Hi, Shawna. I am Stephanie- mom to Noah. He is 4 yrs old and has been on the
keto diet for almost 18 months now. He was seizure-free when we left the
hospital from starting the diet, and has had just one seizure in the whole 18
months (one grand mal last October from an ear infection.) He has been med-free
over a year- we were able to wean him off his med shortly after starting the
diet. We did do a kind of slow wean, but we didn't want to upset the
seizure-freedom! He did just fine and has been med-free since then! And, he's
doing wonderfully. We also saw developmental delays begin after the meds were
introduced, but once he started the diet, he was back on track!

If you're interested, I have a document in the files section (I think there is
one in this group's files) called Starting the Keto Diet and it has tips for
what to expect in the hospital, dealing with the diet, etc. Also, you may find
the other yahoo webgroup for Ketogenic (has hundreds of members) helpful, too.

Stephanie
Mom to Noah, Carter, & baby on the way

Shawna Graves <crazyforcody@...> wrote:
Hello - I'm new and mom to wonderful, sweet Cody, 9 months old, who
was diag. with infantile spasms 3 months ago. We've tried ACTH,
Depakote and now Vigabatrin to no avail. He has 10 clusters a day and
is just now showing signs of developmental delay.

We will start the keto diet in 2 weeks and will wean him off vigab. in
the beginning. Has anyone with an i.s. child found the diet to be
successful as a monotherapy? I'd love to get him off all drugs.

Thanks for any input. We love our little guy more than life itself
and want so desperately to get him seizure free.

Gratefully,
Shawna Graves
Battle Ground, Washington




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