Toynera, Hi! I was going through my old e-mails and realized I haven't heard from you in a while. How are you and Annan doing? DJ is trying out the Low...
My daughter Becca who has Angelman syndrome ( non verbal) started the diet 02/18 and is still acting so hungry. I think maybe her calories need to be...
Cindy, are you checking Becca's urine for ketones to make sure she is in ketosis? Sometimes MCT oil can be added to the diet to increase the ketones. Being in...
My name is Tiffany I am a SHAM mom of 3 boys (one of them on the way) My oldest son Monty just turned 4 years old today. He was dx with Infantile Spasms at the...
hi, im jhoe mother of 11 yrs old named Mary June she has a Lennox Gastaut Syndrome,,,seizure started when is 2 mos. old when she has a DPT shoot and until now...
Hi, When my son did the Keto diet, we only hung in there for 3 weeks with it. It was a hair pulling experience, but that was my situation it may not be that...
Welcome to the group. You will definitely get support here. I am sorry your daughter is having such a hard time. She will do fine with the diet as long as...
thank you for all the good words that i recieved, the advice that ive been given, and the support. this coming monday my daughter has a doctors appointment and...
Dear List Thanks for all your help with the blog We have just launched a new web site which we think you might find of interest http://www.thepatientsvoice.org...
... artificial ... stomach ... a major chore. ... biopsies and was ... determine what ... just knew she was ... oldest ... taken care of. She ... (basically in...
Hey guys. Started the diet almost a year ago and it works! My daughter is 6 and has Doose syndrom. Seizures went from 50 a day to 1 a month or less. Just have...
my little one was hospitalized on aug 1st and was put on the diet approx 1 month ago. it was a miracle. he came out of the seizures and is now better then he...
Hello All- I won't even pretend to understand what it is like to raise a child with epilepsy.... And while I can't imagine what it is like to walk in those...
I wish I could help, but my little guy is only 20 months old. I hope that your research goes well and that you are able to gain a lot of information and...
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