I am mom to an 11 year old. She is multi-disabled, but that is not
what is her "Big" issue. Seizure control has been a hugh problem, more
so in the last 5 years. We've done the med rounds and the Keto diet.
The diet helped alot and even to the point where she was seizure free.
But it was short lived. Seizure came back, adjustments made, things
added etc. Each change put her back to seizure free for a week or two,
but then she'd be back to 6 to 10 a day. Then the seizures got bad.
One cluster lasted 12 minutes. We stopped the diet and again she was
seizure free and this time for most of a month. We've done the med
combos and went through bad liver panels and rocky labs in general. So
our next option is the VNS device. Does anyone have any dealing with
it? It seems to be a good option for my daughter, but it's another
surgery and that has it's own problems.

any info would be great

Thanks

Melissa