & Matthew Cody

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