Thank you so much for your reply. I have started the Atkins diet and
will slowly wean her off of the Topomax ~ I hope. I noticed that
once she got up to 400 mg per day, she was so out of it. She is
nomaly a very bright, energetic child and she was having trouble
concentratng. It broke my heart. I would rather deal with the
seizures.

One thing I am curious about is what taking the Topomax and being on
the diet could potentially do to her liver and kidneys. Am I
worrying needlessly?

I am so happy that your son is doing well, it is much needed
encouragement right now. I will definatly get a hold of Dr. Kossoff.

Thanks again!

Heather

--- In ketokids@yahoogroups.com, Thelma Fosselman <thelma@...> wrote:
>
> Heather,
> please do not stop the medicine althogether. She needs to be
weaned slowly from it.
>
> My son, is on the ketogenic diet. He has been on it two years,
as of tomorrow. He was diagnosed with Lennox Gestault and was having
up to 100 hundred seizures a day. He has been seizure free since
June 2, 2004 (10 days after starting the ketogenic diet) He has been
drug free since this past December.
>
> Prior to starting the diet, he was put on Topamax. He was taking
14 pills a day and still having up to 100 seizures. The docs wanted
to continue to increase his medication, but the drug made him,
autistic, psychotic and he regressed to that of an 18 month old.
Since being on the diet he has regained all his lost developmental
skills and is a happy six year old.
>
> The ketogenic diet, although is very strict, is also very do-
able. I have been designing my son's meals for about 18 months now
and although his ratio is still 4:1 (4 fats to every 1/2 protein and
1/2 carb) I can give him a bigger variety of foods because I have
the software from Johns Hopkins hospital.
>
> I highly recommend the ketogenic diet. Go to the Johns Hopkins
web site. Dr. Kossoff is currently doing a study and enrolling
patients to try out the Adkins diet.
>
> Please look into the diet options. I would be happy to share
recipes and help in any way. I hate that we have to drug our kids to
treat seizures. My son now has a bright future, because he is
seizure free and off the anti seizure drugs.
>
> heatherathome2005 <heatherathome2005@...> wrote:
> I have found this site very informative and I thank everyone for
> sharing. My daughter is 9 and was diagnosed with absence seizures
a
> year ago. She is on her second medication ~ Topomax. She takes
400
> mg daily and is still having seizures. I decided to stop the
> medication and am researching Keto and Atkins.
>
> Keto seems very intense. I am wondering if the Atkins diet is just
> as beneficial in controlling these types of seizures.
>
> If anyone has any tips, please let me know. I would like to bypass
> the starvation and hospital stay if at all possible.
>
> Also, is just stopping her medication okay? Her Dr. at UCSF (who
is
> wonderful by the way) doesn't even entertain the thought of
stopping
> medication, he just suggests upping the dose and/or switching meds,
> so I am on my own I guess.
>
> Thank you,
>
> Heather
>
>
>
>
>
>
>
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