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klippelfeilsupport · Klippel-Feil Syndrome Support

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Group Information

  • Members: 378
  • Category: Back and Spine
  • Founded: Feb 9, 2004
  • Language: English
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241 New Messages

Description

I have searched far and wide for a discussion group for KFS and have had no luck, so I am starting my own. My daughter was just diagnosed finally at the age of 13. I have spent countless hours on this computer and in the library researching. I am also looking for doctors and she is participating in a genetic research study in Australia. If you or someone you know is affected by this rare disorder and need somewhere to talk about it and compare notes, I hope this will be the place. We need somewhere to communicate and share. 2/12/04 I have posted Tabitha's history in the files that will be sent to you when you become a member to let you know where we are in our struggle and what we have learned along the way.
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2013 1048 897 940 800 653
2012 123 164 126 72 86 80 93 77 45 53 478 954
2011 93 83 86 183 267 227 218 294 275 318 197 106
2010 58 11 16 18 18 10 41 12 32 93 75 83
2009 255 151 29 16 77 98 90 31 62 164 103 88
2008 147 43 66 41 125 81 100 97 85 67 20 32
2007 20 38 22 148 29 56 8 23 46 75 75 18
2006 23 19 26 9 64 71 99 11 15 24 7 27
2005 4 16 7 9 11 8 8 2 14 10
2004 33 1 2 10 9 23 3

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