Hello - I'm new and mom to wonderful, sweet Cody, 9 months old, who
was diag. with infantile spasms 3 months ago. We've tried ACTH,
Depakote and now Vigabatrin to no avail. He has 10 clusters a day and
is just now showing signs of developmental delay.
We will start the keto diet in 2 weeks and will wean him off vigab. in
the beginning. Has anyone with an i.s. child found the diet to be
successful as a monotherapy? I'd love to get him off all drugs.
Thanks for any input. We love our little guy more than life itself
and want so desperately to get him seizure free.
Gratefully,
Shawna Graves
Battle Ground, Washington