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Re: [kids_with_epilepsy] HI all   Message List  
Reply | Forward Message #79 of 304 |
I do know what this is like. It is hard to watch our kids having seizures.
Just try to hang on. Dealing with Michaels brain damage ALONE can be very
draining - it can be a very very emotional situation that not many people can
understand. It really does take a special person to raise a special needs
child. I am not sure what to say about your husband,

After I was diagnosed with epilepsy my father went through turmoil. He had
epilepsy also and the guilt of the whole thing just tore him up on the
inside. He blamed himself & wouldn't even talk to me about anything for a
long time. He told me this one day--I asked him why he would never talk to
me about this. "I feel so very guilty Christine, I feel like it is my fault
that you have epilepsy". I cried--he cried EVERYBODY cried. I never once
thought he may feel this way. NOT ONCE did I ever blame him BUT I could
understand why he would feel this way

what a day that was! I have to say honestly though---I think my situation
with the epilepsy kind of prepared me for what lie ahead with my own
child---my expieriance equipped me with tools that I would need later.

Have you looked into support groups in your area? There are LOTS of them
around here that I attend. Reach out for support---it's there! Don't be
afraid of ignorance--I know it is out there--but don't stop living because of
it. You watch--things will get better........Sometimes it's not the child
that needs to change-----it's us.
I hope you write back soon
Christine Ford



Mon Aug 14, 2000 4:36 pm

chrisypots@...
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Message #79 of 304 |
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I do know what this is like. It is hard to watch our kids having seizures. Just try to hang on. Dealing with Michaels brain damage ALONE can be very draining...
chrisypots@...
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Aug 14, 2000
4:36 pm

... can ... It could very well be my hubby's way of dealing with things. I have seen him take care of her a lot lately just guess it took me getting sick too...
lisa wilson
mysterling@...
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Aug 14, 2000
11:15 pm
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