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Reply | Forward Message #692 of 1163 |
New Member

Hello,

My name is Jean and I have a 5yr old boy who just started the keto
diet in Jan of this year we have recently moved here from Hawaii Sept
of last yr we actually came here to see what they were gonna do but
come to find out he wasnt a candidate for brain surgery because they
say his seizures are not in one spot of the brain more like called he
has Focal Multi discharge spikes I hope I said it right there is just
too many things to remember anyways my son started having seizures
when he was 2 months old and was diagnosed with epilepsy when he was
1 we are a polynesian family my son is Hawaiian and samoan father
hawaiian and myself samoan this diet is really a challenge for us
especially with the eating my son is still on LAmictal and Depakode
my son has been in and out of seizures hoping that some day he will
be seizure free but still keeping up the faith as of today he is on a
400 calories per meal 3.1 ratio yes its really hard especially seeing
your own child crying that he is still hungry well my son is 5 but
his mentality is of a 15month-22month child regresses when he has
seizures still in pull ups and toilet training shaking when walking
before he had no fearof anything now he is scared to walk down the
stairs or in to a puddle of water but enjoys saying Hi and eat over
and over everyday wakes up to these words and goes to sleep with
these words well I have read so many stories about this and its very
helpful cause I know we are not the only one s going through this but
what really hurts is to see people look at my son weird when he
repeats himself by saying Hi one man replied is that all you can say
but for me did not want to start trouble so just walked out of the
groceri store we dont eat out no more and when we past Mc Donald or
other fast foods he cries out eat when we say he is on the magic diet
he cries out why why why I hope that one day he will understand that
we were not starving him just because but it was to make him better,
Well I better stop I might be going on to long but its nice to know
that there are people out there that knows whats up.

Jean





Mon Jun 13, 2005 3:08 am

jfiaseu2004
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Message #692 of 1163 |
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Hi, My name is Tammy and I have a son who is 7yrs old....with Severe Intractable Epilepsy. There is no more medications to try.... and he is not a canidate for...
Tammy Taylor
twoboysx2
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Jul 22, 2003
3:22 pm

... Here's my geuss - when you dropped some dep, you got withdrawl seizures. Those you have to just ride out. Upping the dose again or adding other drugs is...
mmc@...
mmclaw2002
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May 13, 2005
9:01 pm

Hello, My name is Jean and I have a 5yr old boy who just started the keto diet in Jan of this year we have recently moved here from Hawaii Sept of last yr we...
jfiaseu2004
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Jun 13, 2005
3:09 am

Hi, Jean- I'd like to encourage you- we all do know this is hard, but I do hope you notice improvement while your son is on the diet. My son Noah is 4 and has...
Stephanie
jsprecourt
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Jun 13, 2005
12:34 pm
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