If you haven't done so already, take a look at the Ketogenic group.
There are over 500 members on this site and all have been extremely
helpful to us, new to the diet in December.

You may better find the answers you are looking for there as the
traffic is much heavier and response time it greater.

Also, they have a file which contains recipes and stories regarding
each child therefore it may help to compare notes.

JANA
Mom to Nathan, KetoKid since Dec. 2004. Seizure free since Feb. 10,
2005!!!

--- In ketokids@yahoogroups.com, Jean Fiaseu <jfiaseu2004@y...>
wrote:
> Hi,
>
> My son is 5 and just started the diet its actually ok he is still
having seizures but not like before ,the problem is his behavior its
really bad and does regress alot, we are having a hard time trying
to cope with amount of food he is eating ,before he would cry alot
for more now he is throwing things around when he wants more.
>
> ag72bg68 <anja.g@p...> wrote:
>
> Hi everybody.
>
> My son Isac, 6½, got the diagnose CSWS 2 years ago. After we have
> tried a lot of defferent medicin without success we started
Ketogenic
> diet 3 months ago. It has done wonders. But the first rapid scan
did
> not show any improvment. We are going to make a new one in 2
months.
> In Denmark where we live there is prctically no expirience with the
> diet and CSWS. Only one child have tried this in Denmark, and she
> only had about 50 % CSWS, no problems with bahavior, but a lot of
> seezures. In her case it went well. But Isac had 90-100 % CSWS on
the
> last EEG before the diet and a lot of problems with behavior and
> concetration. He regresed fast. As i can understand it have been
more
> normal in other parts of the world to use the diet on children with
> CSWS. I would very much like to hear from as many as posssible who
> have tried this. What i would like to know is:
> - did it help on behavior and concentration?
> - how was their devolopment during the diet?
> - did it help on the EEG? -if yes how long before it showed?
> - haw long were they on the diet?
> - what medicin did they have?
> - what kind of seezures did they have befor the diet? -and what
> happend to them during the diet?
> - what hospital/doctor administrated the diet?
> - how old where your child when they started the diet?
>
> I know this is a lot of questions, but i hope as many as possible
wil
> help me find answers to these, because nobody in Denmark has any
> answers for me. For us it is clearly an experiment. What is hard to
> understand for me is that we saw dramatic improvment within a few
> days, but when we made a rapid scan after a month, there was no
> difference. How is this possible? Ofcause i am very afraid that the
> next rapid scan will show no improvment either?
>
> Anja
>
>
>
>
>
>
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