My son Steven is 23 months old. He started having seizures when he was 18 months. He has multple types. We have tried two medications without success. Next we ...
Steven is improving as each day goes by. We have determined the culprit to be the cream. We moved across country since he started the diet and the cream in the...
hi, just joined your club, my son cooper is 6 yrs old and has severe cp and epilepsy. cooper is g-tube fed so he is receiving the diet in formula form. cooper...
Hi Cindy, Is Cooper your only child? Steven has two older brothers, Samuel-five, and Christian-three. We are still trying to get Steven back on track with the...
hi, im having trouble today with yahoo, i cannot access the latest posts, i e-mailed them so hopefully it will be taken care of. i could see your first ...
Yahoo has been having some problems. Over the last couple of days sometimes I have been able to access the messages and sometimes not. It seems to be working...
How are you doing Cindy? What kind of seizures does Cooper have? Steven has been improving quite a bit the last few days. Yesterday he had 6 or 7 drop seizures...
hi, just got back from the cottage, we go every weekend. i noticed you said your little guy is irratable alot, so is cooper and it all started with the diet. ...
I think Steven has always been irritable. We adopted him when he was 13 months old. I can't say for sure but my husband and I think if we would have gotten him...
I asked my husband about your pictures. He said go ahead and try to post them....it might work on the web page even though you weren't able to email them....
hi, just tried to post the pictures, it came up invalid file type, system only support jpeg or gif files. like i said before, i do not know what that means. ...
I am clueless about your pictures, I'll have to have my husband help me post mine. I'll be interested to hear how the melotonin works. Did you buy it at a ...
hi, the melotonin did make a difference today at school, the nurse said he was more content yet alert. i was afraid it would make him sleepy but will have to ...
Today Steven only had two seizures. This diet has been pretty miraculous in controlling his epilepsy. Before the diet we only tried two medications and neither...
hi, im glad to hear steven is doing so well but im surprised he is not on any meds. our doctor here told us that unless cooper was seizure free then we have to...
The first medication Steven took was valproic acid. It didn't do a think for him except maybe make him unbalanced and he had slight hair loss. His seizures got...
hi, the 4th of july is my birthday, i will be 38 but of course in canada it is not a holiday. camping sounds nice, i love the country and so do the kids, we ...
I'm concerned Steven may get kidney stones because he never drinks close to his limit. He never did drink very much even before the diet. A lot of times his...
no, cooper does not have constipation problems with the diet either but they did warn me about that. <br>are you from iceland or did you just live there for a ...
My husband is in the Air Force and we were stationed in Iceland. We were supposed to be there two years but we only stayed 14 months because Steven started...
The last two days have been wonderful. No seizures and Steven has been smiling and laughing more than usual. His balance has improved tremendously as well. It...
Hi, Im so happy to hear Steven is doing so well. We have started Cooper on the Luvox, the neuroligist says that if given in moderation it should not effect his...
Cindy I am so glad you were able to post pictures of Cooper and Courtney. They are adorable!! I need to get on the ball and post some photos of my boys in the...
The movie First Do No Harm starring Meryl Streep will air on ABC Monday July 3 at 8pm/7pm central. This is a true story about a little boy with severe epilepsy...
Cindy, how is the luvox working? We are going camping tomorrow. I think it will be a fun time, it's just so much work getting prepared and then setting up...
hi, i am typing from the cottage, my brother in-law is visiting and brought his lap top. the luvox so far is not making much of a difference but the doctor ...
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