hi my name is jessica i have a 5 year old son with menkes disease and we are starting him on the ketogenic diet for seizures this week. he is G tube fed. i...
Hi, Jessica. My name is Stephanie and my 3 yr old son Noah has myoclonic-astatic epilepsy (MAE) also known as Doose syndrome. His seizures were tonic-clonics...
Stephanie, So happy your little one has gotten help with the diet. My little 5 yr old grandson started it a week ago and has had no seizures since. He was...
Thank you- it has been our miracle! We were blessed to be able to begin the diet so quickly- unfortunately that is not the case for everyone. It takes...
were starting the diet at home. i am not to familar with it. we will find out more about it tomorrow when we meet with the dietician again. she said she was...
If you don't have it already, you should get The Ketogenic Diet: A Treatment For Epilepsy by John Mark Freeman. It will help explain a lot for you & might have...
thank you i will go and look for that book. keto friendly for his medicines whats that mean? if the dietician dont tell me id like to bring it to her...
Your dietician should give you a list of keto friendly medications- something with no sugar & low carbs. (many medications from tylenol to cold medicines have...
Tanner went to his speech therapist today and she was kind of surprised. When he walked in he said,"Hi!" Last week he couldn't talk or stand very well, (too...
I just ordered the book, " First Do No Harm", from Amazon.com. It is supposed to be a movie about a seizure victom and the ketogenic diet. Have any of you...
Yes- this movie is great. I think you can also find it occasionally at Wal-Mart in the bargain bin. It was made several years ago, but it still gets the main...
Good Morning Hallie, GREAT FLICK!! All I gotta say is , if You can rent the movie, get it and watch it! It will really hit home. God Bless you love hugs & ...
ok we started the diet yesterday. its half strengh right now mixed with his old formula pediasure. and starting saturday were going to be weaned off the...
You can use Tom's of Maine all natural- you can usually find it at Wal-Mart- just have to look for it in the toothpaste section, or the organic section of most...
You can use Tom's of Maine all natural- you can usually find it at Wal-Mart- just have to look for it in the toothpaste section, or the organic section of most...
You can use Tom's of Maine all natural- you can usually find it at Wal-Mart- just have to look for it in the toothpaste section, or the organic section of most...
congrats on you son talking. my son was just about the same and beleive it or not he is stating to READ just little words, but, he is reading. good luck, i...
i was nervours too, but you have to decide what is in the best interest of your child. my son was really bad and i think it was a smart decision to take the...
just wonderin when first starting the diet are they a little more tired then usual? jordans been on it since wednesday afternoon but hes tube fed and i didnt...
Tiredness is definitely normal in the first couple weeks usually after starting the diet. Do you have The Ketogenic Diet book by John Freeman? It has many...
i have a couple more questions. ok jordans been more tired today. he is really out of it though. he went to school and he was fine in the morning. then...
its me again, ive probably gotten on everyones nerves but im still having a problem with my son jordan. he started the diet i think it was last thursday. he...
Hi Jess, Ohhh pleeeease!! Don't be silly... your not getting on anyone's nerves, this is why we have groups like this... Ya come here when your at your...
... Sorry, no, thats not right. It does happen sometimes, but can usually be fixed, and certainly isn't normal for the diet. What ratio are you on? Could be...
hi just to let everyone know. we stopped the diet on saturday jordan ended up in the hospital he was severely dehydrated. and they ran iv fluids and he had a...
Good Morning Jessica, sorry to hear that you have to hold up on the diet for now. But maybe it is for the best, until you know what is going on. I hate it when...
... Hope he feels better soon, thats rough If you do retry the diet, then please ask about the reflux problem on the other ketolist. Its been discussed over...
i am so sorry that all you are going though!! but i hope you will start again with the diet if you do find out it is working.... my son chris has been on the...
Hi, my 16 month old son Chris just started the diet last Monday. So far, he's not liking the food much but we've been able to get him to drink the ketocal no...
