Hello dear list members,

First, thank you, Dudley, for starting this list - another extension
of all the good work you do.

My husband, Kelly (72 years of age) is known to have had chronic
lymphocytic leukemia 4 years and suspected of having CLL
approximately 1 1/2 years prior to that. His markers - ZAP-70, CD38,
and mutation status - are all strongly positive, indicating the
likelihood of aggressive disease. The median life expectancy for
someone having those markers is 5 years ..... We decided that that
was not a prediction we cared to be a part of. And so we won't be.

From the get-go, we made positive diet changes, added suppliments
known to impact cancer and have tried to weaken cancer's hold from
several directions - hoping to confuse the enemy, if not do more.
Just shortly after Kelly's diagnosis, he was told that he would need
chemo within a year. Soooo, we looked for a trial that was "kinder
and gentler", one which wouldn't depress bone marrow function.

When lo and behold the MyVax vaccine trial became available! No bone
marrow depression issues, just some flu-like issues. 16 injections
within 1 year. Kelly was accepted in to the trial but didn't seem to
be able to rally an immune response to the vaccine as strongly as
were many of the other participitants. After all, by definition, CLL
is a disease of the immune system.

Then out of the blue someone on the cancercured list mentioned LDN.
After loads of research and help from the members of two different
LDN lists, we found a physician who prescribed LDN 4.5mg for Kelly.
Kelly has not been taking LDN quite 2 months (no side effects), but
already there have been some changes. Things seem to be slowly
moving backward. His nodes are decreasing in size, and his lab
numbers are slowly dropping - and boy oh boy do they ever have a
loooong way to drop.

I don't expect the process to be rapid in the least. Kelly is quite
an ill man. Still, I don't feel him slipping away from me anymore -
my sweetheart. I feel so blessed to have found LDN and so many of
the various LDN list members.

I probably won't post frequently, as I expect changes will occur
slowly. But I will keep the list updated as events evolve.

As an aside, I just started taking LDN, myself, 2 nights ago - and no
side effects! No, I don't have any known illnesses. I'm mearly
taking LDN as a preventative, 3 mg per night.

My warmest wishes to all of you,

Jan