my son is 6 1/2 years old with menkes disease. he is severely handicap and is
on a feeding tube doesnt get anything by mouth but is on the ketogenic diet now
for almost a year. its helped sooo much with his seizures. but im just
wondering if anyone has had any problems with kidney stones? last week he
started urinating blood. it wasnt like it was watered down it was pure blood.
and the week before that i took him to the doctors for fussiness he was in alot
of pain and he cant show me where so i knew something was bothering him. as of
yesterday he now is back to normal diapers but we went to get an ultrasound
today and they said he has kidney stones in both sides they didnt say how many
but she said they were definitly there we will get the full report when we go to
see his doctor on friday i was just wondering if anyone else has this problem
and how to cure it? what do they do to break them up? is it surgery?
i hope someone can answer my questions
Jessica
frggy129@...
www.allthosemoments.com/jordan


ketokids@yahoogroups.com wrote:

There are 2 messages in this issue.

Topics in this digest:

1. Re: Digest Number 206
From: "jcb_ag97"
2. Re: new member
From: Melissa Driggers


________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Mon, 06 Jun 2005 20:43:58 -0000
From: "jcb_ag97"
Subject: Re: Digest Number 206

Just as you found Keto Kids, type in Ketogenic. There are almost
300 members and the site is hoping 24 hrs a day. We began teh diet
last fall and this site has been a life saver to me.

You will have to fill out a questionare and be approved to join, but
it doesn't take them very long to approve you.

JANA

--- In ketokids@yahoogroups.com, mmc@n... wrote:
> > Hi everybody,
> > We are new to this list. We are in the very beginning stages of
starting the ketogenic diet. We are currently weaning my son off of
depakote and introducing trileptal (he is also on zonegran). We are
attending a ketogenic diet parent training/education class at CHOP
in June.
> > I saw that you mentioned the "other keto list". Can you give me
more information about that. I was unaware of another listserve for
the diet.
> > Thank you very much.
> > Deb--mom of Jake--28 months, uncontrolled seizures, reflux, etc.
>
> There is another keto list on yahoo. Its quite large, around 200
or 300 members. The address to post is ketogenic@yahoogroups. com
> but you have to sign up first. If you type in ketogenic in the
yahoogroups search for a group you will get a few groups, some of
them are weight lifting groups or something, but just look for the
one with the biggest amount of members.
> There is a lot of info and knowledge over there. Of course there
is here too, just that with more members you will get a lot more
responses
> Hope that helps
> Michelle




________________________________________________________________________
________________________________________________________________________

Message: 2
Date: Mon, 6 Jun 2005 19:29:13 -0700 (PDT)
From: Melissa Driggers
Subject: Re: new member



-

My daughters adjustment wasn't that bad, at least as
far as we could tell. She is not a fussy kid and never
really cried (even as a baby) She is not verbal but is
vocal. We can tell when she is hungry and try to stick
to meal times as much as possible and offer her sugar
free jello and such. We found that she doesn't like
anything with ground beef, but loves tuna, salmon,
polish sausage, breakfast sausage and brats(hot dog)
and anything spicy. We use tomatoes and apple sauce to
get the carbs and it works for her. She is on a pureed
diet so her meals are all together and blend well.

________________________________________________
>
> Leticia Acevedo
> wrote:
>
> My daughter just started the Keto diet 8 days ago.
> She continues to
> be very irritable and fatigued. How long is the
> adjustment period?
> She gets three rcf meals via g tube and one meal by
> mouth. She will
> eat all her fruit and heavy cream but refuses to eat
> all of her
> protein/fat (chicken salad). Does anyone have any
> suggestions.
> It's very difficult to force her, especially we
> worked so hard to
> get her to start eating by mouth again.
>
>
>
>
> Yahoo! Groups SponsorADVERTISEMENT
>
>
> ---------------------------------
> Yahoo! Groups Links
>
> To visit your group on the web, go to:
> http://groups.yahoo.com/group/ketokids/
>
> To unsubscribe from this group, send an email to:
> ketokids-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to the
> Yahoo! Terms of Service.
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam? Yahoo! Mail has the best spam
> protection around
> http://mail.yahoo.com
>
> [Non-text portions of this message have been
> removed]
>
>
>
> ---------------------------------
> Yahoo! Groups Links
>
> To visit your group on the web, go to:
> http://groups.yahoo.com/group/ketokids/
>
> To unsubscribe from this group, send an email to:
> ketokids-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to the
> Yahoo! Terms of Service.
>
>
>
> [Non-text portions of this message have been
> removed]
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com


________________________________________________________________________
________________________________________________________________________



------------------------------------------------------------------------
Yahoo! Groups Links




------------------------------------------------------------------------





---------------------------------
Yahoo! Mail Mobile
Take Yahoo! Mail with you! Check email on your mobile phone.

[Non-text portions of this message have been removed]