This is an open forum support eGroup for "Klippel-Feil Syndrome." It has been established for patients, family, educators and medical professionals interested in sharing information and/or support for persons affected by this rare disorder.
Yes they are. I love St. Louis Childrens Hospital they are great. we go in June 18 for his neck and back (Dr. Linky) July 28 to see his eye dr. (Dr. Rallo) and
Are they helping him? I still havent fount anyone in Tennesse familiar with it.. ... From: Tammy <tammy.long35@...> Subject: [kfs] Re: Checklist, anyone?
... Is this group still active? I haven't checked in for awhile am going through my KFS groups, deciding if I should end any. Thfank you ...Susan/Raven