ldnsupport : Messages : 2498-2508 of 2508

I am am sending a Facsimilie this morning to the following Four (4) "Undecided Democrats" whose Vote can Pass or "DEFEAT" this Bill on this Saturday:

Mary Landrieu LA

Fax 202-224-9735

Tel 202-224-4843

Ben Nelson NE

Fax 202-228-0012

Tel 202-224-6551

Evan Bayh IN

Fax 202-228-1377

TEl 202-224-5623

Blanche Lincoln AR

Faz 202-228-1371

Tel 202-224-4843

Why call them?

If this Health Care Death Bill is passed, it will result in the following and remember to ask if they READ THE BILL?

1. Rationing and Euthanasia!

2. Higher Taxes!

3. Higher Unemployment because of Health Care jobs lost and its affect of other business!

4. 500 BILLION DOLLAR CUT IN MEDICARE against SENIORS, and Medicaid!

5. Longer Delays in getting Appointments and Treatment!

6. Higher Medicare Deductions from Social Security!

7. Lost Private Health Care Providers!

8. Criminal Illegal Alien Locust Coverage after Amnesty!

9. Earmarks and Pork attached to the Bill!

10. It could mean your early DEATH or that of a Loved One! And much more!

Any Form of Health Care being considered in either the House or Senate Bill is nothing more or less than a grab for Control, Money, and More Power and Influence to make more Americans dependent upon Government thereby keeping them in Power! It is TYRANNY, NOT LIBERTY!

Both Legal Immigrants that have never really Assimilated into America, our History, Our ConstitutionalValues and the Blood Spilled to keep us FREE, and Criminal Illegal Alien's who do not belong here in the first place until Obama gives them Amnesty and Health Care, who are in this Country now are going to go with whomever offers them Free Rides from cradle to grave because that is the very essence of the mind set in the Country from which they came from!It is called SOCIAL BRIBERY FOR VOTES and POLITICS!

#2507

From: "tbayuk" <tbayuk@...>
Date: Fri Nov 20, 2009 2:33 pm
Subject: Fw: Obamacare summary

tmbayuk

Offline

----- Original Message -----

From: Marie Deady

To: Tom Bayuk ; Stephanie Snow ; Ruth Weir ; Peter Power ; Diane Steen ; amm@...

Sent: Friday, November 20, 2009 7:04 AM

Subject: Fw: Obamacare summary

----- Original Message -----

From: Susan Curran

To: ralph vogt ; martha Kauppinen ; Marie Deady ; earl kerr

Sent: Friday, November 20, 2009 5:38 AM

Subject: Fw: Obamacare summary

Wouldn't you know that Congress man will not be on this program....

Obama'S'care Health Program
If #1-#5 doesn't tick you off, Be sure to read from #6 on down.... it only get's worse
...and People are willing to accept this???

JW

> You can forward this to all of your email contacts. I think Judge Kithil hits everything right on the head,and the opposition you may encounter cannot argue over these points:
> JUDGE KITHIL wrote:
> "I have reviewed selected sections of the bill and find it unbelievable that our Congress, led by Speaker Nancy Pelosi, could come up with a bill loaded with so many wrong-headed elements.
> We do need to reform the health insurance system in America in order to make coverage affordable and available to everyone. But, how many of us believe our federal government can manage a new program any better than the bankrupt Medicare program or the underfunded Social Security program?
> "Both Republicans and Democrats are equally responsible for the financial mess of those two programs."I am opposed to HB 3200 for a number of reasons. To start with, it is estimated that a federal bureaucracy of more than 150,000 new employees will be required to administer HB3200. That is an unacceptable expansion of a government that is already too intrusive in our lives. If we are going to hire 150,000 new employees, let's put them to work protecting our borders, fighting the massive drug problem and putting more law enforcement/firefighters out there."
> NOW, here comes the good stuff:
> JUDGE KITHIL continued:  "Other problems I have with this bill include:
> 1) * Page 50/section 152: The bill will provide insurance to all non-U.S. residents, even if they are here illegally.
> *2) * Page 58 and 59:  The government will have real-time access to an individual's bank account and will have the authority to make electronic fund transfers from those accounts.
> 3) * Page 65/section 164: The plan will be subsidized (by the government) for all union members, union retirees and forcommunity organizations (such as the Association of Community Organizations for Reform Now - ACORN).
> 4) * Page 203/line 14-15: The tax imposed under this section will not be treated as a tax. (How could anybody in their right mind come up with that?)
> 5) * Page 241 and 253: Doctors will all be paid the same regardless of specialty, and the government will set all doctors' fees.
> 6) ** Page 272. section 1145: Cancer hospital will ration care according to the patient's age.7) * Page 317 and 321: The government will impose a prohibition on hospital expansion; however, communities may petition for an exception.
> 8) ** Page 425, line 4-12: The government mandates advance-care planning consultations. Those on Social Security will be required to attend an "end-of-life planning" seminar every five years.
> 9) ** Page 429, line 13-25: The government will specify which doctors can write an end-of-life order.
> HAD ENOUGH???? Judge Kithil then goes on:
> 10) " Finally, it is specifically stated this bill will not apply to members of Congress. Members of Congress are already exempt from the Social Security system and have a well-funded private plan that covers their retirement needs. If they were on our Social Security plan, I believe they would find a very quick "fix" to make the plan financially sound for the future."
> Honorable David Kithil Marble Falls , Texas
> All of the above should give you all the point blank ammo you need to support your opposition to Obamacare.   Please click on <Forward> and send this information on to all your email contacts.=============
>

Windows 7: It works the way you want. Learn more. =

--
“The only things that come to those who wait… Are the crumbs left behind by those who hustle”

#2506

From: "tbayuk" <tbayuk@...>
Date: Tue Nov 17, 2009 5:11 pm
Subject: Fw: Check out What the Inventor of the Flu Shot NOW Thinks of the Vaccine...

tmbayuk

Offline

Click here: What the Inventor of the Flu Shot NOW Thinks of the Vaccine...

----- Original Message -----

From: Cabbie54@...

To: Annod1001@... ; aazzolino@... ; tbayuk@... ; cbelluccio@... ; STEELRAINN@... ; pbelluccio@... ; Redshakespr@... ; Bueschberg@... ; jcoules@... ; Reno2430@... ; Acoma45@...

Sent: Tuesday, November 17, 2009 11:46 AM

Subject: Check out What the Inventor of the Flu Shot NOW Thinks of the Vaccine...

#2505

From: "tbayuk" <tbayuk@...>
Date: Mon Nov 16, 2009 9:09 pm
Subject: Fw: [mscured] Possible stop to Multiple Sclerosis could be just one trial away, however, pharmaceutical companies not interested

tmbayuk

Offline

----- Original Message -----

From: Rusty Patterson

To: mscured@yahoogroups.com

Sent: Monday, November 16, 2009 10:16 AM

Subject: [mscured] Possible stop to Multiple Sclerosis could be just one trial away, however, pharmaceutical companies not interested

A Utah woman is about to begin a medical journey that she hopes will save her life. Michelle Colledge has Multiple Sclerosis, a disease that causes paralysis, blindness, and sometimes death. Johns Hopkins is testing a new treatment for this debilitating disease that so far, is dramatically effective. Michelle Colledge has been accepted as part of the study of this new and very aggressive treatment.
Michelle was diagnosed on Valentines Day 2007. She says, “The only way to describe those first couple of months was absolute terror, and crying at night for several hours, and just thinking my life was over.” The young mother developed lesions on her brain and spine, her own immune system, charged with protecting her, had turned against her and become the enemy. Dr. Adam Kaplin, M.D. from Johns Hopkins explains; “What these people have, are these periods of time where their brains, spinal cords and their optic nerves are under attack .” He says no one knows why it happens, but doctors believe the immune system is tricked in reaction exposure to bacteria, viruses, or even a vitamin D deficiency.
Michelle can’t pinpoint a trigger for her MS, but she says each attack takes away the ability to live a normal life. “When I say attacks, I am not talking about, oh, I woke up and I wasn’t feeling well. I lost something. I would stop being able to walk, or I would lose my eyesight.” She has regained those abilities, but the MS has taken its toll on her balance, she has lost feeling in her hands, and they shake, making it difficult to hold objects, or her own daughter. “My daughter is four years old and I don’t know if she will ever know who her mom is. She may just see what the disease has left behind.”
But because Michelle’s MS is progressing so rapidly, there is new hope. She has been selected for a clinical trial that could dramatically change her life, and the lives of everyone battling Multiple Sclerosis. Johns Hopkins has found a way to erase a faulty immune system. Dr. Kaplin says it’s a little like what you do to a computer. “It resets the immune system. We think of it as kind of the control, alt, delete of the immune system.”
Michelle will undergo intense chemotherapy using a strong drug developed decades ago. Dr. Kaplin says “We use it at 14 thousand milligrams, in one treatment, over the course of four days.” And when it’s over Michelle’s old immune system will be gone, and so will her MS. “You watch the patients white blood cell count go to zero, and then something amazing happens, which is their cells start to repopulate and eventually the white blood cells come back to normal.”
Patients are given an additional medication that along with the chemo, puts them into long term remission. So far, out of 40 patients who have participated in the study, 90 percent have shown no signs of the disease one to three years after their treatment. For some, the symptoms of MS have also disappeared. “We had one individual who needed a walker to get around and he now runs five miles every morning.”
Michelle is nervous to begin the journey to living MS free, but she’s excited about what it will mean to her and her family, as well as others who battle the disease. “This is a chance for me and it should not stop with me.”
Unfortunately, it could. Michelle believes she is the last patient accepted into the second of Johns Hopkins clinical trials, and it may be the last. Dr. Kaplin says that although the first two trials were exceedingly promising, and no side effects were reported, outside of the usual reactions associated with Chemotherapy, there may be no more opportunity to test what could prove to be the cure for MS and other autoimmune disorders. “We need to do a randomized clinical trial, a much larger trial ,between 150 and 300 patients. It’s a very expensive process. We need 15 million dollars to get this done.”
Without the trial, there can be no FDA approval, and insurance companies will not cover the cost of the treatment. “We have gone to three different pharmaceutical companies and we have showed them the data, and asked them if they would be willing to get involved in this. We’ve had the same response from all of them. They all said it’s an amazing treatment, we have seen nothing like it, this might one day lead to a cure for MS, if we could refine it. They say its fabulous, but we don’t think we could recoup our investment, so it’s not for us.”
The problem Dr. Kaplin explains, is the drugs used in combination in this new treatment are decades old, cheap, and the patents have expired. This means, it is difficult for pharmaceutical companies to make a profit.
Johns Hopkins has started a grass roots campaign to try to raise the money.

[Non-text portions of this message have been removed]

#2504

From: "tbayuk" <tbayuk@...>
Date: Mon Nov 16, 2009 3:39 pm
Subject: Centers for Medicare and Medicaid Services,

tmbayuk

Offline

A Deathblow for Obamacare

Standing in the Rose Garden on November 7th, President Barack Obama celebrated the passage of the House health care bill claiming: �The Affordable Health Care for America Act is a piece of legislation that will provide stability and security for Americans who have insurance; quality, affordable options for those who don�t; and bring down the cost of health care for families, businesses, and our government, while strengthening the financial health of Medicare.�

Recent Entries

	Video: Pelosi Says Jail �Very Fair� Punishment For Not Buying Health Insurance

	Obama to Copenhagen but No Berlin?

	Obama�s Public Option for Gitmo

	President Obama�s Trade Failure

Quite a bold statement if true. But a report released Friday by the non-partisan and independent Centers for Medicare and Medicaid Services, the agency in charge of running Medicare and Medicaid, blows the lid off of every one of Obama�s claims. All of the following quotes are from the report itself:

Health Care Costs Increase: �In aggregate, we estimate that for calendar years 2010 through 2019 [national health expenditures (NHE)] would increase by $289 billion, or 0.8 percent, over the updates baseline projection that was released on June 29, 2009.� In other words, Obamacare bends the cost curve up, not down.

Millions Lose Existing Private Coverage: �However, a number of workers who currently have employer coverage would likely become enrolled in the expanded Medicaid program or receive subsidized coverage through the Exchange. For example, some smaller employers would be inclined to terminate their existing coverage, and companies with low average salaries might find it to their - and their employees� - advantage to end their plans � We estimate that such actions would collectively reduce the number of people with employer-sponsored health coverage by about 12 million.� In other words, Obamacare will cause millions of Americans to lose their existing private coverage.

Millions Pay Fines Yet Remain Uncovered: �18 million are estimated to choose not to be insured and to pay the penalty associated with the individual mandate. For the most part, these would be individuals with relatively low health care expenses for whom the individual or family insurance premium would be significantly in excess of the penalty and their anticipated health benefit value.� In other words, 18 million Americans will either face jail time or be forced to pay a new tax they will receive no benefit from.

Millions Lose Medicare Advantage: �Section 1161 of Division B of H.R. 3962 would set Medicare Advantage capitation benchmarks � We estimate that in 2014 when the MA provisions would be fully phased in, enrollment in MA plans would decreased by 64 percent (from its projected level of 13.2 million under current law to 4.7 million under the proposal).� In other words, 8.5 million seniors who currently get such services as coordinated care for chronic conditions, routine eye and hearing examinations, and preventive-care services would lose their existing private coverage.

Millions Placed on Welfare: �Of the additional 34 million who are estimated to be insured in 2019 as a result of H.R. 3962, about three-fifths (21 million) would receive Medicaid coverage due to the expansion of eligibility to those adults under 150 percent of the FPL.� In other words, more than half the people who gain health insurance will receive it through the welfare program Medicaid.

Seniors Access to Care Jeopardized: �H.R. 3962 would introduce permanent annual productivity adjustments to price updates for institutional providers� Over time, a sustained reduction in payment updates, based on productivity expectations that are difficult to attain, would cause Medicare payment rates to grow more slowly than and in a way that was unrelated to, the providers� costs of furnishing services to beneficiaries. Thus, providers for whom Medicare constitutes a substantive portion of their business could find it difficult to remain profitable and might end their participation in the program (possibly jeopardizing access to care for beneficiaries).� In other words, the Medicare cuts in the House bill are so out of touch with reality that hospitals currently serving Medicare patients might be forced to stop doing so. Thus making it much more difficult for seniors to get health care.

Poor�s Access Problems Exacerbated: �In practice, supply constraints might interfere with providing the services by the additional 34 million insured persons. �providers might tend to accept more patients who have private insurance (with relatively attractive payment rates) and fewer Medicaid patients, exacerbating existing access problems for the latter group.� In other words, those 21 million people who are gaining health insurance through Medicaid are going to have a very tough time finding a doctor who will treat them.

Reacting in part to Friday�s CMS report, Robert J. Samuelson writes in today�s Washington Post:

The disconnect between what President Obama says and what he�s doing is so glaring that most people could not abide it. The president, his advisers and allies have no trouble. But reconciling blatantly contradictory objectives requires them to engage in willful self-deception, public dishonesty, or both.

There is a reason why as more Americans learn about Obamacare, the less popular it gets.

QUICK HITS

#2503

From: jaynelcrocker <jaynelcrocker@...>
Date: Mon Nov 16, 2009 12:34 am
Subject: RE: 10 Downing Street petition update - OT

jaynecrocker64

Offline

Thank you Lynne, I appreciate this.

Best wishes,

Jayne

Jayne Crocker

Chairperson, LDNNow

tel: +44 (0) 7877 492 669

www.ldnnow.com <- click on petition link to support LDN as a front line treatment

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube.com/watch?v=CVpjsDK0LPA

From: ldnsupport@yahoogroups.com [mailto:ldnsupport@yahoogroups.com] On Behalf Of Lynne McCormick
Sent: 15 November 2009 21:48
To: ldnsupport@yahoogroups.com
Subject: Re: [ldnsupport] 10 Downing Street petition update - OT

Thanks for the update. I had been searching in vain for that info. Both my daughters are expats abroad and have passed on the word. Wow! Hope plus perseverence is the way to go!

On Sun, 15 Nov 2009 17:44 GMT jaynelcrocker wrote:

>Hi folks,
>
>
>
>I hope you don't mind me giving you a quick update on how we're fairing up
>with the above. As of to date we have 12,143 signatures!
>
>
>
>This is largely down to the whole LDNNow team and what a great support
>network we have. Everyone has their different ways/methods/talents of
>raising awareness and getting the word out there about our campaign. The
>support we've received from the yahoo groups (who reside in/outside of the
>UK) who know many who live overseas who can sign and have passed the link on
>for them to do so is so very much appreciated.
>
>
>
>We still have one week to go so if any of you know of anyone who can help
>with adding their name to our petition I would be grateful. To get over
>12,000 British citizens sign the petition to 10 Downing Street in 12 months
>I feel is a real achievement and stands us in very good ground to get the
>Govt to sit up and listen to the 'first do no harm' approach. Having Dr
>Chris Steele MBE (UK Celebrity Dr) has helped our cause tremendously as what
>this has achieved is getting the interest of a lot of MPs, MSPs, MEPs and
>AMs to put the pressure on NICE (National Institute Clinical of Excellence)
>who are able to sanction the use of LDN on the NHS here in the UK - and the
>money go towards further research (they are an independent body of the
>Govt).
>
>
>
>Because of the success of the number of signatures we have, we are now able
>to work with universities to do the research for us and this is in the
>pipeline.
>
>
>
>We keep moving our goal posts and would now love to get to 12,500 so if any
>of you know a British Citizen (expat or living in the UK), please ask them
>to go to www.ldnnow.com and click on the petition link.
>
>
>
>Thanks in advance and as a PS - the European Parliament has accepted our
>petition for LDN to be made available as front line treatment (it took them
>5 months of meetings in order to achieve this) so as soon as the link is
>available, I will be asking all Europeans to help support this important
>petition as this is more of a human rights issue, rather than anything else.
>
>
>
>Best,
>
>Jayne
>
>Jayne Crocker
>
>Chairperson, LDNNow
>

#2502

From: Lynne McCormick <lynne4cobis@...>
Date: Sun Nov 15, 2009 9:48 pm
Subject: Re: 10 Downing Street petition update - OT

lynne4cobis

Offline

Thanks for the update. I had been searching in vain for that info. Both my
daughters are expats abroad and have passed on the word. Wow! Hope plus
perseverence is the way to go!

On Sun, 15 Nov 2009 17:44 GMT jaynelcrocker wrote:

>Hi folks,
>
>
>
>I hope you don't mind me giving you a quick update on how we're fairing up
>with the above.  As of to date we have 12,143 signatures!
>
>
>
>This is largely down to the whole LDNNow team and what a great support
>network we have.  Everyone has their different ways/methods/talents of
>raising awareness and getting the word out there about our campaign.  The
>support we've received from the yahoo groups (who reside in/outside of the
>UK) who know many who live overseas who can sign and have passed the link on
>for them to do so is so very much appreciated.
>
>
>
>We still have one week to go so if any of you know of anyone who can help
>with adding their name to our petition I would be grateful.  To get over
>12,000 British citizens sign the petition to 10 Downing Street in 12 months
>I feel is a real achievement and stands us in very good ground to get the
>Govt to sit up and listen to the 'first do no harm' approach.  Having Dr
>Chris Steele MBE (UK Celebrity Dr) has helped our cause tremendously as what
>this has achieved is getting the interest of a lot of MPs, MSPs, MEPs and
>AMs to put the pressure on NICE (National Institute Clinical of Excellence)
>who are able to sanction the use of LDN on the NHS here in the UK - and the
>money go towards further research (they are an independent body of the
>Govt).
>
>
>
>Because of the success of the number of signatures we have, we are now able
>to work with universities to do the research for us and this is in the
>pipeline.
>
>
>
>We keep moving our goal posts and would now love to get to 12,500 so if any
>of you know a British Citizen (expat or living in the UK), please ask them
>to go to www.ldnnow.com and click on the petition link.
>
>
>
>Thanks in advance and as a PS - the European Parliament has accepted our
>petition for LDN to be made available as front line treatment (it took them
>5 months of meetings in order to achieve this) so as soon as the link is
>available, I will be asking all Europeans to help support this important
>petition as this is more of a human rights issue, rather than anything else.
>
>
>
>Best,
>
>Jayne
>
>Jayne Crocker
>
>Chairperson, LDNNow
>

#2501

From: Lynne McCormick <lynne4cobis@...>
Date: Sun Nov 15, 2009 9:48 pm
Subject: Re: 10 Downing Street petition update - OT

lynne4cobis

Offline

Thanks for the update. I had been searching in vain for that info. Both my
daughters are expats abroad and have passed on the word. Wow! Hope plus
perseverence is the way to go!

On Sun, 15 Nov 2009 17:44 GMT jaynelcrocker wrote:

>Hi folks,
>
>
>
>I hope you don't mind me giving you a quick update on how we're fairing up
>with the above.  As of to date we have 12,143 signatures!
>
>
>
>This is largely down to the whole LDNNow team and what a great support
>network we have.  Everyone has their different ways/methods/talents of
>raising awareness and getting the word out there about our campaign.  The
>support we've received from the yahoo groups (who reside in/outside of the
>UK) who know many who live overseas who can sign and have passed the link on
>for them to do so is so very much appreciated.
>
>
>
>We still have one week to go so if any of you know of anyone who can help
>with adding their name to our petition I would be grateful.  To get over
>12,000 British citizens sign the petition to 10 Downing Street in 12 months
>I feel is a real achievement and stands us in very good ground to get the
>Govt to sit up and listen to the 'first do no harm' approach.  Having Dr
>Chris Steele MBE (UK Celebrity Dr) has helped our cause tremendously as what
>this has achieved is getting the interest of a lot of MPs, MSPs, MEPs and
>AMs to put the pressure on NICE (National Institute Clinical of Excellence)
>who are able to sanction the use of LDN on the NHS here in the UK - and the
>money go towards further research (they are an independent body of the
>Govt).
>
>
>
>Because of the success of the number of signatures we have, we are now able
>to work with universities to do the research for us and this is in the
>pipeline.
>
>
>
>We keep moving our goal posts and would now love to get to 12,500 so if any
>of you know a British Citizen (expat or living in the UK), please ask them
>to go to www.ldnnow.com and click on the petition link.
>
>
>
>Thanks in advance and as a PS - the European Parliament has accepted our
>petition for LDN to be made available as front line treatment (it took them
>5 months of meetings in order to achieve this) so as soon as the link is
>available, I will be asking all Europeans to help support this important
>petition as this is more of a human rights issue, rather than anything else.
>
>
>
>Best,
>
>Jayne
>
>Jayne Crocker
>
>Chairperson, LDNNow
>

#2500

From: jaynelcrocker <jaynelcrocker@...>
Date: Sun Nov 15, 2009 5:44 pm
Subject: 10 Downing Street petition update - OT

jaynecrocker64

Offline

Hi folks,

I hope you don’t mind me giving you a quick update on how we’re fairing up with the above. As of to date we have 12,143 signatures!

This is largely down to the whole LDNNow team and what a great support network we have. Everyone has their different ways/methods/talents of raising awareness and getting the word out there about our campaign. The support we’ve received from the yahoo groups (who reside in/outside of the UK) who know many who live overseas who can sign and have passed the link on for them to do so is so very much appreciated.

We still have one week to go so if any of you know of anyone who can help with adding their name to our petition I would be grateful. To get over 12,000 British citizens sign the petition to 10 Downing Street in 12 months I feel is a real achievement and stands us in very good ground to get the Govt to sit up and listen to the ‘first do no harm’ approach. Having Dr Chris Steele MBE (UK Celebrity Dr) has helped our cause tremendously as what this has achieved is getting the interest of a lot of MPs, MSPs, MEPs and AMs to put the pressure on NICE (National Institute Clinical of Excellence) who are able to sanction the use of LDN on the NHS here in the UK – and the money go towards further research (they are an independent body of the Govt).

Because of the success of the number of signatures we have, we are now able to work with universities to do the research for us and this is in the pipeline.

We keep moving our goal posts and would now love to get to 12,500 so if any of you know a British Citizen (expat or living in the UK), please ask them to go to www.ldnnow.com and click on the petition link.

Thanks in advance and as a PS – the European Parliament has accepted our petition for LDN to be made available as front line treatment (it took them 5 months of meetings in order to achieve this) so as soon as the link is available, I will be asking all Europeans to help support this important petition as this is more of a human rights issue, rather than anything else.

Best,

Jayne

Jayne Crocker

Chairperson, LDNNow

#2499

From: "tbayuk" <tbayuk@...>
Date: Wed Nov 11, 2009 3:16 pm
Subject: Very Important Info

tmbayuk

Offline

www.copingandprevailing.com

I have been diagnosed with MS since 1984 and have done very well utilizing vitamins, minerals, exercise, stretching Etc...No drugs ever except for 4.5mg. of LDN. I do use a wheelchair because of spasms in my legs. Thankfully I do not have and have never had any other problems.

I am on Medicare and was fortunate enough to have a "Power Chair" delivered to me last night. This chair is an absolute Godsend and is truly a life changing treasure.

The supplier is a specialist in these matters. He told me that the new proposed healthcare bill will NOT allow for ownership of these chairs to any individidual. That is a disgusting and hidden in the 1,900 page bill. Everyone with a disability or potential disability needs to know this.

I have written three books about MS as most of you know and given away several thousand..this will definitely be in my fourth.

Best Regards and wishes,

Tom Bayuk

#2498

From: jaynelcrocker <jaynelcrocker@...>
Date: Sun Nov 8, 2009 7:27 pm
Subject: RE: [lowdosenaltrexone] Another group that won't allow people to talk about LDN!

jaynecrocker64

Offline

Sherri, I’ve sent you studies and references to send to him. This will keep him very busy and tell him not to be so ignorant to delete a post without him doing his research first! Didn’t I read somewhere that the NMSS in the USA finally post something ‘favourable’ towards LDN? He could do with this reminder seeing as he’s so ‘pro’ MS Society. FYI, my letter to the MS Society, feel free to use whatever you want, he could do with understanding MS and LDN http://groups.google.com/group/alt.support.mult-sclerosis/msg/7032aa89e210cf40

I got a response to the above which just said ‘Thank you for your letter’, and that was it. I also told them that if we want a journalist to contact any charity regarding MS it will be the MSRC here in the UK, not the MS Society.

Jayne

Jayne Crocker

Chairperson, LDNNow

tel: +44 (0) 7877 492 669

www.ldnnow.com <- click on petition link to support LDN as a front line treatment

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube.com/watch?v=CVpjsDK0LPA

From: lowdosenaltrexone@yahoogroups.com [mailto:lowdosenaltrexone@yahoogroups.com] On Behalf Of Sherri White
Sent: 08 November 2009 18:42
To: LDN_Users@yahoogroups.com; lowdosenaltrexone@yahoogroups.com; LDN Support
Subject: [lowdosenaltrexone] Another group that won't allow people to talk about LDN!

Hi, everyone!

If you use Facebook, this might apply to you. If not, please disregard.

I belong to several MS and LDN groups on Facebook. Stan Lawrence actually sent me a request to be his friend. He has approximately 1,200 friends on the site with MS. Each day he posts many, many stories (with the person's picture) about needing advice, hugs, words of encouragement, etc. Yesterday he posted a story about Kathy, who just recently lost her health insurance and is no longer able to take Rebif. Everyone was telling her how sorry they were and to call the NMSS to get assistance for her drug coverage. There was one comment, however, that suggested she look into LDN. So I chimed in and agreed with that person. I said something to the effect about how it's done wonders for me and that I had tried Avonex, Copaxone and Tysabri. I gave Kathy a couple of links to check out and told her that if I was still working as a nurse, I would recommend my patients talk to their doctors about it if they had an autoimmune disease.

Last night when I returned home and checked my e-mail, I was notified by Stan that he deleted my comment. Here's the e-mail exchange between the two of us (rather long, sorry guys):

im deleting your comment today because you are giving professional advice because u r a nurse.

Between You and Stan Lawrence

Stan Lawrence November 7 at 2:02pm Report

please do not post anything more about ldn until you have sent me a study that backing up your claims...so that I can read more about it. I do not normally let anyone post things about treatments that are not FDA approved...but I will if you can send me some research that...at least...the MS Society agrees with..

stan

Sherri Shelton White November 7 at 11:08pm

Stan,

UCSF did a small study in 2007 that was funded by patients. It was conducted by Dr. Cree, who is a neurologist in their multiple sclerosis center. Here's a link to his study: http://painsandiego.files.wordpress.com/2009/05/ldn-in-ms-bruce-cree-md_-2008-ucsf-poster.pdf and here's information from the National Multiple Sclerosis Society on the same study: http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=148. Here's a site that discusses clinical trials past, present and in the future: http://lowdosenaltrexone.org/ldn_trials.htm.

UCSF is in the process of applying for a grant through the NMSS to conduct a larger study on LDN. This is according to the director of the UCSF MS Center, Dr. Doug Goodin, who I see. He is also the one who believes I should stay on LDN and not go back on any of the other disease-modifying drugs because LDN WORKS!

There's a lot of information out there for you to read, Stan. All you have to do is read and click on the links I sent Kathy. In case you have deleted them and don't remember, they are: http://www.ldninfo.org and http://www.ldn-help.com. LDN is not quackery, it does work and there are many people out there who have been helped by it. Once again, read testimony on the links above.

As far as talking about medications that are not FDA-approved, you have to be careful about that, Stan. What about people who use neurontin off-label for trigeminal neuralgia? Neurontin is approved for seizures. Are you going to ban comments because someone talked about that? What about using Hytrin off-label for neurogenic bladder dysfunction when it's supposed to be used for high blood pressure? See where I'm going on this? Here’s a link to off-label medications: http://en.wikipedia.org/wiki/Off-label_use.

As a nurse, I can't prescribe LDN but I can encourage and empower my patients with good information so that he or she can talk to a doctor. I wasn't giving professional advice! I'm actually insulted and mad. Why couldn't you have made your own post under mine asking for additional links or information to follow up my claims instead of deleting it? That way, everyone who commented under that link, including Kathy, might have additional information. Pathetic!!

I just find it interesting that it's ok for the Big Pharma medications to be talked about, but it's not ok for off-label or non FDA-approved drugs to be mentioned.

Sherri