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Reply | Forward Message #544 of 1163 |
hi--my son is Dylan,we live in connecticut and this is the second
time we are doing the ketogenic diet--Dylan had Myoclonic seizures
and drop seizures the first time we did the diet from ages 2 to 4.5
years old--he stopped the drop seizures and had no myoclonic
seizures for 1.5 years but then the special ed preschool teacher
felt sorry for dylan and she was giving him applesauce at school--he
is now 8.5 years old, has myoclonic seizures still and staring
seizures as well as grand mal seizures now. he only used to grand
mal seizures when he was febrile(with a fever) but now there without
a fever--my problem is I keep feeling like i'm playing catch-up with
making his meals--how do you-all organize your meal preparation and
paperwork so you remember to salt the meal and give vitamins and cal-
mag zinc every day? Thanks for the help--I do know it works because
it eliminated my son's drop seizures--completely---also are any of
your children having trouble retieving the word he or she is trying
to say, or having trouble with balance and if so what have you been
told about it?




Sun Jun 13, 2004 3:17 am

dillybear
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Message #544 of 1163 |
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hi--my son is Dylan,we live in connecticut and this is the second time we are doing the ketogenic diet--Dylan had Myoclonic seizures and drop seizures the...
dillybear
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Jun 13, 2004
3:17 am

Hello! I have to admit I am HORRIBLE with being organized as far as the salt & vitamins go, so I am interested in seeing what others have for input! My Noah is...
Stephanie
jsprecourt
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Jun 13, 2004
3:49 am

Let me tell you what I do about meals. I tried for the first few days of Justin being on the diet to make fresh new fangled fun meals every time he was ready...
Allyson Kulinski
allysonkulinski
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Jun 13, 2004
6:41 am

I just want to say " you are a POWER MOM" we do all have something special in us, thats what keeps me strong, knowing that we are all delt with only with what...
tricia bentley
trichr2004
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Jun 20, 2004
4:54 am
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