Looking for friend for my 17 Month Old Daughter. I want her to know she is not the only child with epilepsy and on the diet. It would also be nice to have a...
Hi! My son DJ, who is 6 years old, has been on the diet now for two years and is seizure free. He is back to being his old self now and loves kids of all ages,...
my son's neurologist has just suggested the ketognic diet for him. We have tried a number of medication with no improvements. Our son is having around 50...
My son was 3 1/2 years old when he started having seizures. Medication did not work for him, in fact it caused severe side effects. By the time we started...
YES!!! And here's why... But first, I have a confession to make. Have subscribed to this group but have responded to very few. Seems most parents have a...
Hello everybody. I just joined this group. My three year old daugther Darian had her first seizure last year on Memorial Day weekend, and things have gotten...
Dear Darian's mom, My son has been on the diet for over two years now and during that time his blood ketones have been check only a few times. We check him...
Thanks so much for the reply. Congratulations on your son's response to the diet. That is absolutely fantastic! We are hoping for the same. Darian is not on...
Hi Shannon! DJ started having seizures when he was 3 1/2 years old (on 9/30/03). It took us until 05/24/2004 to get him on the diet (he had just turned 4)....
Thelma, Thanks for the encouragement. Darian has really been struggling these last few days. We have increased her felbmate 300 mg in the past two weeks, and...
Shannon: Has your doctor discussed decreasing the dose of Lamictal? I have been researching Darian's drugs and you probably already know, but lamictal can...
Thelma, I had not thought of decreasing Darian's meds while she is still seizing. For the past year, we have only continually increased her meds to meet her...
We had a nice quite 4th. My husband was home and I was able to work in the garden, which I love. DJ just enjoyed being with his Daddy. DJ passed a kidney...
... unless there is ... other point I ... so he is in ... sz activity? ... has live ... diet since July ... month now, ... had 3 ... having short ... shocked...
Hello Everyone, I'm fairly new and my 7-yr.-old son, AJ has finally seen the Dietician. AJ's on the MCT Oil diet. I was wondering what liquids/drinks your...
Hello Everyone, I'm fairly new and my 7-yr.-old son, AJ has finally seen the Dietician. AJ's on the MCT Oil diet. I was wondering what liquids/drinks your...
Hello Everyone, I'm fairly new and my 7-yr.-old son, AJ has finally seen the Dietician. AJ's on the MCT Oil diet. I was wondering what liquids/drinks your...
Hello Everyone, I'm fairly new and my 7-yr.-old son, AJ has finally seen the Dietician. AJ's on the MCT Oil diet. I was wondering what liquids/drinks your...
Hello Everyone, I'm fairly new and my 7-yr.-old son, AJ has finally seen the Dietician. AJ's on the MCT Oil diet. I was wondering what liquids/drinks your...
Wow, what a piece of tech gear this ipod player is. Can't believe I got it at no cost, thanks to a link my friend gave me. Anyway, since i had the good fortune...
nuala-alexander522@...
Jul 24, 2006 7:44 pm
802
Wow, what a piece of tech gear this ipod player is. Can't believe I got it at no cost, thanks to a link my friend gave me. Anyway, since i had the good fortune...
nuala-alexander522@...
Jul 24, 2006 7:47 pm
803
My son has been weaned off the diet. Can you please remove me from the list? I wish you all the best of luck with the diet and hope that your children do...
We use koolaid that you have to add sugar to - but we add liquid sugar twin. It has worked for us. Michael has been on the MCT/cream diet for just over 5 yrs....
I am now to be referred to as Dr. Jenkins haha ;) Took me about a month to get fully accredited, but after ringing these ppl 1-801-697-0461 they got me...
nuala-alexander522@...
Jul 26, 2006 12:42 pm
806
Does anyone know where to buy a used ketogenic cookbook, or is anyone selling one?...
Dear Supermommy, The only ketogenic cookbook I know about is now out of print. It was by Brake and Brake or Blake and Blake. Check with your city's Epilepsy...
Hi all, It has been awhile since I have been on with all the busyness of summer, but we got a call from John Hopkins a couple days ago. My daughter was having...
Dear Carolyn: I do not envy you your position. Our son had such severe side effects from medication that never controlled his seizures, that going on the diet...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
