--- In ketokids@yahoogroups.com, tricia bentley <trichr2004@y...>
wrote:
> my son did well for about 2 weeeks into the diet. then it gradually
got worse. Never as bad as before. time or bad. His drop sez. he
never had again which was an every day thing.
> his sez slowly started getting better then was about 3 a week and
stayed that way. since the beginning of the diet it was 10 months and
chris became sez. and med free for almost a year.
> his sez now are no longer than 30-45 seconds and are no where near
as strong. hang in there things will change let her body and mind
figure out whats going for a while before you start getting worried.
chris has been on the diet 2.8 years and we may be weining him off
starting in feb. its a long road but well worth it.
>
> Marie Palmer <celinem@b...> wrote:
>
> Melissa, when my granddaughter Ella went on the diet she had six
months free of seizures, she was 4 years old when she started the
diet, but before that we weaned her off all meds, when the seizures
came back they were not so severe, and they did not last so long, she
is 8 now and still has seizures, but at least she does`nt have to put
up with side affects from drugs. the seizures she had before the diet
could last up to 3 hours in status, and she would end up in the
hospital. Ella is developmentally delayed because of the lengthy
seizures on meds, with the help of an ABA intervention in her
education, she is now at mainstream school with an assistant, and can
say quite a few words, she is also quite slight for her age. Marie.
> ----- Original Message -----
> From: Melissa Driggers
> To: ketokids@yahoogroups.com
> Sent: Wednesday, January 05, 2005 7:01 PM
> Subject: Re: [Keto Kids]
>
>
> My daughter has been on the Keto diet for a few months
> now. At first it really looked like the answer to her
> seizures.(she went from 15 to 20 seizures a day to 0
> to 5 a day in 5 weeks) But now we are starting to see
> an increase of seizures. We looked at all the meals
> plans, made a change, looked at meds, changed to Milk
> of Mag, and now I'm not sure where to go. All her labs
> are good. She is on Depakote and its in range. Her
> weight is held steady at 44.6 pounds. (she is a little
> thing at 10 years old) She is as active as ever,
> sleeping well and babbling. So if anyone has any
> suggestions please let me know. We have been working
> with the doctor and all.
>
> Thanks
>
> Melissa
>
>
>
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