Welcome to our group! If you are here, then most likely someone you love has been diagnosed with Lennox Gastaut Syndrome, one of the most severe forms of epilepsy. Neurologists and literature paint grim pictures as to the prognosis of our children, but there is much hope! Clinical trials are underway to find viable treatment options, as the usual line of anti-epileptic drugs do not offer much relief of our childrens' seizures.

If you are joining us for the first time, I hope that we can inspire you to seek alternative treatments if the current treatments are not working. I started this group because my son's neurologist told me that my son was "one of a handful" of kids in the world with Lennox Gastaut, and I was determined to find the parents of this "handful" to swap stories and ideas with, in an effort to better help our kids.....that "handful" has grown into over 230 so far! I have found this unique group of parents to be inspiring and full of hope.

Please join us in sharing information, neurologist referrals, and stories to support each other in our search for the best possible treatment options for our children!

-Sue Ellen






OUR CURRENT "FRONT PAGE STAR" IS BRANDON!