kfs : KLIPPEL-FEIL SYNDROME

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This is an open forum support eGroup for "Klippel-Feil Syndrome." It has been established for patients, family, educators and medical professionals interested in sharing information and/or support for persons affected by this rare disorder.

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New to group I was born with Kilppel_Feil Syndrome and have spent my whole life feeling different, it is nice to see that I am not alone. Thanks for being here. Debbie Posted - Tue Oct 18, 2011 12:47 am	Debbie s dbrhseny Send Email
Re: Checklist, anyone? Yes they are. I love St. Louis Childrens Hospital they are great. we go in June 18 for his neck and back (Dr. Linky) July 28 to see his eye dr. (Dr. Rallo) and Posted - Fri Apr 17, 2009 1:34 am	Tammy tammy.long35 Send Email
Re: Checklist, anyone? In a message dated 4/16/2009 6:30:49 P.M. Eastern Daylight Time, tammy.long35@... writes: Is this group still active? I haven't checked in for awhile Posted - Fri Apr 17, 2009 12:34 am	KimBeWavn@... sugrbritches247 Send Email
Re: Checklist, anyone? Are they helping him? I still havent fount anyone in Tennesse familiar with it.. ... From: Tammy <tammy.long35@...> Subject: [kfs] Re: Checklist, anyone? Posted - Thu Apr 16, 2009 10:37 pm	Melinda bo_and_me2004 Send Email
Re: Checklist, anyone? ... My son goes to St. Louis Childrens Hospital they're familuar w/Klippel feil. they had dignose my son w/that 7 yrs ago. Posted - Thu Apr 16, 2009 10:30 pm	Tammy tammy.long35 Send Email
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Message History

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