Hello at all! My name is Andrea and I`am 29 years old and come from Germany! I now since two years that I have KFS. (Sorry, if my english isn`t very good, but...
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NightOwl
nightowl_muc
Mar 8, 2006 7:09 pm
Hello Andrea, welcome to the group. It's really very nice to see you here . Don't think to much about your English, my English isn't much better LOL Best...
170
KimBeWavn@...
sugrbritches247
Mar 9, 2006 12:15 am
Hello Andrea & welcome to the group!! I am from North Carolina, USA & am 44 years old. I was diagnosed at birth with KFS. I am married but have no...
171
Andrea Bernhardt
sweetandrea1076
Mar 9, 2006 6:20 am
Hello Kimberly! Thank you very much for your mail! I was diagnosed with KFS only with 27 Years old. All the time bevor I never knowed what I had - I thougth I...
172
Thomas Müller
nightowl_muc
Apr 16, 2006 4:02 pm
Hi KFS! You have received a digital postcard from Thomas Müller! The title of the postcard is: Happy Easter To pick up your postcard, you have 2 choices: 1....
173
jasand2005
Jun 5, 2006 4:31 am
I am seeking to chat with other people suffering KFS. I am 34 yrs old and live in Australia. Also have only just found out what I have actually has a name...
174
KimBeWavn@...
sugrbritches247
Jun 5, 2006 7:55 pm
Hello Andrea! Welcome to the group! My name is Kimberly & i'm from the state of North Carolina, USA. I was diagnosed at birth with KFS ( there was no way...
175
Ewa
smily_sunshi...
Jun 5, 2006 9:09 pm
Hello Andrea! My name is Ewa. I'm originally from Poland but live in Canada now. As Kimberly said. Everyone is different and unique and so is their case of...
176
Rosa Ch.
rosa_libra2001
Jun 5, 2006 10:57 pm
hello Chicas My name is Rosa I'm a litina living in California U.S.A Im 23 I also was told about KFS when I was like 13 years old Ewa <cicha@...> wrote: ...
177
Andrea Bernhardt
sweetandrea1076
Jun 6, 2006 4:26 am
Hallo Andrea! I am 29 years old and I now that I have KFS since I am 27 years old. But for me it was very intressting to see other peoples with the same...
178
Jason & Andrea Thomson
jasand2005
Jun 6, 2006 5:44 am
Dear Kimberly, You can't imagine the excitement when I checked my e-mails this morning!! I wasn't too sure anyone would reply to me? And now I have new...
179
Jason & Andrea Thomson
jasand2005
Jun 6, 2006 6:01 am
Dear Ewa, Thanks so much for your e-mail. It was great getting them all today. I read that your brother also had kfs? That's a cruel twist of fate isn't it?...
180
Jason & Andrea Thomson
jasand2005
Jun 6, 2006 6:40 am
Hi Andrea, Firstly what a beautiful name you have? Thanks for your e-mail. I have an Aunt who lives in Austria and it was great to see someone else from over...
181
NightOwl
nightowl_muc
Jun 6, 2006 6:41 pm
Hello Andrea, my name ist Thomas, I'm 37 years old from Germany and I was born with KFS. Also the disease was diagnosted shortly after my birth, I tried to...
182
KimBeWavn@...
sugrbritches247
Jun 6, 2006 6:49 pm
In a message dated 6/6/2006 1:44:23 A.M. Eastern Daylight Time, totclean@... writes: With my KFS I have had both knees operated on at 14 Just...
183
Jason & Andrea Thomson
jasand2005
Jun 7, 2006 7:12 am
Hi Thomas, Thanks for your e-mail!! It feels great to be getting all these from everyone... Makes you feel way better about yourself. I was diagnosed at 12...
184
Jason & Andrea Thomson
jasand2005
Jun 7, 2006 7:22 am
Hi Kimberly, My knees were deformed because I didn't walk until I was 4? My left side was extremely weak and I used to drag myself along on my right-hand...
185
KimBeWavn@...
sugrbritches247
Jun 7, 2006 1:27 pm
In a message dated 6/7/2006 3:22:57 A.M. Eastern Daylight Time, totclean@... writes: Hi Kimberly, My knees were deformed because I didn't walk...
186
Andrea Bernhardt
sweetandrea1076
Jun 7, 2006 4:53 pm
Hi Andrea! You are right - the name is very beautiful . And the best is in Italy this is a name for a boy! I can understand you very well. This was the same...
187
NightOwl
nightowl_muc
Jun 7, 2006 10:17 pm
Hello Andrea, I'm from Munich, Bavaria, here in Germany :-). Only other city I would move
to almost immediately would be Hamburg :-). I never met KFS-relevants...
188
Jason & Andrea Thomson
jasand2005
Jun 7, 2006 10:44 pm
Dear Kimberly, My husband and I had a "discussion" last night about how I never admit to being in pain when it's quite obvious that I am to him... I have been...
189
kbryanfamily3@...
masheri_b
Jun 7, 2006 11:46 pm
You are bueatiful & the dress is very pretty. You do not need to lose weight you look wonderful. My son Lee is almost 3 and he has partial paralysis on the...
190
KimBeWavn@...
sugrbritches247
Jun 7, 2006 11:54 pm
In a message dated 6/7/2006 6:45:42 P.M. Eastern Daylight Time, totclean@... writes: So do you take pain relief? I'm quite sure you would have to...
191
Rosa Ch.
rosa_libra2001
Jun 8, 2006 12:37 am
Hi name is Rosa and I’ve never met anyone with KFS… I live in California USA Im 23 I’ve lived in Anaheim CA. USA. “Disney Land” And in Washington...
192
Armyfmly@...
rotnmonkeys
Jun 8, 2006 12:58 am
Can someone have KFS and not have the "short neck"? Amy...
193
KimBeWavn@...
sugrbritches247
Jun 8, 2006 1:33 am
In a message dated 6/7/2006 8:38:11 P.M. Eastern Daylight Time, rosa_libra2001@... writes: Even with my family… mom’s family… Because I looked...
194
Jason & Andrea Thomson
jasand2005
Jun 8, 2006 1:35 am
Amy, Just recently saw my ortho doctor and he says he's never come across anyone without the short neck? But as we are all finding out we each all have our...
195
KimBeWavn@...
sugrbritches247
Jun 8, 2006 1:45 am
In a message dated 6/7/2006 8:59:11 P.M. Eastern Daylight Time, Armyfmly@... writes: Can someone have KFS and not have the "short neck"? Amy Absolutely!...
196
Jason & Andrea Thomson
jasand2005
Jun 8, 2006 1:56 am
Sheri, Great to hear from you... My parents were told when I was born that I was half paralised on the left side and I would never walk but through...
197
Armyfmly@...
rotnmonkeys
Jun 8, 2006 2:05 am
In a message dated 6/7/2006 7:45:48 P.M. Mountain Daylight Time, KimBeWavn@... writes: Absolutely! hmmmm I have so many of my own issues where I can relate...
