Jana- I have always been told that seizures and sleep go hand in hand. You
aren't the first person that has told me that there child has out grown the bad
mornings. Maybe with the diet and time Taylor will do the same.
Thanks Keri
----- Original Message -----
From: momeezmail
To: ketokids@yahoogroups.com
Sent: Thursday, August 07, 2003 11:00 PM
Subject: [Keto Kids] Re: seizures bad in morning
Hi Keri, There is just something linked between sleep and seizures.
It is amazing how common the early morning wake up seizures are. I
don't have any advice for you. My son used to have morning seizures
and he doesn't anymore. I think things just changed as he grew.
Hopefully the diet will help Taylor.
Jana
--- In ketokids@yahoogroups.com, "Keri Bitman" <sbitman@t...> wrote:
> Hi-I am fairly new to the group. here is a quick run down. My
> daughter
> Taylor is 2 1/2, uncontrolled LGS for 2 years this Oct.
(previously
> has
> IS-ACTH helped). We have tried 7 meds and are going to start the
> keto diet
> Oct 6th. Currently Taylor gets Depakot & Topamax. Here is my
> question: She
> wakes up around 8:30, and for the first 1 1/2 to 2 hours she has
> back to
> back clusters (she has mostly atonic &myclonic seizures in 3-5min
> clusters). After that she is really good for most of the day. She
> will
> have other clusters at various times, but she is always worst in the
> morning. I have tried giving her meds really late at night, and
> right when
> she rolls out of bed. Any suggestions?
> Thanks Keri (taylor 2 1/2 LGS, Depakot & topamax)
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