Glad you have everything sorted out with the diet. Sounds like you have
a good dietician.

The only reason I push our neuro for a diagnosis is that some
medications used for treating LGS seizures actually make seizures in MAE
worse.

Just my two cents.

Jenn

sbitman@... wrote:

> Just wanted to thank everyone for all of there information regarding
> what
> types of seizures they thought my daughter was having, and on the
> scale,
> etc. We have decided to start the diet on Sept 9th at Miami
> Childrens
> Hosp. Originally we were going to work with a local dietician, but
> decided
> that a "keto clinic" would better suit us and only increase our odds
> of
> the diet working for us. I am still waiting on my book, but I have
> ordered
> a scale. I know some of you were worried about what I was originally
> told,
> but I did speak to the dietician and I have ordered a scale that
> weighs to
> the 1/10th and it is a 400 gram scale. (thanks again for the
> suggestions.)
>
> I have talked with several of you about my daughters seizures and it
> was
> mentioned about the possibility of MAE or doose. (which I had never
> heard
> of). Well we had a neuro checkup on Monday and I questionsed our dr.
> abour
> this. We went back over her EEG and that is consistant with LGS, but
> her
> symptoms are consistant with MAE. At this point i'm think as long as
> the
> diet works I don't care what its called!!
>
> One more question to rack everyones brains. Does anyone know what a
> pulsation artifact on an MRI is??? I was trying to look it up but
> everything is in technical terms and I am lost.
> Thanks Again, Keri (Taylor, 2 1/2 LGS, poss MAE, who knows -
> Depakote and
> weaning topamax)
>
>
>
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