Yes they are. I love St. Louis Childrens Hospital they are great. we go in June
18 for his neck and back (Dr. Linky) July 28 to see his eye dr. (Dr. Rallo) and
then is hand Dr. (Dr. Borschel) we allready seen Dr. Grange shes the one that
diegnose him in 01. w/KFS and we also seen Dr. Stith from Cardnell Hospital for
his ears we go back in a yr. he still has fluid behind both ear drums mild
hearing in the rt. ear and no hearing in the lt. he'll decide then what to do if
he lost more hearing. I hope you find help there if not I would check in going
to St. louis. Good luck...


--- In kfs@yahoogroups.com, Melinda <bo_and_me2004@...> wrote:
>
> Are they helping him? I still havent fount anyone in Tennesse familiar with
it..
>
> --- On Mon, 2/16/09, Tammy <tammy.long35@...> wrote:
>
>
> From: Tammy <tammy.long35@...>
> Subject: [kfs] Re: Checklist, anyone?
> To: kfs@yahoogroups.com
> Date: Monday, February 16, 2009, 11:54 AM
>
>
>
>
>
>
>
>
> --- In kfs@yahoogroups. com, "Susan" <lraven1955@ ...> wrote:
> >
> > --- In kfs@yahoogroups. com, "melinda" <bo_and_me2004@ > wrote:
> > >
> > >
> > > find a genic doc
> > >
> > Is this group still active? I haven't checked in for awhile am going
> > through my KFS groups, deciding if I should end any. Thfank
> > you ...Susan/Raven
> >
> My son goes to St. Louis Childrens Hospital they're familuar w/Klippel
> feil. they had dignose my son w/that 7 yrs ago.
>