Hello everyone. Been quiet for a while because I've been in and out of the hospital system. Ihad a hysterectomy due to cancer. I'm going bald. Well, have a...
229
angieshealinghands
angieshealin...
Dec 20, 2006 11:12 pm
... Hi ann, hope your doing a little better Know that through christ we can face our greatest fears know that I will defently pray for your health , just...
230
sandi king
mumbo_3155
Dec 22, 2006 5:51 am
Hi Ann, I hope things are looking up for you now, and the danger is over for you. Merry Christmas to you and the rest of this group. Love Sandi & Aaron ... ...
231
KimBeWavn@...
sugrbritches247
Dec 22, 2006 1:39 pm
In a message dated 12/22/2006 12:55:22 A.M. Eastern Standard Time, mumbo_3155@... writes: Hello everyone. ... So sorry to hear that you've been going...
232
Thomas Müller
nightowl_muc
Dec 24, 2006 5:08 am
Hi KFS! You have received a digital postcard from Thomas Müller! The title of the postcard is: Merry Christmas To pick up your postcard, you have 2 choices: ...
233
KimBeWavn@...
sugrbritches247
Dec 24, 2006 4:57 pm
What a beautiful card Thomas , Thank you! I wish everyone who celebrates this holiday, a safe & joyous one. Take care ~ Kimberly in North Carolina...
234
Jason & Andrea Thomson
jasand2005
Dec 25, 2006 12:47 am
Hi everyone, Merry Christmas from Australia!!! WE have a beautiful 31 degrees Celsius here today (pretty good considering we've had up to 41 C before)....
235
jeanawinegard
Dec 30, 2006 2:17 am
my 26 yr old daughter was diagnosed at age 5, now she 7+ mos pregnant, and Im worried sick, her ob read up on kfs,.Does anyone know any kfs girls having...
236
KimBeWavn@...
sugrbritches247
Dec 30, 2006 2:59 am
Hi Jean & welcome to the group! I can understand your concern about your daughter's pregnancy, but many KFS girls have successful pregnancies & very healthy...
237
NightOwl
nightowl_muc
Dec 31, 2006 4:06 am
Hi KFS! You have received a digital postcard from NightOwl! The title of the postcard is: Happy New Year To pick up your postcard, you have 2 choices: 1. Click...
238
KimBeWavn@...
sugrbritches247
Dec 31, 2006 5:02 am
Thank you Thomas, Happy New Year to you too & I hope everyone has a wonderful healthy New Year also. Take care ~ Kimberly in North Carolina...
239
Jason & Andrea Thomson
jasand2005
Jan 1, 2007 3:02 am
Thomas, Your cards are amazing to view. Thanks for your wishes. Already New Years Day and I have broken my 2 resolutions already... Everyone have a marvelous...
240
Shirley Qureshi
mr_mrs_ali
Jan 10, 2007 12:49 am
hey, she will be okay...i had two children and we all are fine shirley ... _________________________________________________________________ Express yourself...
241
myjimmyjam
Jan 10, 2007 12:51 am
My son is 13y, and was diagnosed w/KFS as a toddler. We were monitoring his prognosis for all this time. I've learned to accept that "it is what it is". He...
242
jeanawinegard
Jan 11, 2007 1:31 pm
... pregnant, ... kfs ... anyone ... FREE!...
243
Shelly Lorenzen
shellylorenzen
Jan 11, 2007 11:54 pm
Ann, If you would like a second opinion you are really close to the surgeon that we use. His name is Dr. Randal Betz and he is Chief of staff at Shriner's ...
244
AnnMarie Allen
myjimmyjam
Jan 12, 2007 5:00 am
Thank you for your response. We have seen a doctor at Shriner's also. His name is Dr. Guille. We first saw Dr. Guille at Dupont, and followed him to...
245
Erin
wi_hockeylover
Feb 17, 2007 11:45 pm
Hi everyone, my name is Erin. I am 24 years old and I just got diagnosed with KFS and just went through cervical fusion of c1 through c3. Wanted to see if...
246
KimBeWavn@...
sugrbritches247
Feb 18, 2007 1:28 am
Hi Erin & welcome to the group! My name is Kimberly & i am happily married & was diagnosed at birth with KFS, you couldn't miss mine lol ( still can't lol...
247
Jason & Andrea Thomson
jasand2005
Feb 18, 2007 3:38 am
Hi Erin, My name is Andrea & my kfs is almost exactly the same!! I was finally told at 30 what my problem was and had C3 and C4 fused. My hands were weird in...
248
snippylindsay
Mar 6, 2007 4:09 am
Hello I'm mum to Jessica who was diagnosed with klippel Feil the other day. She had been under suspcision since her birth for having a syndrome of some sort as...
249
KimBeWavn@...
sugrbritches247
Mar 6, 2007 3:52 pm
In a message dated 3/5/2007 11:14:36 P.M. Eastern Standard Time, rlindsay@... writes: Hello I'm mum to Jessica who was diagnosed with klippel Feil the...
250
Shirley Qureshi
mr_mrs_ali
Mar 8, 2007 1:19 am
hello, were do you live at? maybe i can help you finding a dr. there are alot of people here with little ones that are using dr menezes, for their children but...
251
Rachel Lindsay
snippylindsay
Mar 8, 2007 8:57 am
Hi Kimberly Thanks very much for your post. Its good to hear from someone like yourself whose seems to have been through quite a bit with surgeries etc and is...
252
KimBeWavn@...
sugrbritches247
Mar 8, 2007 2:23 pm
In a message dated 3/8/2007 4:04:11 A.M. Eastern Standard Time, rlindsay@... writes: With KFS, i.e does it cause short stature? I don’t see anything...
253
Jennifer Carleton
carletonjenn...
Mar 8, 2007 2:30 pm
Rachel, My name is Jennifer and my daughter Kaitlyn age 10 has KFS. When she was born I knew something was different about her since she is my 3rd child, when...
254
Rachel Lindsay
snippylindsay
Mar 8, 2007 5:29 pm
Hello Jennifer, It sounds like you've been through all looking for a name for your childs condition and it taking years to get one, is is a very tough process,...
255
Rachel Lindsay
snippylindsay
Mar 8, 2007 6:32 pm
Hello Shirley Thanks for replying to my post, we live in Ireland, Jessica is seeing and orthopedic consultant who is supposed to specialize in this area. He is...
256
Hennie Mommersteeg
h.mommersteeg
Mar 13, 2007 4:11 am
hello I am the mother of Michelle age 12 with KFS. Also sprengel and torticollis. We were told that surgery concerning Sprengel is only cosmetic and has no ...
257
Claire Hill
bty25679338
Mar 13, 2007 4:12 am
Hi All My name is Claire and i have a daughter Megan who has KFS....we live in Scotland and has just just turned 7 (her birthday is 29th Feb..leap year...
