Greetings,
My name is Sarah. I'm originaly from the South but met my husband 8 yrs ago
and was transplanted up here to Michigan. I am a SAHM of two girls. My
oldest just turned 14 yrs. and my youngest just turned 6yrs. Their birthdays
are one week apart. LOL Both my daughters are adopted. Katie, the youngest
was our foster child since the age 18mos. She has been legally "ours" for 3
years now. She has a lot of medical issues CP, Autism, Seizures, GTube, VP
Head shunt and other medical and physical problems but she is an angel sent
from God. :)
She has 4 different types of Seizures so we are praying this diet is going
to help her. She has been on almost every medication out there and is
curently taking 3 different meds. Her seizures are the Myoclonic (clusters),
Atonic "Drop" seizures, Abscent petit mal, and laughing/crying/rage seizures
(not sure what causes these types but the EEG did show seizure activity
during these "spells". The meds she takes are Topamax 100mg/day, Lamictal
60mg/day & Klonopin .5mg/BID.
We "just" started Katie on the Keto diet 15 days ago. We spent 3 days in the
hospital.. mainly for "me" to learn how this diet works and how to measure
everything just right. I had no idea I was going to need algebra and
fractions all over again LOL!!! I will say that I feel blessed with Katie
cause she has the GTube and is not able to eat normal foods (at this time).
She can swallow most liquids and will swallow stage 1 baby food (with a lot
of coaxing and a ton of patience!) So she gets the ketocal formula through
her tube/feeding pump and takes 2 jars of food per day.
Katie can have as few as 3-4 seizures /day or as many of upwards of
200+/day(myoclonic clusters). But she dose seize daily... that was until we
started this diet! :) Oddly enough the day we were discharged from the
hospital that morning while the Drs. were making their "early am" rounds,
Katie had several myoclonic clusters. She had only been on the diet for
3days at this time so they said it could take a few weeks or more before we
started to see any change... IF we were going to see a change. Well..... it
is now day 15 and Katie has only had 3 drop seizures in this time and NO
other types of seizures!! It's been 4 days since her last drop. I am so
excited... but also a bit cautious because I don't want to "jinkx" anything!
:) I had no idea this could work so fast... but wow! She went into High
Ketones right away on the very first day of the diet and has stayed there.
Her blood sugar is good too.
I'm looking forward to getting to know everyone and hear ya'lls stories and
experiences with this Diet.
Blessings to everyone :)
Sarah G.
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