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update & one more question   Message List  
Reply | Forward Message #395 of 1163 |
Just wanted to thank everyone for all of there information regarding
what
types of seizures they thought my daughter was having, and on the
scale,
etc. We have decided to start the diet on Sept 9th at Miami
Childrens
Hosp. Originally we were going to work with a local dietician, but
decided
that a "keto clinic" would better suit us and only increase our odds
of
the diet working for us. I am still waiting on my book, but I have
ordered
a scale. I know some of you were worried about what I was originally
told,
but I did speak to the dietician and I have ordered a scale that
weighs to
the 1/10th and it is a 400 gram scale. (thanks again for the
suggestions.)

I have talked with several of you about my daughters seizures and it
was
mentioned about the possibility of MAE or doose. (which I had never
heard
of). Well we had a neuro checkup on Monday and I questionsed our dr.
abour
this. We went back over her EEG and that is consistant with LGS, but
her
symptoms are consistant with MAE. At this point i'm think as long as
the
diet works I don't care what its called!!

One more question to rack everyones brains. Does anyone know what a
pulsation artifact on an MRI is??? I was trying to look it up but
everything is in technical terms and I am lost.
Thanks Again, Keri (Taylor, 2 1/2 LGS, poss MAE, who knows -
Depakote and
weaning topamax)





Wed Aug 20, 2003 8:58 pm

skttbit
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Message #395 of 1163 |
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Just wanted to thank everyone for all of there information regarding what types of seizures they thought my daughter was having, and on the scale, etc. We have...
Keri Bitman
skttbit
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Aug 20, 2003
9:00 pm
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