We have been doing the keto diet for a year now with my daughter.
We've made the adjustments, added the MCT oil and done everything else
that we were told to help put her and keep her in ketosis. In the
begining the diet did all it says it would do. Stopped her 15 to 20
seizures a day. But now, after a year shes back to 6 to 10 seizures a
day and clustering from 3 to 14 minutes at a time. At times she even
cries. We have started looking into the VNS. Does anyone have any good
information on it? Because my daughter sits in a wheelchair and the
force of her seizures, the new worry is she will snap a bone in her
leg or something during a seizure. This never crossed my mind before,
but after going to PT and she had one there the PT says it could
happen.


Melissa