Hi,

My name's Maria, I'm 22, and have recently had an operation to close
the fistula in the roof of my mouth (was born with unilateral - that
means one side yeah?? - cleft lip and palate). I've only had about 5
surgeries and my last one before this was when I was about 10 I
think - this one was my choice.

The reason I went for this surgery is because the hole in the roof
of my mouth was pretty big and I had to wear a plate otherwise my
speech was dreadful (well, people said they couldn't tell but I
could), so I decided to have the hole fixed up. I saw Mr Goodacre at
the Radcliffe Infirmary in Oxford, before this all my sugery was
done at Queen Mary's, Roehampton, but that was a long time ago.

Anyway, the reason I'm on here is because I've been searching and
searching but I can't find anyone else that's had the cleft palate
repaired at this late stage. Being an 80's child, obviously things
have changed and they used to fix the palate at a very young age,
but just then. Once I'd had my orthodontics the hole had been
stretched open somewhat. I think these days they bone graft further
back or something.

The surgery was not incredibly successful (grrrrr wish I'd never
bothered) and the palate is currently in the process of collapsing
again, but hopefully there will at least be some improvement from
before. I would love to talk to anyone who has had a similat
problem, or from anyone younger who would like to talk to someone
who's already been through the worst!

I live in Portsmouth, UK at the moment, but will be moving to
California in a month's time to get married to my fiance :).

Sorry for the obscenly long message!!

Maria x

Hi! Nicole my name is olga. I live in chicago. I want
2 get surgeries but how do u pay 4 ur surgeries?
--- leftclip@yahoogroups.com <newmom7_13_04@...>
wrote:
> Hi Harriet...im nicole i live in minnesota....i am
23 now i had 23 surgries
>  and i also elected 2 more surguries i just had my
last one done that i wan
> ted done in april.....and wow i feel much
better...if you your self dont fe
> el confortable with what they have done i say go for
it....i had to wait i
> would have had it done a while ago but i just had a
baby and such and tons
> of other stuff...now my son is 2 this week so i
waited 2 years before doing
>  my last surgery and i got married so there is
defently a way to get the su
> rgery done and if you dont feel confurtable do
it...its what you as a perso
> n have to do for your self......if you need anyone
to talk to im here...im
> hopeing to find a pen pal but its not to easy seems
as if some ppl dont wan
> t to talk about all this stuff...i mean i have been
thew a lot and im here
> to help...if anyone has questions i never understood
my cleft lip untill no
> w...that im older i want to be here for anyone else
that needs it....
>   Nicole
>
> Hal <halibutsrule@...> wrote:
>           Hey there, im thinking of getting my nose
done,as all i've had do
> ne is
> close the lip and palate, and the bone graft, and i
was wondered what
> any one out there thought. have you had it done? and
do you think it
> was worth it? i'm 17 and thinki might get ti done
before i go to uni,
> maybe. so yea anyone post back
> Harriet
>
>
>
>
>
>
>
> ---------------------------------
> Talk is cheap. Use Yahoo! Messenger to make
PC-to-Phone calls.  Great rates
>  starting at 1¢/min.
>
> [Non-text portions of this message have been
removed]
>


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Hi Harriet...im nicole i live in minnesota....i am 23 now i had 23 surgries and
i also elected 2 more surguries i just had my last one done that i wanted done
in april.....and wow i feel much better...if you your self dont feel confortable
with what they have done i say go for it....i had to wait i would have had it
done a while ago but i just had a baby and such and tons of other stuff...now my
son is 2 this week so i waited 2 years before doing my last surgery and i got
married so there is defently a way to get the surgery done and if you dont feel
confurtable do it...its what you as a person have to do for your self......if
you need anyone to talk to im here...im hopeing to find a pen pal but its not to
easy seems as if some ppl dont want to talk about all this stuff...i mean i have
been thew a lot and im here to help...if anyone has questions i never understood
my cleft lip untill now...that im older i want to be here for anyone else that
needs it....
   Nicole

Hal <halibutsrule@...> wrote:
           Hey there, im thinking of getting my nose done,as all i've had done is
close the lip and palate, and the bone graft, and i was wondered what
any one out there thought. have you had it done? and do you think it
was worth it? i'm 17 and thinki might get ti done before i go to uni,
maybe. so yea anyone post back
Harriet







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[Non-text portions of this message have been removed]

Harriet,

   I had  surgery on my nose the same time as jaw surgery last year. I will be
having more surgery on my nose in a few months.

   If you want more surgery on your nose then go for it!

   Sarah.




---------------------------------
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[Non-text portions of this message have been removed]

Hi Harriet,

I had my nose fixed in 2001 when I was 13. I had it done because I was  being
bullied, and my nose did look a little better, but unfortunately the
bullying didn't stop. I saw a psychologist though, and she helped me to find 
ways to
stop the bullies affecting me.

My nose is still squashed, and it doesn't look 'normal', but then I guess  it
never will.

If you want your nose done, go for it!

Emma


[Non-text portions of this message have been removed]

Hey there, im thinking of getting my nose done,as all i've had done is
close the lip and palate, and the bone graft, and i was wondered what
any one out there thought. have you had it done? and do you think it
was worth it? i'm 17 and thinki might get ti done before i go to uni,
maybe. so yea anyone post back
Harriet

I am not going to the Wales one, but i am going to the
scotland one, i hope you enjoy your time at the one in
wales...

laney


"Every Deaf Child Has a Voice"

Send instant messages to your online friends http://uk.messenger.yahoo.com

Hey all,
I just wondered if there's anybody on here helping out at the camp in
Wales? I am (well hopefully) and wanted to say hi to anyone else.
Harriet

CLAPA Summer camp 2006



Tuesday 29 August - Friday 1 September



The Ranch Outdoor Discovery Centre

Bryn-y-Moel, Llanbedr, Gwynedd LL45 2HU





Who is it for?



Children and teenagers between the ages of 9 and 15 born with cleft lip
and/or palate.



Where is it?



The Ranch is a residential centre overlooking Cardigan Bay in North
Wales, just three miles south of Harlech.  The centre is in 11 acres of
grounds, and within a 10-minute drive of extensive beaches.  The Ranch
runs a range of activities including archery, orienteering, night walk,
games sessions and circus skills.



What's it all about?



This 4-day camp will enable up to 25 children of different ages to spend
time in a comfortable and safe environment, to get to know each other
and to concentrate on having some serious FUN!



The exact details of the overall theme of the camp has yet to be
finalized, but it is likely to involve music and circus skills (in
addition to the other activities on offer) with a performance on the
last day to which parents and other family members will be invited.



Who will be there?



Apart from the young people attending the camp, there will be:



*         CLAPA staff

*         Adult volunteers from a variety of backgrounds, some of whom
will have a personal relationship with cleft lip and/or palate.





There will be plenty of adults there to ensure that the children are
well looked after.



How much will it cost?



This year we are giving families the option of choosing how much to
contribute towards the costs of the camp by ticking the relevant box on
the application form.  The amount that anyone chooses to contribute will
not affect their application in any way.





As well as children wanting to attend the camp, we also need volunteers
to help run it.  Please do get in touch with Ruth Buchanan
(ruth.buchanan@...) if you are interested in helping out at this
year's camp.  It's a combination of hard work and great fun!



Please note that volunteers will be arriving on site Monday 28 August





The closing date for applications is Friday 16 June



For further information and application packs please contact:

CLAPA, 1st Floor, Green Man Tower, 332 Goswell Road, London EC1V 7LQ

Tel: 020 7833 4883, web: www.clapa.com <http://www.clapa.com/> , e-mail:
info@...





Ruth



Ruth Buchanan

Volunteer Development Co-ordinator

Cleft Lip and Palate Association



ruth.buchanan@...

020 7833 4883



Email Disclaimers:



This email has been sent from the Cleft Lip and Palate Association
(CLAPA).  The information in this email is confidential and may be
legally privileged.  It is intended solely for the addressee(s).  Access
to this email by anyone else is unauthorised.  If you are not the
intended recipient, any disclosure, copying, distribution or any action
taken or omitted to be taken in reliance on it, is prohibited and may be
unlawful.



The contents of any attachment to this email may contain software
viruses, which could damage your own computer system.  While CLAPA has
taken every reasonable precaution to minimise this risk, we cannot
accept liability for any damage which you sustain as a result of
software viruses.  You are, however, advised to run your own virus check
before opening any attachments received





[Non-text portions of this message have been removed]

alright then. cheers for getting back to me.
Harriet




--- In leftclip@yahoogroups.com, "ruth_bchn" <ruth.buchanan@...>
wrote:
>
> Dear Harriet
>
> thanks - we've got the form and are just waiting for your referees
to
> write back to us and then we'll get back in touch to invite you to
a
> day to meet other volunteers and camp participants
>
> yours Ruth
>
> --- In leftclip@yahoogroups.com, "Hal" <halibutsrule@> wrote:
> >
> > hey ruth, i sent the application form for the junior helper, do
i
> get
> > anything back if so when?
> > Harriet
> >
>

Dear Harriet

thanks - we've got the form and are just waiting for your referees to
write back to us and then we'll get back in touch to invite you to a
day to meet other volunteers and camp participants

yours Ruth

--- In leftclip@yahoogroups.com, "Hal" <halibutsrule@...> wrote:
>
> hey ruth, i sent the application form for the junior helper, do i
get
> anything back if so when?
> Harriet
>

hey ruth, i sent the application form for the junior helper, do i get
anything back if so when?
Harriet

Oh God, you just reminded me! I was jumping up and down on my bed at the  age
of about 4 in a ballerina costume, singing: "I'm a little aeroplane, flap
your wings, flappy flappy flappy!" and I yelled "Sing it, Daddy!" and he said
"Maybe later, love." then the camera juddered a bit because I'd kicked him! I
kicked my poor old dad because he wouldn't sing a stupid song! You can tell
he's  a devoted dad though, because then he starts singing it!
On the same bit, I'm reading a Thomas the Tank Engine book, and I totally
made up the words! I was going on about Thomas breaking his leg (a train with
legs???) and having to have an operation in the hospital - very sweet, but
completely and utterly embarrassing!

Emma

xxx


[Non-text portions of this message have been removed]

Just a reminder, that there are still places on the CLAPA camps for
anyone aged between 9 and 16 with cleft lip and/or palate.

The camp in Scotland is from Friday 30th June to 3rd July and the camp
in Wales is from Tuesday 29th August to Friday 1st September

if you want to come along send me a line to ruth.buchanan@...

thanks - and I've sent messages to you if you've asked about the left
clip magaine

Ruth

Hi Emma

I know what you mean with Funny Video's my parents
don't have anything like that of us as babies or
anything but when i was in primary school it was my
grandparents Ruby Anni and my Great Grandpa's 90th and
at the house party for the 90th i was suppose to be
singing the 4 current buns only i was mostly talking
it with my gran and they have that on tape, my uncle
out it on a dvd OMG its embarrissing...ill burn that
before any future guy get to see that lol... Plus i
have all my old Dancing videos that will be just as
bad...

Laney


"Every Deaf Child Has a Voice"



___________________________________________________________
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yea i know what you mean, although with me i always think they're
staring at my nose. i have been thinking about getting it done, but
i dunno if it would really help, as then id still have the scar.
although only 1 of my mates has ever asked about it and thats just
cos they're curious. i have had little kids say stuff but its just
funny some time, the best one i got was "were you hit in the face
with a frying pan?" that one made me laugh out loud.
Anybody got any stories about having the lip/nose done?

Harriet


--- In leftclip@yahoogroups.com, limingqin kellie
<limingqinkellie@...> wrote:
>
>
>
> hi.susie,
>     i have the same feeling as you before,even sometimes now.when
i talk with people,i don't know what they said,i just think they
must be staring at my lip scar and difference from them.it's
annoying,but it's we ourselves that can help to get over this
psychological barrier.everything will be better.try diversing your
concentration on this problem and do something increasing
confidence.in fact,i also face this situation and try doing
something to make me feel better.
>
>
>   best with!
>
>
>   kelly
>
>
>   Susie <susiemurphyuk@...> wrote:
>   how are all you guys?
> I've been thinking about my lip heaps recently but I don't know
why!
> It's weird!! I just keep thinking that when im talking to people
thats
> all they are thinking about even though it probably isn't!
> oh well! Anyone else get like that? it's kinda making me nervous
to
> talk but its soo stupid of me!! think i might just need a break or
> something haha xx
> Susie x
>
>
>
>
>
>
>
> ---------------------------------
>   YAHOO! GROUPS LINKS
>
>
>     Visit your group "leftclip" on the web.
>
>     To unsubscribe from this group, send an email to:
>  leftclip-unsubscribe@yahoogroups.com
>
>     Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
> ---------------------------------
>
>
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>
> [Non-text portions of this message have been removed]
>

hi.susie,
     i have the same feeling as you before,even sometimes now.when i talk with
people,i don't know what they said,i just think they must be staring at my lip
scar and difference from them.it's annoying,but it's we ourselves that can help
to get over this psychological barrier.everything will be better.try diversing
your concentration on this problem and do something increasing confidence.in
fact,i also face this situation and try doing something to make me feel better.


   best with!


   kelly


   Susie <susiemurphyuk@...> wrote:
   how are all you guys?
I've been thinking about my lip heaps recently but I don't know why!
It's weird!! I just keep thinking that when im talking to people thats
all they are thinking about even though it probably isn't!
oh well! Anyone else get like that? it's kinda making me nervous to
talk but its soo stupid of me!! think i might just need a break or
something haha xx
Susie x







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---------------------------------




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[Non-text portions of this message have been removed]

hi,ruth
     i wonder how i can browse the magazine.020 7833 4883 is your phone number?

     best wish!

   kelly






   ruth_bchn <ruth.buchanan@...> wrote:
   Dear all

just a quick note to ask whether you had had a chance to look at the
new Left Clip and whether you had any comments to make on it?

we're in the process of putting the next one together and it would be
good to have feedback - and perhaps publish your opinions in there

thanks

Ruth

Ruth Buchanan
Volunteer Development Co-ordinator






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---------------------------------




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[Non-text portions of this message have been removed]

Hi everyone,

It's been very quiet round here recently, hasn't it?

I'm home alone until Thursday, but it's OK because I have my car - I was
home alone last year before I passed my test and it was hell! I had to get the
7.30am bus to college, but now I'm pretty much self-sufficient. My parents gave
  me £100 for food and stuff (they went away last Sunday) so I've been
stocking up  on food they don't like me having, such as doughnuts and Golden
Grahams!

I dug out a really funny video earlier, with footage of my mum changing my
nappy at the age of 4 months, and then my brother dived onto the bed next to me
  and practically suffocated me by giving me a huuuuuuuuuuge kiss! He was only
3  and had the blondest, curliest hair ever! Then there was footage of me in
my  buggy eating grapes. I'd nearly finished the grapes when I went cross-eyed
and  bright red - then I let out a sigh. I'd pooed my nappy on film! If my
dad ever  shows it to prospective husbands, I'm gonna kill him!!

Emma

xxx


[Non-text portions of this message have been removed]

HI! Ruth,    How could I get a copy of the Magazine?

ruth_bchn <ruth.buchanan@...> wrote:  what did you think of Left Clip,
Emma - and anyone else who's seen it?
Did you like the new style? any comments would be great

thanks to those who've got in touch asking for a copy - they'll be
winging their way to you

Ruth
>






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---------------------------------





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[Non-text portions of this message have been removed]

laney i got a new cam so i have pictures lol i will send them

Laney <cool_scottish_lass@...> wrote:
Hi Nicole,

Sorry i haven't been on in ages to talk to you, oh
good with getting the date set up, i bet you are
looking forward to that! i better get seeing pictures
of that.

Josh i am 22 years old.

Welcome Raven

"Every Deaf Child Has a Voice"



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[Non-text portions of this message have been removed]

Hi Nicole,

Sorry i haven't been on in ages to talk to you, oh
good with getting the date set up, i bet you are
looking forward to that! i better get seeing pictures
of that.

Josh i am 22 years old.

Welcome Raven

"Every Deaf Child Has a Voice"



___________________________________________________________
To help you stay safe and secure online, we've developed the all new Yahoo!
Security Centre. http://uk.security.yahoo.com

Hi! I'm Emma and I'm from Sussex, UK. I have a unilateral cleft lip and
palate. Does your child have a cleft? How old is he/she?

Emma

xxx


[Non-text portions of this message have been removed]

Hi! Im Olga im 23, married, an from Chicago. Also born
with a cleft palate. Wat part of Texas r u from?
--- leftclip@yahoogroups.com
<slavegoddess2369@...> wrote:
> 2 Let Everyone I Am From Texas 25 A Single Mom With
A
> Cleft
> --- leftclip@yahoogroups.com
> <joshuabennash@...> wrote:
> > how old ur you boys/girls
> >
> >
> > nicole Seaboy <newmom7_13_04@...> wrote:
> >   Finally got the date set for june 10th we are
> getting married whoooooooooohooooooooooooooooooooo
> >
> >
> > ---------------------------------
> > Yahoo! Mail
> > Use Photomail to share photos without annoying
> attachments.
> >
> > [Non-text portions of this message have been
> removed]
> >
> >
> >
> > ---------------------------------
> >   YAHOO! GROUPS LINKS
> >
> >
> >     Visit your group "leftclip" on the web.
> >
> >     To unsubscribe from this group, send an email
> to:
> >  leftclip-unsubscribe@yahoogroups.com
> >
> >     Your use of Yahoo! Groups is subject to the
> Yahoo! Terms of Service.
> >
> >
> > ---------------------------------
> >
> >
> >
> >
> >
> > ---------------------------------
> > To help you stay safe and secure online, we've
> developed the all new Yahoo! Security Centre.
> >
> > [Non-text portions of this message have been
> removed]
> >
>
>
>
> RAVEN
>
> __________________________________________________
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> Tired of spam?  Yahoo! Mail has the best spam
protection around
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2 Let Everyone I Am From Texas 25 A Single Mom With A
Cleft
--- leftclip@yahoogroups.com
<joshuabennash@...> wrote:
> how old ur you boys/girls
>
>
> nicole Seaboy <newmom7_13_04@...> wrote:
>   Finally got the date set for june 10th we are
getting married whoooooooooohooooooooooooooooooooo
>
>
> ---------------------------------
> Yahoo! Mail
> Use Photomail to share photos without annoying
attachments.
>
> [Non-text portions of this message have been
removed]
>
>
>
> ---------------------------------
>   YAHOO! GROUPS LINKS
>
>
>     Visit your group "leftclip" on the web.
>
>     To unsubscribe from this group, send an email
to:
>  leftclip-unsubscribe@yahoogroups.com
>
>     Your use of Yahoo! Groups is subject to the
Yahoo! Terms of Service.
>
>
> ---------------------------------
>
>
>
>
>
> ---------------------------------
> To help you stay safe and secure online, we've
developed the all new Yahoo! Security Centre.
>
> [Non-text portions of this message have been
removed]
>



RAVEN

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Silly Question How Do U Chat 2 Other Members Of This
Group Where Is Everyone From
--- leftclip@yahoogroups.com
<susiemurphyuk@...> wrote:
> haha yeh i found that out a few days ago! Quite
impressive :) :p x
>
> munchkin6991 <no_reply@yahoogroups.com> wrote:  Hi
Ruth
>
> My daughter was so impressed that one of the
pussycat dolls had a
> cleft. she took it to school;!
>
>
> --- In leftclip@yahoogroups.com, "ruth_bchn"
<ruth.buchanan@...> wrote:
> >
> > Dear all
> >
> > just a quick note to ask whether you had had a
chance to look at the
> > new Left Clip and whether you had any comments to
make on it?
> >
> > we're in the process of putting the next one
together and it would be
> > good to have feedback - and perhaps publish your
opinions in there
> >
> > thanks
> >
> > Ruth
> >
> > Ruth Buchanan
> > Volunteer Development Co-ordinator
> >
> > 020 7833 4883
> >
>
>
>
>
>
>
>
> ---------------------------------
>   YAHOO! GROUPS LINKS
>
>
>     Visit your group "leftclip" on the web.
>
>     To unsubscribe from this group, send an email
to:
>  leftclip-unsubscribe@yahoogroups.com
>
>     Your use of Yahoo! Groups is subject to the
Yahoo! Terms of Service.
>
>
> ---------------------------------
>
>
>
>
>
> ---------------------------------
> Win a BlackBerry device from O2 with Yahoo!. Enter
now.
>
> [Non-text portions of this message have been
removed]
>



RAVEN

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haha yeh i found that out a few days ago! Quite impressive :) :p x

munchkin6991 <no_reply@yahoogroups.com> wrote:  Hi Ruth

My daughter was so impressed that one of the pussycat dolls had a
cleft. she took it to school;!


--- In leftclip@yahoogroups.com, "ruth_bchn" <ruth.buchanan@...> wrote:
>
> Dear all
>
> just a quick note to ask whether you had had a chance to look at the
> new Left Clip and whether you had any comments to make on it?
>
> we're in the process of putting the next one together and it would be
> good to have feedback - and perhaps publish your opinions in there
>
> thanks
>
> Ruth
>
> Ruth Buchanan
> Volunteer Development Co-ordinator
>
> 020 7833 4883
>







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---------------------------------





---------------------------------
Win a BlackBerry device from O2 with Yahoo!. Enter now.

[Non-text portions of this message have been removed]

Hi Ruth

My daughter was so impressed that one of the pussycat dolls had a
cleft. she took it to school;!


--- In leftclip@yahoogroups.com, "ruth_bchn" <ruth.buchanan@...> wrote:
>
> Dear all
>
> just a quick note to ask whether you had had a chance to look at the
> new Left Clip and whether you had any comments to make on it?
>
> we're in the process of putting the next one together and it would be
> good to have feedback - and perhaps publish your opinions in there
>
> thanks
>
> Ruth
>
> Ruth Buchanan
> Volunteer Development Co-ordinator
>
> 020 7833 4883
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I'm 18. How old are you?

Emma

xxx


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how old ur you boys/girls


nicole Seaboy <newmom7_13_04@...> wrote:
   Finally got the date set for june 10th we are getting married
whoooooooooohooooooooooooooooooooo


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