In a message dated 6/7/2006 10:06:05 P.M. Eastern Daylight Time, Armyfmly@... writes: What shoulder issues are related to KFS? Sprengels deformity can be...
Length of neck is determined by the severitt of the vertebre deformity. Some have all c1-c7 missing others just a deformity of the vertebres them selves. My...
Wow Amy, I also suffered from seizures up until I was 5 but have had none since, I have triple scoliosis where the vertebrae are malformed meaning they are...
Hi Rosa! It was hard to read what your family done with you! But I had really the same problem. My mother told me all the time, since I was a little child that...
Hallo Andrea! I saw your photo. You look very very nice and wonderful. And you have a nice wedding dress on. I was very trist to hear that you have the same...
Hi Andrea, My name is Sandi, I live in Victoria, Australia. My 7 almost 8 year old son, Aaron, has KFS. He has short neck with limited movement, right tilt on...
In a message dated 6/8/2006 12:03:13 A.M. Eastern Daylight Time, Armyfmly@... writes: In a message dated 6/7/2006 9:31:36 P.M. Mountain Daylight Time, ...
Hi Sandy, It's really cool to see someone in Australia on here. And I'm ever more impressed that there are sp many mums on here checking out things for their...
Hi Amy, I have a klippel feil fusion in my C7 - T1 vertebrae and the doctor considers it a mild form of the syndrome. I do not have a short neck, but I have a...
I've tried the TENS unit and it didn't really help me. Flexoril and other muscle relaxants just made me tired. I was given Topamax as an "experiment" by my...
Andrea Wow I thought I had it bad…. My mom never put me aside… I have two other sisters I’m the oldest of the three. My mom had a tough child hood her...
Click and join us..... so far I know we have 2 of us... http://www1.myspace.com/reloc.cfm?c=2&id=CF5A17C6-CC06-4EB1-B583-45BB25805296 ... Yahoo! Sports Fantasy...
Hi Rosa, Thanks for the e-mail. I appreciate your mum for you. She sounds great. My step-dad (now divorced for my mother) recently told me that out of all...
HI! My name is Sandi and I have a 7yr old daughter Erica. Erica is a very special girl who was diagnosed with Turner Syndrome in utero. With TS, there are...
Hi Sandy!! (and everyone else) Good that you've chosen this website to join.. I am a 34 year old woman with kf and I wanted you to know that from what I...
Hi Sandi & welcome to this group! My name is Kimberly & i was diagnosed at birth with KFS. I am 45 years old & happily married. Each person with KFS is...
HI Everyone!! Thank you so much for all the great infoand advise. We are in the process of waiting for a CAT scan to get more detailed info on Ericas DX. She...
Hi all, My name is Rhonda and I am the aunt of my niece who was recently diagnosed with KFS. She is 11 and just had surgery 2 weeks ago from a injury to her...
Hi Rhonda! Welcome to the group! So sorry to hear of all your niece is having to go through, let alone just finding out she has KFS on top of it all. My name...
Hi Sandi. My name is Andrea. My 8 y.o. son Zach was diagnosed with KFS in March. We had no previous knowledge of any type of problems, so this was very...
Hi, I am new to the group. I have a 15 year old son who we just found out has KFS.. He was playing football 2 weeks ago and got hit, They at first thought...
Hi and welcome to the group. Best healing wishes to your son. My niece went to a great DR, it is a bit far, but I would say worth the drive. It is at...
My name is Angela But my friends call me angie my story is quit long so sit back and read In 1959 my brother david was born, David played football in 1977 and...
Hi everyone - it's been a while. Married life is still great (at times) hahahaha. Still losing weight so the pain is getting less and less every month!!! Got...
Well, it's been a few months since her surgery and she is doing so much better. Sam did get most of her strength back in her right arm. She went back to her...
