Susan, Hi, I am Rose Homuth. I have two sons. One that is 28 and one that is 14. Both have siezure disorders. The oldest has the vns, and the younger is on the...
Hi, I was very happy with the diet, it worked relly well for my daughter, puberty might be tougher because hormones set off seizures for my daughter. I...
Hello! This is David Rank. You may already know about our long journey with our daughter, Sarah Dudley, and our life with a brain tumor. We are inviting you to...
Susan, i have been researching VNS very extensively for my son Mike. After consultations wiht doctors and representatives at cyberonics, we have decided to get...
ok so this site may be dead, but i am going to write this any way. We have finaly gotten everything taken care of for mike and the VNS. he is getting it next...
Hi If anyone has any suggestions please mail me My daughter has been on the diet for about 18 months We have been very happy with it. She was losing way too...
Hi, My name is Tammy and I have a son who is 7yrs old....with Severe Intractable Epilepsy. There is no more medications to try.... and he is not a canidate for...
Tammy, Why don't you join the "ketogenic" list at yahoo groups as well? There are lots of families that have been in the same position as you have. There's a ...
Tammy, I am sorry to hear about your troubles... We have all been through what you are going through, so we understand. My son mike, got the VNS implant about...
My daughter Taylor is 2 1/2, she suffers from Lennox Gastaut syndrome. She has hundreds of violent seizures a day (mostly drop attacks that occur in clusters)....
Hi, my advice is to give the diet plenty of time. I'd say at least two months. When my son started on the diet we did not notice any improvement at all for a...
Jana - Thanks for the encouragement, I know it will be tough to get the hang of, but it is all worth it. I'll keep you posted. Thanks Again ... From:...
Hi my name is jaime and my 18 month old was diag. with infantile spasm in may. we have tried acth and depakote with no success. now i am deciding whether to go...
Hi Jaime, Many kids are started on the diet without fasting. If your Keto team did want your baby to fast upon initiation of the diet it would only be for...
Jaime- my daughter is 2 1/2 she also had IS, but luckily ACTH cleared that up for 2 mos. Now she has LGS. We have tried seven diefferent medaications. We are...
thanks for the advice. i am starting to feel more comfortable with the "decision" to try the diet. all advice or experiences are welcome! jaime [Non-text...
Hi-I am fairly new to the group. here is a quick run down. My daughter Taylor is 2 1/2, uncontrolled LGS for 2 years this Oct. (previously has IS-ACTH...
Hi Keri, There is just something linked between sleep and seizures. It is amazing how common the early morning wake up seizures are. I don't have any advice...
Jana- I have always been told that seizures and sleep go hand in hand. You aren't the first person that has told me that there child has out grown the bad...
Mike's seizures used to be worse in the mornings as well (from waking til about 11am) then things would calm down a bit and start up again after his afternoon...
We live in Tampa and our daughter Taylor (2 1/2, LGS, Depakote & Topamax) is scheduled to start the diet on October 6th. I spoke to the dietician for the first...
Our dietician is good - when you can get a hold of her. She does all the cases at the children's hospital where we go for Mike - so she knows a little about a...
Ok-my brain is going crazy now. I am starting to get confused as to what types of seizures my daguhter is having. I thought they were atonic/myclonic/drop...
Hi everyone- We are so excited to find out that we will be able to start the Ketogenic diet on September 9th at Miami Childrens Hosp. (we were going to do it...
The keto book is a definite MUST - as well as the scale but we had to have ours weigh to 1/10th of a gram. More accurate that way since a scale weighing...
Just wanted to thank everyone for all of there information regarding what types of seizures they thought my daughter was having, and on the scale, etc. We have...
Glad you have everything sorted out with the diet. Sounds like you have a good dietician. The only reason I push our neuro for a diagnosis is that some ...
I need help finding the Ketogenic Diet book, I already have ordered it twice and they both ended up on back order/ out of stock. They were from Amazon &...
Hello all, This is a Open letter to all that I know. I would lke to invite everybody to my new group for peope that are takning Strattera. Other people might...
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