Hi remember us? Well JC has been doing the diet ( using KetoCal) for just over a week now, and he is realy losing weight, even though his calorie count is...
How much weight has he lost this past week? Was he heavy and they team wanted to get him into the right percentile for the diet? Is he having diarrhea or...
I got this in my e-mail, don't know if anyone can use it, but thought I would send it along Janine http://www.ketokids.org/ [Non-text portions of this message...
Carnitor Drug Assistance Program here is some info I found, http://www.carnitor.com/drug_program.html http://www.carnitor.com/drug_program.html [Non-text...
Hello all, JC has been having some stomach problems again, he get an intestinal bacterial infection alot, usualy we have him on Flagyl and Levsin drops. Well...
We were told that unflavored pedialyte is fine however it needs to be mixed 3:1 - three parts water to one part pedialyte. You might want to check into...
I am very interested in the digestive enzymes that everyone is talking about, I think that might be just what JC needs. He has been on a feeding tube for 3 yrs...
Is there anyone using KetoCal and a Zevex feeding pump? I am having trouble getting the pump to stop alarming ! I keeps reading "no food" Maybe the formula is...
Hi, My son Travis has Infantile Spasms. He is nearly 11 mths old and has been having seizures since he was about 2 mths old. Travis is developmentaly 2-3 mths....
Hi Krista. My son is 5 - started the diet a year ago and isnt on formula, but I am going to put my 2 cents in anyway :) Mike started the diet in June last year...
I just want to say thank you for all the help and info that everyone has given me. Janine and JC *~*A child is like a butterfly. Some can fly higher than...
I think we are about to call it quits for the diet. Travis has been on it since 5/13/02 and it has bee pure hell. He creis majority of the time he is awake....
It's over!!!!!! My husband had Travis at the hospital to have some blood drawn (Testing for Rett Syndrome) and stopped by the neurology clinic since I hadn't...
I can't tell you what to do , but their hair does fall out, and a month isn't that long, I know you have to do whats right for you but for what it's worth I...
One more quick question I thought only girls got retts syndrome? Just curious-Terry ... __________________________________________________ Do You Yahoo!? ...
There has been extensive research (they discovered the gene) preformed at the clinic that sees TRavis for Rett Syndrome. They have found it present in boys,...
Thank you for your answer, I was curious because my daughters syndrome ( aicardi's syndrome) is strongly believed to be related to Retts, and it also is lethal...
This was our first re-check since starting the diet. JC has lost 4 lbs in the month and a half he has been on the diet. Waiting to hear from the dietition on...
I have never heard of such a thing - however if there is such a thing, my son has them! Jenn ... [Non-text portions of this message have been removed]...
JC has started twitching badly today, he started with a little tic like twitch around his bottom lip, and now his left arm and face are twitching too. The...
HI EVERYONE My son is going to start the diet in one week. Finally. I have been begging for so long, 2 years. They kept saying it doesnt work except for...
Gina, when we first started, Alex ate basically 3 meals: hot dogs (get a nitrate-free kind at a health food store) with a couple bites of peaches; scrambled...
Thanks for the headstart Ashley. Jane P. gave me info on a website its http:/groups.yahoo.com/group/ketorecipes/ I hope thats right.. I dont know if you have...
"What is the MACS site about? The stories of courageous kids that you'll read on this web site will touch your heart. Here, kids with life threatening...
Do you know why my name has been removed from th emailing list? I didn't unscubscribe I suddenly just don't get mail from the list. How can I get back on? ...
JC came home from school today and was acting just himself, then all of a sudden he started wretching and puked up "brown coffee grind" looking stuff, I knew...
