Hi all,
I am Rose, mother to 13mth old Eric who just started KD at
Melbourne's Royal Children's Hospital last week.
Eric is tube fed since he stopped interecting with the world due to
severe seizure onset at 4/5mths old. His MRI showed a brain
malformation known as Polymicrogyria but his Neuro feels that it is
the abnormal brain activity/seizures which are stopping him from
developing. We are so curious to see if normalising his EEG (which
is apparently really bad even when his seizures are reduced)will
help him to develop although we are aware he may have some problems
which the malformation will cause.
We spent 5 days in RCH where his blood ketones were about .05 - 2.4
but now at home he has neg ketones in Urine.
I will speak to dietician tommorrow ,his ratio of 3:1 which she
worked out for us in his food which is a combination of Goats milk
(on our insistence), calogen and polyjoule.

These seizures are robbing Eric of a chance and so please join me in
praying or for non religious (sending good vibes) to my boy.