**
Friends,
I recived the email posted below tonight (I have removed the person's
name and email address for privacy). Please read it. It affects all
people concerned with epilepsy. If anyone has any sugestions of what
WE can do to help please email them to me at
tedbergeron@.... Perhaps the Epilepsy Circle of Support
should become more involved in the mattter that his letter discloses.
I believe in using positive influences to resolve all matters and I
would appreciate any ideas and help that this group
might offer. Our slogan has always been "Together we will make this a
better world or all", and now I need your ideas and help to try to
accomplish this.
Thanks
Ted Bergeron
webmaster Epilepsy Circle of Support
http://members.tripod.com/~Ted_Bergeron/epilepsyhome.html



I'M 29 YEARS OLD AND I'M EPILEPTIC (OR AT LEAST, THEY SAY SO).

I DON'T KNOW MUCH ABOUT THIS SICKNESS BECAUSE IN MY COUNTRY IT'S THE
SAME THING TO HAVE AIDS OR TO HAVE EPILEPSY: NOBODY GETS CLOSE TO YOU
FOR IF THEY CAN BE INFECTED. SO SINCE I WAS DECLARED "SICK" I'VE BEEN
SUFFERING PSICHOLOGICALLY, BECAUSE I'M CLOSED IN A "BOX" CALLED HOME
AND I CAN'T DO ANYTHING BECAUSE I CAN "FALL". I CAN'T EVEN SAY THE
VERB "FALL" BECAUSE EVERYONE THINKS I'VE HAD A CONVULSION.

SO TONIGHT, WHILE "SURFING" IN THE NET, I FOUND YOUR PAGE AND I
DECIDED TO ASK YOU FOR YOUR HELP. I NEED TO KNOW MORE ABOUT THIS
SICKNESS, BUT MOST OF ALL AND MORE IMPORTANT, I NEED TO KNOW HOW TO
EXPLAIN EVERYONE AROUND ME THAT THE CAN TOUCH ME OR HUGH ME OR KISS
ME WITHOUT BEING "INFECTED". AND THAT I CAN HAVE A NORMAL LIFE
WITHOUT LIVING WITH THE FEAR OF A "FALL".

I'LL BE SO GLAD IF WE CAN START "TALKING" BECAUSE AT LEAST I'D LOVE
TO KNOW ABOUT IT TO KNOW HOW TO LIVE WITH MYSELF. I JUST DREAM OF A
NORMAL LIFE BUT AS LONG AS I STILL BE FULL OF DOUBTS THIS "NORMAL
LIFE" I DREAM OF, WILL NEVER BE A REALITY.

HOPING TO HEAR FROM YOU, I REMAIN.

THANKS A LOT FOR YOUR TIME.