Hello, My daughter was diagnosed with Absence seizures almost 2 years ago. We have not been able to control the seizures with medication and just this past...
Wow, after nearly 5 years in a deadend place I've finally quit! I was pretty unskilled so it took me a while to find somehting suitable, but all I can say is...
nuala-alexander751@...
May 5, 2006 12:02 pm
766
Ignore that ************SPAM*************** about the work at home business!!!!!!!!!!!!!!!!!!...
I have found this site very informative and I thank everyone for sharing. My daughter is 9 and was diagnosed with absence seizures a year ago. She is on her...
Heather, please do not stop the medicine althogether. She needs to be weaned slowly from it. My son, is on the ketogenic diet. He has been on it two years,...
Thank you so much for your reply. I have started the Atkins diet and will slowly wean her off of the Topomax ~ I hope. I noticed that once she got up to 400...
The Topamax and the diet can lead to acidosis. I am not sure of all the signs and symptoms of acidosis, but should she get confused or lethargic, you should...
Follow you instinct, as the old saying goes nothing ventured nothing gain. You can always go back to where you started from. I know when we did the Keto it was...
Thank you, she has been on this (I hate to call it diet) it is just eating the way we were meant to eat, for two days. I have lowered her dose of Topomax to...
Thank you, and yes I am doing it on my own. I am not restricting her diet too much, basically no sugar, low carbs (100g per day), high protein, lots of fruits...
Hello Everyone, I am new to this group. My name is Kim and I am the mother of 2 children. Janet is almost 3 and AJ is 7. AJ has been diagnosed with ...
Your brother is right, I like that phrase. Once you get this way of life down and are ready for more info let me know I can help you with other avenues as...
Kim, My son, DJ, was diagnosed with Lennox Gestalt when he was 3 years old. The ketogenic diet has given us back our son. He was having up to 100 seizures a...
Heather, what state do you live in. I can find a hospital for you that will put your little one on the diet. There are specific ratios that have been found...
I am in Northern California (3 hours North of SF). I do not think that how I am feeding her is extremely drastic ( like the Keto Diet) I will for sure check...
Heather, I can understand your feelings toward topamax. That is what DJ was on and it made him psychotic, autistic with regression to that of an 18 month old....
Looking for friend for my 17 Month Old Daughter. I want her to know she is not the only child with epilepsy and on the diet. It would also be nice to have a...
Hi! My son DJ, who is 6 years old, has been on the diet now for two years and is seizure free. He is back to being his old self now and loves kids of all ages,...
my son's neurologist has just suggested the ketognic diet for him. We have tried a number of medication with no improvements. Our son is having around 50...
My son was 3 1/2 years old when he started having seizures. Medication did not work for him, in fact it caused severe side effects. By the time we started...
YES!!! And here's why... But first, I have a confession to make. Have subscribed to this group but have responded to very few. Seems most parents have a...
Hello everybody. I just joined this group. My three year old daugther Darian had her first seizure last year on Memorial Day weekend, and things have gotten...
Dear Darian's mom, My son has been on the diet for over two years now and during that time his blood ketones have been check only a few times. We check him...
Thanks so much for the reply. Congratulations on your son's response to the diet. That is absolutely fantastic! We are hoping for the same. Darian is not on...
Hi Shannon! DJ started having seizures when he was 3 1/2 years old (on 9/30/03). It took us until 05/24/2004 to get him on the diet (he had just turned 4)....
Thelma, Thanks for the encouragement. Darian has really been struggling these last few days. We have increased her felbmate 300 mg in the past two weeks, and...
Shannon: Has your doctor discussed decreasing the dose of Lamictal? I have been researching Darian's drugs and you probably already know, but lamictal can...
Thelma, I had not thought of decreasing Darian's meds while she is still seizing. For the past year, we have only continually increased her meds to meet her...
We had a nice quite 4th. My husband was home and I was able to work in the garden, which I love. DJ just enjoyed being with his Daddy. DJ passed a kidney...
... unless there is ... other point I ... so he is in ... sz activity? ... has live ... diet since July ... month now, ... had 3 ... having short ... shocked...
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