Anyone here going? I may be, just need to get my act together and fill
in the form. Thinking of going as an adult helper as I am 18 now (only
just tho)
Anyway, anyone left on here as the group seems to be quite dead at the
moment.
Harriet

Hi all,

For those of you who are members of facebook I have created a group
for CLAPA in case anybody wants to join. I'm also hoping to use this
as a way of gathering contacts for other young people with clefts but
all are welcome!

For those not members who wish to be the web address is
www.facebook.com It is a networking site - a bit like Friends Reunited
but without the fees!

Laura

im hoping for a girl but who knows we are havin one more after this hehe

ecroyston@... wrote:                                  I want one of each, or
two of each. Whatever, I want at least one boy and
  one girl! lol. Preferably enough kids to fill an MPV!

  Emma

  [Non-text portions of this message have been removed]






---------------------------------
Check out the all-new Yahoo! Mail beta - Fire up a more powerful email and get
things done faster.

[Non-text portions of this message have been removed]

I want one of each, or two of each. Whatever, I want at least one boy and
one girl! lol. Preferably enough kids to fill an MPV!

Emma




[Non-text portions of this message have been removed]

im hoping girl but who knows lol i find out the 29th for sure

ecroyston@... wrote:                                  I can't believe you're
having another baby!! I WANT ONE!!!!!!!!!!!! A  family
  friend has just had a baby boy, my cousin's having a boy in January AND
  another family friend is having one in June! Looks like 2007 is going to be the
  year to have a baby, lol.

  What do you want the sex to be......?

  Emma

  [Non-text portions of this message have been removed]






---------------------------------
Access over 1 million songs - Yahoo! Music Unlimited.

[Non-text portions of this message have been removed]

I can't believe you're having another baby!! I WANT ONE!!!!!!!!!!!! A  family
friend has just had a baby boy, my cousin's having a boy in January AND
another family friend is having one in June! Looks like 2007 is going to be the
year to have a baby, lol.

What do you want the sex to be......?

Emma




[Non-text portions of this message have been removed]

EMMAAAAAAAAAAAAAA
omg hey ur still here lol long time no see guess whats im having anothe baby!!
due april 13th i find out in 2 weeks what the sex is and if thers a cleft lip or
not!!

ecroyston@... wrote:                                  Has anyone heard of
the text service thing 82ASK? They guarantee to answer
  your questions, and I was up at 3am the other night and decided to ask them
  what  chance I had of having a baby with a cleft. Here's their answer: One out
of
   every 800 babies in the UK is born with a cleft. No studies suggest it is
  hereditory. I may not be a doctor, but I know enough about clefts to know  that
  it can be hereditory! So I texted back and said I knew that it  could
  definitely be hereditory, I just wanted to know what my chances were,  and they
  texted back: Appologies, hereditory factors do seem to play a small  role. a
parent
  who was born with a cleft has a 2% chance of passing it on to  their child. I
  couldn't quite work it out though, does a random person have  a 0.8% chance,
  and we'd have a 2% chance? I failed my Maths GCSE 4 times, so  numbers aren't
  my strong point! Can anyone figure out the numbers...?

  Emma

  [Non-text portions of this message have been removed]






---------------------------------
Everyone is raving about the all-new Yahoo! Mail beta.

[Non-text portions of this message have been removed]

Has anyone heard of the text service thing 82ASK? They guarantee to answer
your questions, and I was up at 3am the other night and decided to ask them
what  chance I had of having a baby with a cleft. Here's their answer: One out
of
  every 800 babies in the UK is born with a cleft. No studies suggest it is
hereditory. I may not be a doctor, but I know enough about clefts to know  that
it can be hereditory! So I texted back and said I knew that it  could
definitely be hereditory, I just wanted to know what my chances were,  and they
texted back: Appologies, hereditory factors do seem to play a small  role. a
parent
who was born with a cleft has a 2% chance of passing it on to  their child. I
couldn't quite work it out though, does a random person have  a 0.8% chance,
and we'd have a 2% chance? I failed my Maths GCSE 4 times, so  numbers aren't
my strong point! Can anyone figure out the numbers...?

Emma




[Non-text portions of this message have been removed]

Hi laura im doing great we just found out we are expecting baby # 2 on the way
we will find out the 29th if this one has a cleft.....im so excited to find out
and i get to see the sex!! our son nicholas has no cleffffft in him so we are
hoping not this time but i will know for sure in 2 weeks! welcome back by the
way!!!
always Nicole
laura_equals_me <laura_equals_me@...> wrote:
ok i know i haven't been her forever but i just realised the last msg
  was sent in august!! how is every1 doing??? reply!!






---------------------------------
Access over 1 million songs - Yahoo! Music Unlimited.

[Non-text portions of this message have been removed]

Yeah, it has been a long time, hasn't it? lol

I'm OK. Still 18, still work in a care home and still have my gorgeous baby
black Citroen C2. Here's a photo of it with a private plate which I'm  getting
as soon as I can afford it!
_http://s48.photobucket.com/albums/f215/c2_4ever/?action=view&current=DSCF1134.j\
pg&refPage=&imgAnch=imgAnch1_
(http://s48.photobucket.com/albums/f215/c2_4ever/?action=view&current=DSCF1134.j\
pg&refPage=&imgA
nch=imgAnch1)   I've  done 16,000 miles in it since January. Yeah, I'm
soooooooooo bored with life I  spend it all in my car! lol.

Do you have a job, Laura? I've had loooads of interviews, but haven't got
anywhere yet. I had 3 interviews with the NHS because I want to be a health care
  assistant (well, I want to be a paramedic, but I'm not 21 yet) but I
fluffed up in them, because the nurses seem to enjoy intimidating poor innocent 
18
year olds, by sitting behind a long table and making the interviewee sit
smack bang in the middle of the room feeling (and looking) like an idiot. God,
they don't exactly make you feel less self-conscious!

Anyway, how are you?

Emma




[Non-text portions of this message have been removed]

ok i know i haven't been her forever but i just realised the last msg
was sent in august!! how is every1 doing??? reply!!

congratulations on your pregnancy!! i've become really broody recently, i  go
all gooey over every single baby i see! LOL.

I got a pass grade in my BTEC in Health Studies, I found out today. I also
got a C in my Science retake, and a D in Maths, for the 4th time, which I'm
gutted about. It means I can't do a university course in either of the two I
wanted to do. I want to be a paramedic, but if I can't do that I want to be a
paediatric nurse. If I can't do THAT...I guess I'll do some stupid admin job or
  something, LOL.

Congrats again,

Emma

xxx


[Non-text portions of this message have been removed]

k i just have to update my self since i have not been online in forevers or left
a message in so long we just found out we are expecting # 2 finally after
waiting and trying for sooooooooooooooooooooo long...i will let everyone know
more later when i know more later! we are due in april some time i go to dr in a
week to find out what date for sure



---------------------------------
Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls.  Great rates
starting at 1¢/min.

[Non-text portions of this message have been removed]

Dear All,

CLAPA held a successful Drama Workshop last year and we have paired up
with the Education department of the Hampstead Theatre again this year
and will be holding a Drama workshop for children aged between 9 and
16 on Saturday 30.9 from 10.30am - 4pm with the performance at 3.30pm.

If you are interested please call us on 020 7833 4883 or send an email
to kirsi.yli-kaitala@... for more details on how to apply.

Best wishes

Kirsi Yli-Kaitala

i am a father of baby  boy 6 years old has galdenhare syndrom and
has many anomalies the most imbortant is he has cleft lip palat lip
is closed when he was 2 monthes old his cleft palat not yet closed
because our center we are treating in the did not say such a case
befor because my baby has some thing called swilling under his toung
its the content of the floure of the mouth due to his lawer jaw is
so smalle and this normal tissue of the mouth raising the toung up
toword the cleft palat grouf alloing the toung to occubaied it for
that the cleft palt its too wide around 3 to 4 cm  .


may  any one help me to solve this mater or he saw such case befor
because i am so warried about him and i dont knew what to do for him
as long as he is growing  . afraied of i miss any thing to do for
him at ceartein age .

thanks  alot
tha father abed al harbi
head of anaesthesia technician
al yammamah hospital
saudia arabia
riyadh

Where is it? I can't find it, lol.

Emma

xxx


[Non-text portions of this message have been removed]

hey emma lol good picture glad to finally see one of you up on the web lol heres
where mine is at http://www.myspace.com/nicoleandnickandben there we go lol
thats my picutres of me and my fmaily!

ecroyston@... wrote:          OK, here's a picture of me and my brother on
holiday in June. I was gonna
put another pic up instead, but it's a bit too much of a close-up!!

BTW, it's on Photobucket, where there's also loads of pics of my cars, so
feel free to have a look...lol.

_http://s48.photobucket.com/albums/f215/c2_4ever/Me/_
(http://s48.photobucket.com/albums/f215/c2_4ever/Me/)
(http://s48.photobucket.com/albums/f215/c2_4ever/Me/)

Emma

xxx

[Non-text portions of this message have been removed]






---------------------------------
See the all-new, redesigned Yahoo.com.  Check it out.

[Non-text portions of this message have been removed]

OK, here's a picture of me and my brother on holiday in June. I was gonna
put another pic up instead, but it's a bit too much of a close-up!!

BTW, it's on Photobucket, where there's also loads of pics of my cars, so
feel free to have a look...lol.

_http://s48.photobucket.com/albums/f215/c2_4ever/Me/_
(http://s48.photobucket.com/albums/f215/c2_4ever/Me/)
(http://s48.photobucket.com/albums/f215/c2_4ever/Me/)

Emma

xxx


[Non-text portions of this message have been removed]

ok i got a idea why dont we all post picutres??? hehe i got tons of
me

--- In leftclip@yahoogroups.com, ecroyston@... wrote:
>
> Not really, no! LOL. What is 'completely normal' anyway?
Everyone's got
> something about their face they don't like, even celebs like
Victoria Beckham  and
> people. I'd love to have a completely symmetrical, normal looking
nose, but
> because I only have a unilateral cleft lip/palate, I can tell that
even if I
> didn't, my nose wouldn't be too great anyway, LOL.
>
> Emma
>
> xxx
>
>
> [Non-text portions of this message have been removed]
>

Not really, no! LOL. What is 'completely normal' anyway? Everyone's got
something about their face they don't like, even celebs like Victoria Beckham 
and
people. I'd love to have a completely symmetrical, normal looking nose, but
because I only have a unilateral cleft lip/palate, I can tell that even if I
didn't, my nose wouldn't be too great anyway, LOL.

Emma

xxx


[Non-text portions of this message have been removed]

I'm having surgery soon.  Is there anyway to really have your face completely
normal?

Sarah Penketh <s_penketh@...> wrote:          Harriet,

I had surgery on my nose the same time as jaw surgery last year. I will be
having more surgery on my nose in a few months.

If you want more surgery on your nose then go for it!

Sarah.




---------------------------------
Do you Yahoo!?
Everyone is raving about the all-new Yahoo! Mail Beta.

[Non-text portions of this message have been removed]






---------------------------------
Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+
countries) for 2¢/min or less.

[Non-text portions of this message have been removed]

Hi! Maria,                           my name is Olga. Im 24 years old. I live in
chicago. I got my hole inside my mouth when i waz 8 yrs. Da doctorz had 2 remove
my front teethz. I haven't had any other operation since then. I still need work
done but i can't do them cause im trying 2 get pregnant. Im married 4 almost 4
yrs. I do have a little speech problem. Dat only me an a doctor know about. He
has a clinic 4 cleft palate.

  [ninamyers123@...] wrote:
Hi,

My name's Maria, I'm 22, and have recently had an operation to close
the fistula in the roof of my mouth (was born with unilateral - that
means one side yeah?? - cleft lip and palate). I've only had about 5
surgeries and my last one before this was when I was about 10 I
think - this one was my choice.

The reason I went for this surgery is because the hole in the roof
of my mouth was pretty big and I had to wear a plate otherwise my
speech was dreadful (well, people said they couldn't tell but I
could), so I decided to have the hole fixed up. I saw Mr Goodacre at
the Radcliffe Infirmary in Oxford, before this all my sugery was
done at Queen Mary's, Roehampton, but that was a long time ago.

Anyway, the reason I'm on here is because I've been searching and
searching but I can't find anyone else that's had the cleft palate
repaired at this late stage. Being an 80's child, obviously things
have changed and they used to fix the palate at a very young age,
but just then. Once I'd had my orthodontics the hole had been
stretched open somewhat. I think these days they bone graft further
back or something.

The surgery was not incredibly successful (grrrrr wish I'd never
bothered) and the palate is currently in the process of collapsing
again, but hopefully there will at least be some improvement from
before. I would love to talk to anyone who has had a similat
problem, or from anyone younger who would like to talk to someone
who's already been through the worst!

I live in Portsmouth, UK at the moment, but will be moving to
California in a month's time to get married to my fiance :).

Sorry for the obscenly long message!!

Maria x

Hi,

My name's Maria, I'm 22, and have recently had an operation to close
the fistula in the roof of my mouth (was born with unilateral - that
means one side yeah?? - cleft lip and palate). I've only had about 5
surgeries and my last one before this was when I was about 10 I
think - this one was my choice.

The reason I went for this surgery is because the hole in the roof
of my mouth was pretty big and I had to wear a plate otherwise my
speech was dreadful (well, people said they couldn't tell but I
could), so I decided to have the hole fixed up. I saw Mr Goodacre at
the Radcliffe Infirmary in Oxford, before this all my sugery was
done at Queen Mary's, Roehampton, but that was a long time ago.

Anyway, the reason I'm on here is because I've been searching and
searching but I can't find anyone else that's had the cleft palate
repaired at this late stage. Being an 80's child, obviously things
have changed and they used to fix the palate at a very young age,
but just then. Once I'd had my orthodontics the hole had been
stretched open somewhat. I think these days they bone graft further
back or something.

The surgery was not incredibly successful (grrrrr wish I'd never
bothered) and the palate is currently in the process of collapsing
again, but hopefully there will at least be some improvement from
before. I would love to talk to anyone who has had a similat
problem, or from anyone younger who would like to talk to someone
who's already been through the worst!

I live in Portsmouth, UK at the moment, but will be moving to
California in a month's time to get married to my fiance :).

Sorry for the obscenly long message!!

Maria x

Hi! Nicole my name is olga. I live in chicago. I want
2 get surgeries but how do u pay 4 ur surgeries?
--- leftclip@yahoogroups.com <newmom7_13_04@...>
wrote:
> Hi Harriet...im nicole i live in minnesota....i am
23 now i had 23 surgries
>  and i also elected 2 more surguries i just had my
last one done that i wan
> ted done in april.....and wow i feel much
better...if you your self dont fe
> el confortable with what they have done i say go for
it....i had to wait i
> would have had it done a while ago but i just had a
baby and such and tons
> of other stuff...now my son is 2 this week so i
waited 2 years before doing
>  my last surgery and i got married so there is
defently a way to get the su
> rgery done and if you dont feel confurtable do
it...its what you as a perso
> n have to do for your self......if you need anyone
to talk to im here...im
> hopeing to find a pen pal but its not to easy seems
as if some ppl dont wan
> t to talk about all this stuff...i mean i have been
thew a lot and im here
> to help...if anyone has questions i never understood
my cleft lip untill no
> w...that im older i want to be here for anyone else
that needs it....
>   Nicole
>
> Hal <halibutsrule@...> wrote:
>           Hey there, im thinking of getting my nose
done,as all i've had do
> ne is
> close the lip and palate, and the bone graft, and i
was wondered what
> any one out there thought. have you had it done? and
do you think it
> was worth it? i'm 17 and thinki might get ti done
before i go to uni,
> maybe. so yea anyone post back
> Harriet
>
>
>
>
>
>
>
> ---------------------------------
> Talk is cheap. Use Yahoo! Messenger to make
PC-to-Phone calls.  Great rates
>  starting at 1¢/min.
>
> [Non-text portions of this message have been
removed]
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Hi Harriet...im nicole i live in minnesota....i am 23 now i had 23 surgries and
i also elected 2 more surguries i just had my last one done that i wanted done
in april.....and wow i feel much better...if you your self dont feel confortable
with what they have done i say go for it....i had to wait i would have had it
done a while ago but i just had a baby and such and tons of other stuff...now my
son is 2 this week so i waited 2 years before doing my last surgery and i got
married so there is defently a way to get the surgery done and if you dont feel
confurtable do it...its what you as a person have to do for your self......if
you need anyone to talk to im here...im hopeing to find a pen pal but its not to
easy seems as if some ppl dont want to talk about all this stuff...i mean i have
been thew a lot and im here to help...if anyone has questions i never understood
my cleft lip untill now...that im older i want to be here for anyone else that
needs it....
   Nicole

Hal <halibutsrule@...> wrote:
           Hey there, im thinking of getting my nose done,as all i've had done is
close the lip and palate, and the bone graft, and i was wondered what
any one out there thought. have you had it done? and do you think it
was worth it? i'm 17 and thinki might get ti done before i go to uni,
maybe. so yea anyone post back
Harriet







---------------------------------
Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls.  Great rates
starting at 1¢/min.

[Non-text portions of this message have been removed]

Harriet,

   I had  surgery on my nose the same time as jaw surgery last year. I will be
having more surgery on my nose in a few months.

   If you want more surgery on your nose then go for it!

   Sarah.




---------------------------------
Do you Yahoo!?
  Everyone is raving about the  all-new Yahoo! Mail Beta.

[Non-text portions of this message have been removed]

Hi Harriet,

I had my nose fixed in 2001 when I was 13. I had it done because I was  being
bullied, and my nose did look a little better, but unfortunately the
bullying didn't stop. I saw a psychologist though, and she helped me to find 
ways to
stop the bullies affecting me.

My nose is still squashed, and it doesn't look 'normal', but then I guess  it
never will.

If you want your nose done, go for it!

Emma


[Non-text portions of this message have been removed]

Hey there, im thinking of getting my nose done,as all i've had done is
close the lip and palate, and the bone graft, and i was wondered what
any one out there thought. have you had it done? and do you think it
was worth it? i'm 17 and thinki might get ti done before i go to uni,
maybe. so yea anyone post back
Harriet

I am not going to the Wales one, but i am going to the
scotland one, i hope you enjoy your time at the one in
wales...

laney


"Every Deaf Child Has a Voice"

Send instant messages to your online friends http://uk.messenger.yahoo.com

Hey all,
I just wondered if there's anybody on here helping out at the camp in
Wales? I am (well hopefully) and wanted to say hi to anyone else.
Harriet