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kfs · KLIPPEL-FEIL SYNDROME
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Description

This is an open forum support eGroup for "Klippel-Feil Syndrome." It has been established for patients, family, educators and medical professionals interested in sharing information and/or support for persons affected by this rare disorder.

The Complete Community Directory to
Rare "Orphan" Disease Support eGroups

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Re: Checklist, anyone?
Yes they are. I love St. Louis Childrens Hospital they are great. we go in June 18 for his neck and back (Dr. Linky) July 28 to see his eye dr. (Dr. Rallo) and
Posted - Fri Apr 17, 2009 1:34 am
 Tammy
tammy.long35
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Re: Checklist, anyone?
In a message dated 4/16/2009 6:30:49 P.M. Eastern Daylight Time, tammy.long35@... writes: Is this group still active? I haven't checked in for awhile
Posted - Fri Apr 17, 2009 12:34 am
 KimBeWavn@...
sugrbritches247
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Re: Checklist, anyone?
Are they helping him? I still havent fount anyone in Tennesse familiar with it.. ... From: Tammy <tammy.long35@...> Subject: [kfs] Re: Checklist, anyone?
Posted - Thu Apr 16, 2009 10:37 pm
 Melinda
bo_and_me2004
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Re: Checklist, anyone?
... My son goes to St. Louis Childrens Hospital they're familuar w/Klippel feil. they had dignose my son w/that 7 yrs ago.
Posted - Thu Apr 16, 2009 10:30 pm
 Tammy
tammy.long35
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Re: Checklist, anyone?
... Is this group still active? I haven't checked in for awhile am going through my KFS groups, deciding if I should end any. Thfank you ...Susan/Raven
Posted - Sat Aug 9, 2008 7:21 pm
 Susan
lraven1955
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 4
2008 18 1 3 1
2007 5 3 12 10 2 5 3 1 5 1 1
2006 3 10 4 1 41 8 4 1 13
2005 3 3 7 1 3 1 23 13
2004 1 2 4 6 9 11 8
2003 5 1
2002 1 3 1 1
2001 5 5 7 5 3 1 1
2000 1 1 6 2 1 7
1999 1 1
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Group Email Addresses

Post message: kfs@yahoogroups.com
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List owner: kfs-owner@yahoogroups.com
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