Right now she is able to tolerate chopped up food sometimes if she suffers
"todds paralysis" after a seizure we have to pureed her food for a day or two.
She has gone to two meals by mouth a day since she started the diet and she
would eat more if she was able to.

It's been two and half months since she started the Keto diet and in the
beginning we saw great seizure control (for about three weeks) However, shortly
after after they dropped the dose of her depakote she lost total sz control.
(??) it is now 3 plus weeks and her sz are out of control.... They have
increased her klonipine 4 times, the depakote twice and increase her caloric
intake with no luck. The have added diazapam rectal jelly because she goes into
status epilepticus. She is 3 1/2 years old before the diet she averaged 3 szs a
day and now she is at 14 a day.... I don't know what to do ?? We don't want to
take her off the diet, we think that it worked for a short while and it will
probably work again.

Lettie

Melissa Driggers <wissatoo@...> wrote:
How old is your daughter? What type of texture does she eat? Chopped, pureed
etc.
My daughter is 11 and has been on the Keto diet for about 9 months. She eats 3
meals by mouth ( pureed)and gets 1 via G-tube (Keto-Cal). She adjusted to it in
about a month. We gave her sugar free jello to even out her wanting to eat
longer. We have since added MCT Oil and have seen better control of seizures and
better BM's. Her weight is stable and she has gained with her growth and has
finally filled out some and looks healthy. The diet is not the total answer to
her seizures, but it has taken her from 10 to 20 seizures a day down to 0 to 5 a
day. At this point we are very happy with seizure control.

Leticia Acevedo <leticia_h_acevedo@...> wrote:

My daughter just started the Keto diet 8 days ago. She continues to
be very irritable and fatigued. How long is the adjustment period?
She gets three rcf meals via g tube and one meal by mouth. She will
eat all her fruit and heavy cream but refuses to eat all of her
protein/fat (chicken salad). Does anyone have any suggestions.
It's very difficult to force her, especially we worked so hard to
get her to start eating by mouth again.




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