I just want to say " you are a POWER MOM" we do all have something special in
us, thats what keeps me strong, knowing that we are all delt with only with what
can handle. and im glad that we finally have something as simple as food to help
our children. but it sounds like you have your plate full, and your sanity in
total control. im glad you mentioned that you pre-made meals, and threw this out
to people(in case they havent thought of it) something so simple can really be
helpful if someone donsen't know. i do the same and make pre-made meals and
freeze them. it's so easy when it's already there, and not so teedious. i was
told this was the hardest thing i was going to have to do in my life, God i wish
that was true, i would have to consider life a breeze. for people to belive
weighing food 5-6 times a day to the gram is harder than watching my son go
through 5-6 different kinds a seizures a day, well that just seems kinda silly.
yes it's nothing short of AAAAAHHHHHHHHHHHHHH, but
it's better than watching your child in so much pain and confussion, knowing
there is NOTHING you can do to help him. i don't know about you, but my parents
have always helped me, and growing up they seemed to always be there and FIX
EVERYTHING. I felt/feel so helpless. I want my son to feel the same way. thats
what was most difficult for me, it's like the times he needed me the most i
couldn't fix it. i would just hold him and say mama's here. which is the only
thing i could do. but my son is 9 and is still not verbal enough to ask
questions. so what do i do? he understands most things! but he would not
understand he is different(besides from the food my son sees nothing) i have a 2
1/2 year old he seems to understand he he eats different food to help his sez.
but i don't think he knows hes different! well ireallly just wanted you to know,
you are GREATand high five. keep up the great work and tell your child if he can
understand, that there is a girl all the way in Massachussetts.
that thinks he is the best kid EVER. justin is strong and such a trooper,and
someday he will grow up and can help kids that are just like him! and he's a
hero for putting up this "diet thing" and he's a stonger person than I, possibly
more powerful than superman! I know he couldn't do it! He may have to have 1
gram of cryptonite and we know that's just a little hard for him to with stand!
and he has a cape with hope and wishes, tricia and christopher...

Allyson Kulinski <allyson@...> wrote:
Let me tell you what I do about meals. I tried for the first few days of Justin
being on the diet to make fresh new fangled fun meals every time he was ready to
eat. Let me just say I was insane! Now lets go on about how my oldest will only
eat kid type foods, Justin is on the diet and my hubby is a meat and potatoes
kind of guy and me, well sometimes I have ahankering for something odd in this
house, like fish. AHHHHHHHHHH After about 4 days of cooking 4 different meals
three plus times a day I said oh thank you no more! Here is what I do now...

Whenever I have the time, like say on a Sunday evening at about 2 in the morning
because that's when I do most of my cleaning, laundry and other housework
anyway, I make a meal I've got a plan for. He loves "pancakes" so lets use that
as an example. I dutifully mix up a 500x batch or so of my recipe (it's 23 grams
of egg, 10 grams of oil and a pinch of baking powder by the by) for pancakes and
fry them up like pancakes on the stove. Justin gets about 20 grams of sugar free
syrup and 13 grams of butter with this particular meal. After the pancakes cool
I measure out a mess of single meals. (side note: I went o Sam's and got a case
of those little suffle cups. They're about 2 oz, cheap and easy to use and I
don't feel guilty about tossing them out when I'm done with them.) When I have
all the meals measure out... say 7 baggies of pancake, seven suffles of butter
and syrup together, I toss them all into a gallon size zippie bag. I write on
the outside what he gets with each meal. So for
this one I write 1 pancake, 1 butter/syrup, no cream. Tada instant meal ready
to heat up and he doesn't have to wait when it's time to eat. I experimented for
awhile with different meals and have found about 12 he likes a lot. I get what I
need for them and make them up every once in awhile. That way I always have
something in the fridge and there's usually 3-4 he can choose from.

Another quick side note, I don't know about you but I am NEVER at home. We
typically leave for something by about 9 am and get home some time after 4. I
always pack a little lunchbox with a few meal choices for Justin to throw in the
car. Makes it doubly easy to toss one in the lunchbox on the way out the door if
it's already made. Whew didn't mean to turn this into a mantra but make ahead
baby!

Ally
----- Original Message -----
From: dillybear
To: ketokids@yahoogroups.com
Sent: Saturday, June 12, 2004 9:17 PM
Subject: [Keto Kids] getting organized


hi--my son is Dylan,we live in connecticut and this is the second
time we are doing the ketogenic diet--Dylan had Myoclonic seizures
and drop seizures the first time we did the diet from ages 2 to 4.5
years old--he stopped the drop seizures and had no myoclonic
seizures for 1.5 years but then the special ed preschool teacher
felt sorry for dylan and she was giving him applesauce at school--he
is now 8.5 years old, has myoclonic seizures still and staring
seizures as well as grand mal seizures now. he only used to grand
mal seizures when he was febrile(with a fever) but now there without
a fever--my problem is I keep feeling like i'm playing catch-up with
making his meals--how do you-all organize your meal preparation and
paperwork so you remember to salt the meal and give vitamins and cal-
mag zinc every day? Thanks for the help--I do know it works because
it eliminated my son's drop seizures--completely---also are any of
your children having trouble retieving the word he or she is trying
to say, or having trouble with balance and if so what have you been
told about it?


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