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Re: [kids_with_epilepsy] HI all   Message List  
Reply | Forward Message #80 of 304 |
Re: [kids_with_epilepsy] HI all

At 12:36 PM 8/14/00 EDT, you wrote:
>I do know what this is like. It is hard to watch our kids having seizures.
>Just try to hang on. Dealing with Michaels brain damage ALONE can be very
>draining - it can be a very very emotional situation that not many people
can
>understand. It really does take a special person to raise a special needs
>child. I am not sure what to say about your husband,
It could very well be my hubby's way of dealing with things.

I have seen him take care of her a lot lately just guess it took me
getting sick too to kick in his father instincts lol

>
>After I was diagnosed with epilepsy my father went through turmoil. He had
>epilepsy also and the guilt of the whole thing just tore him up on the
>inside.

with Us basically Mark put her on top the roof of our Toyota truck I said
not to put her up there I was afraid she would fall He thought he knew what
was best I no more heard that from him and she fell.
he has kicked himself in the rear since then.



>child---my expieriance equipped me with tools that I would need later.

>Have you looked into support groups in your area?

we were in one but all I heard was brain surgery and this group was not
open to other alternitives to seizures than the brain surgery. And I felt
out of place cause I knew my daughter could not have that surgery.


There are LOTS of them
>around here that I attend. Reach out for support---it's there!

Yes I will have to find another one but now with hubby working 2nd shift
that might get harder especially when I do not drive.



Lisa , shushanna(Shanna)
And Shushanna's Chocolate Chip (mr C.C.)
Mysterling




Mon Aug 14, 2000 11:16 pm

mysterling@...
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Message #80 of 304 |
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I do know what this is like. It is hard to watch our kids having seizures. Just try to hang on. Dealing with Michaels brain damage ALONE can be very draining...
chrisypots@...
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Aug 14, 2000
4:36 pm

... can ... It could very well be my hubby's way of dealing with things. I have seen him take care of her a lot lately just guess it took me getting sick too...
lisa wilson
mysterling@...
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Aug 14, 2000
11:15 pm
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