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May 6, 2002 4:39 am
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Welcome to all the new members. Please feel free to post so we can get some activity going in this group. I am looking for someone to become the new group...
Hello, My name is Janine, I have 6 kids at home, My 4 old son has many health problems, We finally found a doctor willing to try the diet with JC.He is 100%...
Hi Janine, Happy Mother's Day to you with six kids. The diet should be really easy to maintain with JC being tube fed. You won't have to worry about what...
Hi ... __________________________________________________________________ Your favorite stores, helpful shopping tools and great gift ideas. Experience the...
If the ratio change made him worse it is posible
that his ketones are too high. My son has been
on the diet for almost a year and is still not
seizure free...
Hello all, Well we finally got the date to go into the hospital to start the diet, JC and I will be going in on Monday morning. I have not been able to talk to...
JC started the diet on Wed. after 2 days of fasting he showed no ketones on the stick. They started the KetoCal formula on Wed night, ( He is getting 30 cc...
I wouldnt be too worried about the energy level. My son got very sleepy for a while when he started the diet - now he has more than enough energy. When their...
Jenn Wow Thanks for that information ! I never thought about creams and soaps and stuff. Janine Some other things to watch out for are sunscreens, shampoos,...
Neither did I until I read it somewhere else. I have been told that either banana boat or avon brand sunscreens are good - havent had to deal with creams much...
I thought I would share this, it is an interesting ID set-up http://www.safetyatyourfeet.com/ http://www.safetyatyourfeet.com/ [Non-text portions of this...
Hi remember us? Well JC has been doing the diet ( using KetoCal) for just over a week now, and he is realy losing weight, even though his calorie count is...
How much weight has he lost this past week? Was he heavy and they team wanted to get him into the right percentile for the diet? Is he having diarrhea or...
I got this in my e-mail, don't know if anyone can use it, but thought I would send it along Janine http://www.ketokids.org/ [Non-text portions of this message...
Carnitor Drug Assistance Program here is some info I found, http://www.carnitor.com/drug_program.html http://www.carnitor.com/drug_program.html [Non-text...
Hello all, JC has been having some stomach problems again, he get an intestinal bacterial infection alot, usualy we have him on Flagyl and Levsin drops. Well...
We were told that unflavored pedialyte is fine however it needs to be mixed 3:1 - three parts water to one part pedialyte. You might want to check into...
I am very interested in the digestive enzymes that everyone is talking about, I think that might be just what JC needs. He has been on a feeding tube for 3 yrs...
Is there anyone using KetoCal and a Zevex feeding pump? I am having trouble getting the pump to stop alarming ! I keeps reading "no food" Maybe the formula is...
Hi, My son Travis has Infantile Spasms. He is nearly 11 mths old and has been having seizures since he was about 2 mths old. Travis is developmentaly 2-3 mths....
Hi Krista. My son is 5 - started the diet a year ago and isnt on formula, but I am going to put my 2 cents in anyway :) Mike started the diet in June last year...
I just want to say thank you for all the help and info that everyone has given me. Janine and JC *~*A child is like a butterfly. Some can fly higher than...
I think we are about to call it quits for the diet. Travis has been on it since 5/13/02 and it has bee pure hell. He creis majority of the time he is awake....
It's over!!!!!! My husband had Travis at the hospital to have some blood drawn (Testing for Rett Syndrome) and stopped by the neurology clinic since I hadn't...
I can't tell you what to do , but their hair does fall out, and a month isn't that long, I know you have to do whats right for you but for what it's worth I...
One more quick question I thought only girls got retts syndrome? Just curious-Terry ... __________________________________________________ Do You Yahoo!? ...
There has been extensive research (they discovered the gene) preformed at the clinic that sees TRavis for Rett Syndrome. They have found it present in boys,...
