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Reply | Forward Message #774 of 1165 |
Hello Everyone,

I am new to this group. My name is Kim and I am the mother of 2
children. Janet is almost 3 and AJ is 7. AJ has been diagnosed with
Lennox-Gastaut Syndrome (an uncontrolled mixed seizure disorder)
which lands him in Children's Hospital every other month or so with
status epilepticus. AJ was diagnosed with epilepsy at age 14 months,
has tried numerous anti-convulsant medications (currently on Keppra,
Lamictal, Zonegran and Felbatol). AJ also has a VNS (Vagus Nerve
Stimulator)implanted in the left side of his chest, near his heart.

AJ is going to be hospitalized at Children's Hospital in San Diego,
California in the near future to implement the Ketogenic Diet and I
desperately need some information regarding recipes, name brands of
low carb. foods, (where to get them) like bread and cereals, what
works, what doesn't work, and the name of the sugar substitute used
on this diet.

I belong to another group for my daughter, called Oceanside Stay At
Home Mom's and wondered how I change my email address on my yahoo
profile so the Ketogenic diet emails come through to my Cox
Communications address? Any assistance is greatly appreciated.

Thank you for your time and consideration.

Sincerely,

Kim Carpenter







Fri May 26, 2006 12:16 am

katsinvista
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Message #774 of 1165 |
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Hello Everyone, I am new to this group. My name is Kim and I am the mother of 2 children. Janet is almost 3 and AJ is 7. AJ has been diagnosed with ...
Kim Carpenter
katsinvista
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May 26, 2006
12:16 am

Kim, My son, DJ, was diagnosed with Lennox Gestalt when he was 3 years old. The ketogenic diet has given us back our son. He was having up to 100 seizures a...
Thelma Fosselman
tfsslmn
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May 26, 2006
12:34 pm
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