Hi,

New to your "club" at least :-) Boy, itsn't this a club we all don't want to be
in? I'm also in the autism club. The good thing about that though is I have met
the most incredible people on our journey.

I have a son who will be 8 on Sat. He had an EEG on Dec. 28 as a "rule out."
He has late onset autism, and after 6 years a doc finally said we should do a
rule out EEG. They said he has "seizure activity" on the left side of his
brain. He had visible absence seizures as a toddler (I know in hindsight). He
doesn't stare like that any more, so I don't really know how his "activity"
manifests itself. He did have a wierd eye flutter that I haven't noticed lately
(even before meds) but was still present.

You all are the most active kids chat group I could find, so I hope you don't
mind my questions:
1. Based on a short (>1 hr.) sleeping EEG will they know how often my son
seizes? What questions should I be asking our neuro?
2. Is the keto diet good for this type of child? He has been on Trileptal for
three weeks. In that time he has regressed 2 years in language and skills,
cognition, etc. He already had a 4 yr. language delay so we're in trouble. He
was doing better off the meds and seizing.
3. Has anyone had the experience of such bad side effects and then the meds
being effective after 3 weeks? Reading the archives it seems like bad side
effects are pretty much how it is.
4. My hope is that this seizure stuff is the root of his "autism." He is very
high functioning. I feel like if his brain pattern could even out he could come
out of all this. Am I delusional?

Susan

[Non-text portions of this message have been removed]