Dawn,

I just read your post and I am hoping that you found an answer.
This post is quite old but I am hoping you still check this site. I
also suggest you join the ketogenic yahoo group if you have not
already done so. I would get Tucker off the meds as soon as you
can. Cooper was on 3 different meds when he started the diet and as
soon as he started to come off the meds he started doing better.
Good luck and I hope this message finds you and Tucker well.

Tina Brown

--- In ketokids@yahoogroups.com, Dawn Morrison <tuckdood@...> wrote:
>
> Ann,
> We had to take Tucker to the neurologist because we had lots
of questions and he was refusing to eat anything. He would cry with
the meals and ended up aspirating and had to be in the hospital for
aspiration pneumonia. Anyway, the neuro told us that the decreased
appetite could be because of the zonegran, so we are weaning him off
of it for the past 3 weeks! The seizures are a little worse some
days, but I have read so many people say that the seizures get worse
until they are weaned off and the meds are out of their system. I
haven't called the neuro about this because I am afraid he will want
to up the meds and I want to give the diet time to work. Am I
wrong? Since we have started the wean Tucker is holding his head up
so much better and the OT even said he thought that he might be
trying to start to crawl soon!!!!! THanks so much for any advice
from anyone. I am open to any suggestions. Tucker is also on
Depakote and after reading so much I am wondering if we
> shouldn't be weaning off that instead! Thanks, Dawn
>
> kaczor22@... wrote:
> Hi Dawn,
> We started weaning my daughter off her meds about 2 months after
she started
> the diet. We went very slowly and all this was done per her
neurologists
> order. Needless to say, she remained seizure free and was off all
meds in under a
> year. She is still seizure free and on is currently on a strict
Atkins diet.
> So far so good. We tried to wean her off the diet in March of
2004 but she
> had seizures again. Our neuro asked if we wanted to put her back
on the diet
> or try meds again. It was a no brainer and she went back on the
diet. Talk
> to nero and ask him/her why the hesitation on weaning the drugs
even if the
> weaning is done slowly. Hope it goes well and keep me posted.
>
> Ann - mom to Hannah - Chicago
>
>
> [Non-text portions of this message have been removed]
>
>
>
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